Ethical Challenges in Lead Poisoning Prevention Research

描述(由申请人提供) 最近媒体对中电预防研究的伦理、社会和法律问题的关注突显了社区和环境健康(EH)研究人员之间需要就研究的目标、设计、挑战、进展和结果以及如何在研究的进行和翻译中解决这些问题进行持续有效的对话。拟议的项目重点是在肯尼迪·克里格研究所(KKI)和约翰霍普金斯大学彭博公共卫生学院(JHBSPH)进行的CLP研究的背景下，社区参与、能力建设、教育和赋权。具体目标是：1)建立社区委员会，建立社区研究能力，并提高研究人员对社区价值观、优先事项和知识的认识，从而为EH研究人员和社区之间的持续对话建立现有基础设施；2)在社区参与下，进行深入访谈、焦点小组和调查，评估社区对EH研究和中电研究的知识/态度/看法，特别是EH研究人员对社区的知识/态度/看法；以及3)与社区创建与EH研究和中电研究有关的教材，包括与4项中电研究有关的社区教材/计划；(B)为研究人员编写教育材料/方案，以解决他们对社区、社区需求、关切、文化和研究观点的知识和理解方面的差距；以及(C)评估编写和实施教育材料的过程及其对社区的影响。该项目以巴尔的摩东部赋权区为目标，吸引居民、社区组织和具有生物伦理、健康教育、社区调解和应用社会营销技术的专业知识的个人参与，以开发创新的教育材料，以改善健康和环境正义。研究人员假设，我们的方法可以为不同社区和EH科学家的教育提供模型。

DESCRIPTION (provided by applicant) Recent media attention on ethical, social, legal issues of CLP prevention research highlights the need for continuous and effective dialogue between communities and environmental health (EH) researchers about the aims, design, challenges, progress, and findings of research and ways to address these issues in the conduct and translation of research. The proposed project focuses on community involvement, capacity building, education, and empowerment in the context of CLP research conducted by the Kennedy Krieger Institute (KKI) and Johns Hopkins Bloomberg School of Public Health (JHBSPH). Specific aims are: 1) To build on existing infrastructure for sustained dialogue between EH researchers and community by creating a Community Board, building community capacity for research, and increasing researchers 'awareness of community values, priorities, knowledge; 2) to conduct with community involvement in-depth interviews, focus groups and surveys, assessing, community knowledge/attitudes/perceptions about EH research and CLP research in particular, EH researchers' knowledge/attitudes/perceptions about the community; and 3) to create educational materials with community related to EH research and CLP studies, including educational materials/programs for community related to four CLP studies; (b) developing educational materials/programs for researchers to address gaps in their knowledge and understanding of community, its needs, concerns, culture, and points of view about research; and (c) evaluating the process of developing and implementing the educational materials and their community impact. The project, targeted to the E. Baltimore Empowerment Zone, engages residents, community organizations, and individuals with expertise in bioethics, health education, community mediation, and the application of social marketing techniques to the development of innovative educational materials, to improve health and environmental justice. The investigators hypothesize that our approach can produce models for education of diverse communities and EH scientists.