Ethical Challenges in Lead Poisoning Prevention Research

描述（由申请人提供） 最近媒体对CLP预防研究的伦理，社会，法律的问题的关注突出了社区和环境健康（EH）研究人员之间持续有效对话的必要性，对话的目的，设计，挑战，进展和研究结果以及在研究的进行和翻译中解决这些问题的方法。 拟议项目的重点是社区参与，能力建设，教育和赋权的背景下，由肯尼迪克里格研究所（KKI）和约翰霍普金斯布隆伯格公共卫生学院（JHBSPH）进行CLP研究。 具体目标是：1）通过建立社区委员会，建设社区研究能力，提高研究人员对社区价值观、优先事项和知识的认识，在现有基础设施上建立环境卫生研究人员与社区之间的持续对话; 2）与社区参与者进行深入访谈、焦点小组和调查，评估社区对环境卫生研究（特别是中电研究）的知识/态度/看法，EH研究人员对社区的知识/态度/看法;以及3）与社区一起创建与EH研究和CLP研究相关的教育材料，包括与四项CLP研究相关的社区教育材料/计划;（B）为研究人员制定教育材料/方案，以弥补他们在了解和理解社区、社区需求、社区关切、社区文化方面的差距，以及对研究的看法;以及（c）评估教材的编制和实施过程及其对社区的影响。 该项目针对E.巴尔的摩授权区，从事居民，社区组织和个人在生物伦理学，健康教育，社区调解和社会营销技术的应用，创新的教育材料的发展，以改善健康和环境正义的专业知识。 研究人员假设，我们的方法可以产生不同的社区和EH科学家的教育模式。

DESCRIPTION (provided by applicant) Recent media attention on ethical, social, legal issues of CLP prevention research highlights the need for continuous and effective dialogue between communities and environmental health (EH) researchers about the aims, design, challenges, progress, and findings of research and ways to address these issues in the conduct and translation of research. The proposed project focuses on community involvement, capacity building, education, and empowerment in the context of CLP research conducted by the Kennedy Krieger Institute (KKI) and Johns Hopkins Bloomberg School of Public Health (JHBSPH). Specific aims are: 1) To build on existing infrastructure for sustained dialogue between EH researchers and community by creating a Community Board, building community capacity for research, and increasing researchers 'awareness of community values, priorities, knowledge; 2) to conduct with community involvement in-depth interviews, focus groups and surveys, assessing, community knowledge/attitudes/perceptions about EH research and CLP research in particular, EH researchers' knowledge/attitudes/perceptions about the community; and 3) to create educational materials with community related to EH research and CLP studies, including educational materials/programs for community related to four CLP studies; (b) developing educational materials/programs for researchers to address gaps in their knowledge and understanding of community, its needs, concerns, culture, and points of view about research; and (c) evaluating the process of developing and implementing the educational materials and their community impact. The project, targeted to the E. Baltimore Empowerment Zone, engages residents, community organizations, and individuals with expertise in bioethics, health education, community mediation, and the application of social marketing techniques to the development of innovative educational materials, to improve health and environmental justice. The investigators hypothesize that our approach can produce models for education of diverse communities and EH scientists.