Organ Donation in the Black Community: A Focus on Family

描述（由申请人提供）： 这项拟议的研究将测试对非裔美国人（AA）家庭和AA宗教组织神职人员的文化敏感的器官和组织捐赠干预的有效性。第1组将参与形成性研究，旨在了解家庭成员和神职人员之间器官和组织捐赠的需求，知识，信仰，态度，经验和词汇。其余各组将参加干预有效性试验。第二组（比较组= C）将收到以小册子和文化敏感录像带形式提供的标准捐赠教育信息，以及通过现有的外展活动进行教育。第3组（干预= I）将接受与第2组相同的干预，以及：（a）文化敏感的书面材料，（B）面向家庭的视频，重点是捐赠过程，（c）教育其宗教组织神职人员的干预。本研究将检验两个主要假设： H1：与接受标准捐赠教育的人相比，接受文化敏感的面向家庭的干预（I）的人在与家人讨论捐赠的准备阶段，尸体捐赠的准备阶段和活体捐赠的准备阶段会显着增加。比较C组和I组的主要目的是确定文化敏感的家庭导向干预措施的有效性，这种干预措施是使用Resnicow、Baranowski、Ahluwalia和Braithwaite（1999）中描述的文化敏感性的“深层结构”模型以及神职人员参与的效用开发的。 H2：干预措施的效果将通过增加干预措施材料的使用来调节（后测评估）;对捐赠过程的了解;对医疗机构的信任;以及来自跨理论模型和理性行动理论的变量（Fishbein，1967），如与家人讨论捐赠，承诺捐赠和跨文化捐赠的决策平衡;与讨论和捐赠相关的社会规范的感知;和与家人讨论捐赠的自我效能。调解将通过结构方程模型进行测试。

DESCRIPTION (provided by applicant): The proposed study will test the effectiveness of a culturally-sensitive organ and tissue donation intervention for African American (AA) families and clergy of AA religious organizations. Group 1 will participate in formative research that seeks to understand the needs, knowledge, beliefs, attitudes, experiences, and vocabulary surrounding organ and tissue donation among family members and clergy. The remaining groups will participate in the intervention effectiveness trial. Group 2 (Comparison = C) will receive standard donation educational messages in the form of pamphlets and culturally-sensitive videotapes as well as education through the currently available outreach initiatives. Group 3 (Intervention = I) will receive the same intervention as Group 2 as well as: (a) culturally-sensitive written materials, (b) a family-oriented video that focuses on the donation process, and (c) an intervention educating the clergy of their religious organizations. The study will test two primary hypotheses: H1: Individuals receiving a culturally-sensitive family-oriented intervention (I) will show significantly greater increases in stage of readiness to discuss donation with family, stage of readiness for cadaveric donation, and stage of readiness for living donation than those who receive standard donation education (C). The primary goal of comparing groups C and I is to determine the efficacy of a culturally-sensitive family-oriented intervention developed using the "deep structure" model of cultural sensitivity described in Resnicow, Baranowski, Ahluwalia, and Braithwaite (1999) and the utility of involving clergy. H2: The effect of the intervention will be mediated by increased use of the intervention materials (assessed at posttest); knowledge about the donation process; trust of the medical establishment; and variables from the Trans-theoretical Model and Theory of Reasoned Action (Fishbein, 1967) such as decisional balance for discussing donation with family, committing to donation, and for cross-cultural donation; perception of social norms related to discussion and donation; and self-efficacy for discussing donation with family members. Mediation will be tested through structural equation modeling.