Organ Donation in the Black Community: A Focus on Family

描述(由申请人提供)： 这项拟议的研究将测试针对非裔美国人(AA)家庭和AA宗教组织的神职人员的文化敏感器官和组织捐赠干预措施的有效性。第一组将参与形成性研究，旨在了解家庭成员和神职人员对器官和组织捐赠的需求、知识、信仰、态度、经历和词汇。其余的小组将参加干预效果试验。第二组(比较=C)将以小册子和对文化敏感的录像带的形式收到标准捐赠教育信息，并通过现有的外联举措接受教育。第三组(干预=I)将接受与第二组相同的干预，以及：(A)对文化敏感的书面材料，(B)侧重于捐赠过程的以家庭为导向的视频，以及(C)对其宗教组织的神职人员进行教育的干预。这项研究将检验两个主要假设： H1：接受文化敏感、以家庭为导向的干预措施的个人(I)在准备与家人讨论捐赠的阶段、准备遗体捐赠的阶段和准备接受活体捐赠的阶段(C)比接受标准捐赠教育的人表现出更大的增长。对C组和I组进行比较的主要目的是确定采用ResNicow、Baranowski、Ahluwalia和Braithwaite(1999)中所述的文化敏感性的“深层结构”模式制定的注重文化的以家庭为导向的干预措施的有效性以及让神职人员参与的效用。 H2：干预的效果将通过更多地使用干预材料(在后测时评估)；关于捐赠过程的知识；对医疗机构的信任；以及跨理论模型和理性行动理论(Fishbein，1967)中的变量，例如与家人讨论捐赠、承诺捐赠和跨文化捐赠的决策平衡；与讨论和捐赠相关的社会规范的感知；以及与家庭成员讨论捐赠的自我效能。中介作用将通过结构方程模型进行检验。

DESCRIPTION (provided by applicant): The proposed study will test the effectiveness of a culturally-sensitive organ and tissue donation intervention for African American (AA) families and clergy of AA religious organizations. Group 1 will participate in formative research that seeks to understand the needs, knowledge, beliefs, attitudes, experiences, and vocabulary surrounding organ and tissue donation among family members and clergy. The remaining groups will participate in the intervention effectiveness trial. Group 2 (Comparison = C) will receive standard donation educational messages in the form of pamphlets and culturally-sensitive videotapes as well as education through the currently available outreach initiatives. Group 3 (Intervention = I) will receive the same intervention as Group 2 as well as: (a) culturally-sensitive written materials, (b) a family-oriented video that focuses on the donation process, and (c) an intervention educating the clergy of their religious organizations. The study will test two primary hypotheses: H1: Individuals receiving a culturally-sensitive family-oriented intervention (I) will show significantly greater increases in stage of readiness to discuss donation with family, stage of readiness for cadaveric donation, and stage of readiness for living donation than those who receive standard donation education (C). The primary goal of comparing groups C and I is to determine the efficacy of a culturally-sensitive family-oriented intervention developed using the "deep structure" model of cultural sensitivity described in Resnicow, Baranowski, Ahluwalia, and Braithwaite (1999) and the utility of involving clergy. H2: The effect of the intervention will be mediated by increased use of the intervention materials (assessed at posttest); knowledge about the donation process; trust of the medical establishment; and variables from the Trans-theoretical Model and Theory of Reasoned Action (Fishbein, 1967) such as decisional balance for discussing donation with family, committing to donation, and for cross-cultural donation; perception of social norms related to discussion and donation; and self-efficacy for discussing donation with family members. Mediation will be tested through structural equation modeling.