Breast Cancer Treatment Decisions & Outcomes in Latinas

描述（由申请人提供）：评估乳腺癌妇女的护理质量是美国的一项重要研究优先事项，因为人们担心治疗质量。 拉丁妇女可能特别容易受到与文化，背景和访问有关的护理问题的访问和质量。 不幸的是，没有基于人群的研究，同时评估治疗过程的决定因素和护理结果的拉丁美洲妇女乳腺癌在美国。 我们建议在洛杉矶县进行一项以人口为基础的研究，以检查一系列广泛的决定因素（诱发/使能因素，临床因素，外部影响和患者知识和态度因素），可能与最近诊断为乳腺癌的拉丁妇女的四种结果相关：（1）明确的手术治疗（乳房切除术与乳房肿瘤切除术）和补充治疗方案（乳房肿瘤切除术后放射治疗和乳房切除术后重建）;（2）患者对所接受治疗的满意度;（3）患者对治疗决策过程的满意度;（4）与健康相关的生活质量。 所有拉丁裔女性（使用经验证的基于美国人口普查的姓氏策略确定）和最近诊断为乳腺癌的非拉丁裔女性（N= 2，200）的20%随机样本将使用登记处的快速病例确定过程从为期12个月的洛杉矶监测、流行病学和最终结果（SEER）集水区前瞻性选择。 将邀请妇女通过邮件填写一份标准化的自填调查问卷，并邀请她们在愿意的情况下通过电话完成调查。 我们预计75%的合格患者将完成问卷（N= 1，545名受访者），其中35%将自称为拉丁裔。

DESCRIPTION (provided by applicant): Evaluating the quality of care for women with breast cancer is an important research priority in the United States as there are concerns about the quality of treatment delivery. Latina women may be particularly vulnerable to access and quality of care issues related to culture, context and access. Unfortunately, there are no population-based studies that simultaneously evaluate determinants of treatment processes and outcomes of care for Latina women with breast cancer in the United States. We propose a population-based study in Los Angeles County to examine a broad array of determinants (predisposing/enabling factors, clinical factors, external influences and patient knowledge and attitudinal factors) that may be associated with four outcomes for Latina women recently diagnosed with breast cancer: (1) definitive surgical treatment (mastectomy vs. lumpectomy) and complementary treatment options (radiation therapy post-lumpectomy and reconstruction post-mastectomy); (2) patient satisfaction with the treatments received; (3) patient satisfaction with the process by which treatment decisions were made; and (4) health-related quality of life. All Latina women (identified using a validated U.S. Census-based surname strategy) and a 20% random sample of non-Latina women recently diagnosed with breast cancer (N=2,200) will be selected prospectively from the Los Angeles Surveillance, Epidemiology and End Results (SEER) catchment areas of a 12-month period using the registries' rapid case ascertainment process. Women will be invited to complete a standardized self-administered survey questionnaire in the mail with an invitation to complete the survey by telephone if preferred. We expect that 75% of eligible patients will complete the questionnaire (N=1,545 respondents) of whom 35% will self-designate as Latina.