Web-based Support to Self-Manage Migraine Pain

描述（由申请人提供）：偏头痛是一种常见的慢性疾病，其特征是反复急性发作，造成疼痛、残疾和功能丧失。在美国，大约18%的女性和6.5%的男性，估计有2800万美国人患有偏头痛。这些人中有一半没有得到充分的治疗和诊断。传统的治疗方法取得了有限的成功，而且往往使病人处于被动地位，从而使他们“医疗化”。临床上，很少强调教患者积极应对和行为自我管理技能。研究表明，成功治疗的一个关键组成部分是让患者学习积极的自我管理策略，以识别、避免和管理头痛情况和触发因素。需要方便和量身定制的干预措施，以促进患者教育和参与采用行为自我管理技能。互联网为教育患者提供了一种工具，帮助他们发展、维护和跟踪行为自我管理活动。目前大多数偏头痛网站缺乏量身定制的、基于证据的信息和自我管理培训，而且没有一个网站在帮助患者获得改善结果方面的有效性得到了科学验证。拟议中的网站MyMigraineHeadache.com将以用户友好、吸引人的多媒体格式，提供以证据为基础的资源，提供教育、动机干预、互动工具、与医疗保健提供者有效沟通的策略以及行为自我管理培训。该计划将在第二阶段进行测试，以证明该计划的有效性和临床效用。

DESCRIPTION (provided by applicant): Migraine headache is a common, chronic medical condition characterized by recurrent acute attacks that create pain, disability and loss of function. Approximately 18% of women and 6.5% of men in the United States, an estimated 28 million Americans, suffer from migraine headache. Half of these individuals are under treated and under diagnosed. Traditional treatment approaches have met with limited success and tend to "medicalize" patients by placing them in a passive role. Clinically, little emphasis is placed on teaching patients active coping and behavioral self-management skills. Research demonstrates that a critical component of successful treatment is engaging the patient in learning active self-management strategies in order to identify, avoid, and manage headache situations and triggers. Accessible and tailored interventions are needed to facilitate patient education and engagement in the adoption of behavioral self- management skills. The Internet offers a vehicle for educating patients and assisting them in developing, maintaining, and tracking behavioral self-management activities. Most currently available migraine Websites lack tailored, evidence-based messaging and self-management training, and none have been scientifically validated for efficacy in helping patients attain improved outcomes. The proposed Website, MyMigraineHeadache.com, will provide an evidence-based resource offering education, motivational interventions, interactive tools, strategies for effective communication with healthcare providers, and behavioral self-management training, within a user-friendly, engaging, multimedia format. The program will be tested in Phase II to demonstrate the programs' efficacy and clinical utility.