Cancer Caregiving in Latinos

描述(申请人提供)：华盛顿特区有一个快速增长的拉美裔人口。癌症是拉美裔人的主要死因。照顾癌症患者的负担可能会给家庭照顾者带来长期的身体和精神痛苦，大型研究表明，临终关怀可以为患者带来更好的护理，并减轻照顾者的压力。然而，拉丁裔可能不太可能使用临终关怀服务，尽管他们的需求可能更大。最近的研究表明，我们地区的拉丁裔癌症护理人员有各种未得到满足的需求，他们中的大多数是新移民--贫穷、没有保险、只会说一种西班牙语。大家庭是拉美裔人的传统资源，移民家庭中往往没有大家庭，使得照顾者得不到相互竞争的角色和责任的支持，包括照看孩子和赚取工资。此外，西班牙语往往无法提供服务，寻求正式服务可能存在文化障碍。为了在这一研究不足的人群中研究癌症护理，拉丁美洲癌症研究联盟(LACRC)和首都临终关怀中心之间建立了一个跨文化、双语、跨学科、学术/社区的伙伴关系。目前项目的总体目标是描述新移民的拉美裔癌症护理人员的需求，确定与临终关怀使用相关的文化因素，并了解临终关怀使用如何影响护理对照顾者体验和结果的影响。这些目标解决了NCI生存办公室的主要研究议程之一：了解癌症护理人员的需求和调整。为了实现这些目标，我们将使用定性的方法对拉丁裔失去亲人的前照顾者(N=18名临终关怀使用者和18名非临终关怀使用者)进行6个焦点小组，并对提供者进行10次关键的线人访谈，以了解文化对护理提供的影响。分析将确定未来干预措施的因素，以帮助拉丁裔照顾者，包括促进更多的临终关怀使用。这项拟议的研究将首次比较拉美裔人口中临终关怀和非临终关怀的使用，为临终关怀推广工作提供指导。这也将是第一次承认文化对拉美裔护理决策和经验中特定因素的影响，并确定帮助拉美裔护理人员的具体干预目标的研究。

DESCRIPTION (provided by applicant): The Washington, DC, area has a rapidly growing Latino population. Cancer is the leading cause of death in Latinos. The burden of caregiving for cancer patients can cause long- term physical and emotional distress for family caregivers and large studies have shown that hospice care results in better care for the patient and less stress for the caregiver. However, Latinos may be less likely to use hospice services, even though their needs may be greater. Recent studies indicate a variety of unmet needs in Latino cancer caregivers in our area, most of whom are new immigrants -- poor, uninsured, and monolingual in Spanish. Extended families, a traditional resource for Latinos, are often missing from immigrant families, Ieaving caregivers unsupported with competing roles and responsibilities, including childcare and wage earning. In addition, services are often not available in Spanish and there may be cultural barriers to seeking formal services. In order to study cancer caregiving in this understudied population, a bi-cultural, bi-lingual, interdisciplinary, academic/community partnership has been established between the Latin American Cancer Research Coalition (LACRC) and Capital Hospice. The overarching goals of the current project are to describe the needs of newly immigrated Latino cancer caregivers, determine cultural factors associated with hospice use, and to understand how hospice use influences the impact of caregiving on caregiver experience and outcomes. These goals address one of the NCI Office of Survivorship's primary research agenda's; to understand the needs and adjustment of cancer caregivers. To accomplish these goals, we will use qualitative methods to conduct 6 focus groups, of Latino bereaved former caregivers (N = 18 hospice users and 18 non-hospice users) and 10 key informant interviews with providers to understand the impact of culture on care giving. Analysis will identify factors for future interventions to assist Latino caregivers, including promotion of increased hospice use. The proposed study will be the first to compare hospice and non-hospice use in a Latino population, providing guidance to hospice outreach efforts. It will also be the first study to acknowledge the effects of culture on specific factors in Latino caregiving decisions and experience and to identify specific targets for intervention to assist Latino caregivers.