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Cooperative Agreement for a Nat'l Research & Training Org for People with Develop

Cooperative Agreement for a Nat'l Research & Training Org for People with Develop
国家研究合作协议
批准号:
8466416
负责人:
GEORGE S. JESIEN
金额:
$33.74万
依托单位国家:
美国
项目类别:
财政年份:
2007
资助国家:
美国
项目状态:
已结题
起止时间:
2007-07-01 至 2013-06-30

项目摘要

项目成果

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中文摘要
翻译
描述(申请人提供):疾病控制和预防中心(CDC)的国家出生缺陷和发育障碍中心(NCBDDD)与大学残疾中心协会(AUCD)之间拟议的合作协议将加强国家在出生缺陷(BD)和发育障碍的一级和二级预防领域开展公共卫生活动的能力(与国家残疾人委员会以及地方和州公共卫生机构合作,为残疾人提供健康促进服务。AUCD将利用其全国大学中心网络的专业知识,其附属研究人员,以及他们在开展研究,教育和服务方面的丰富经验和能力,以实现以下四个主要目标: 1.促进BD和DD的监测和研究; 2.通过培训公共卫生和相关领域的专业人员,加强BD和DD领域的专业知识; 3.为卫生保健从业人员、研究人员、受训人员、残疾人和家庭成员开发教育资源和课程,以便为残疾儿童和成人提供有效的卫生服务和循证临床/环境干预措施; 4.向各州公共卫生部门、决策者、学术机构和倡导者传播材料和信息,旨在通过教育和公共政策制定增加残疾儿童和成年人参与社会的机会。 该合作协议将进一步制定一个重点突出的活动方案,以支持国家生物多样性与发展理事会的倡议和任务,并协助国家生物多样性与发展理事会履行其实现 《2010年健康人》(第6章)的10项核心目标和3项发展目标针对评估残疾人健康状况的关键基准领域(美国卫生与公众服务部,2000年)。AUCD将支持并与其大学中心网络合作,与其他残疾人组织合作,并经常与疾病预防控制中心官员沟通,以实现这些目标。此外,合作协议的各项活动将有助于弥合在对BD和DD以及其他残疾的认识方面的差距,并消除残疾人在其社区中过上健康和富有成效的生活的障碍。
英文摘要
DESCRIPTION (provided by applicant): The proposed cooperative agreement between the National Center on Birth Defects and Developmental Disabilities (NCBDDD) at the Center for Disease Control and Prevention (CDC) and the Association of University Centers on Disabilities (AUCD) will strengthen the nation's capacity to carry out public health activities in the areas of primary and secondary prevention of birth defects (BD) and developmental disabilities (DD) and health promotion for persons with disabilities, in collaboration with NCBDDD and local and state public health agencies. AUCD will leverage the expertise of its national network of University Centers, their affiliated researchers, and their combined extensive experience and capabilities in conducting research, education and service to achieve the following four major goals: 1. Facilitate surveillance and research of BD and DD; 2. Strengthening expertise in the fields of BD and DD through training of professionals in public health and related fields; 3. Developing educational resources and curricula for health care practitioners, researchers, trainees, individuals with disabilities and family members so that effective heath services and evidence based clinical/environmental interventions for children and adults with disabilities are available; 4. Disseminating materials and information to state public health departments, policy makers, academic institutions and advocates aimed at increasing access to social participation of children and adults with disabilities through education and public policy development. This cooperative agreement will further develop a focused program of activities in support of the initiatives and mandates of the NCBDDD and assist NCBDDD in fulfilling its commitment to achieve the Healthy People 2010 (Chapter 6) 10 core objectives and 3 developmental objectives that target key benchmark areas assessing the health status of persons with disabilities (US Department of Health and Human Services, 2000). AUCD will support and work with its network of University Centers, collaborate with other disability organizations and communicate frequently with CDC officials in carrying out these goals. Furthermore, the activities of the cooperative agreement will be instrumental in bridging the gap in knowledge of BD and DD and other disabilities and removing the barriers for individuals with disabilities to lead healthy and productive lives in their communities.
期刊论文(18)
专著(0)
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会议论文
DSM-5 changes and the prevalence of parent-reported autism spectrum symptoms in Fragile X syndrome.
DSM-5 变化和家长报告的脆性 X 综合征中自闭症谱系症状的患病率。
DOI: 10.1007/s10803-014-2246-z
发表时间: 2015
期刊: Journal of autism and developmental disorders
影响因子: 3.9
作者: [Wheeler,AnneC, Mussey,Joanna, Villagomez,Adrienne, Bishop,Ellen, Raspa,Melissa, Edwards,Anne, Bodfish,James, Bann,Carla, BaileyJr,DonaldB]
通讯作者: BaileyJr,DonaldB
Parent ratings of ability to consent for clinical trials in fragile X syndrome.
家长同意参加脆性 X 综合征临床试验的能力评级。
DOI: 10.1177/1556264614540591
发表时间: 2014
期刊: Journal of empirical research on human research ethics : JERHRE
影响因子: --
作者: [BaileyJr,DonaldB, Raspa,Melissa, Wheeler,Anne, Edwards,Anne, Bishop,Ellen, Bann,Carla, Borasky,David, Appelbaum,PaulS]
通讯作者: Appelbaum,PaulS
DOI: 10.3389/fgene.2014.00300
发表时间: 2014
期刊: Frontiers in genetics
影响因子: 3.7
作者: [Wheeler AC, Raspa M, Green A, Bishop E, Bann C, Edwards A, Bailey DB Jr]
通讯作者: Bailey DB Jr
DOI: 10.1352/1944-7558-124.1.57
发表时间: 2019
期刊: American journal on intellectual and developmental disabilities
影响因子: --
作者: [Nash,Rebecca, Riley,Catharine, Paramsothy,Pangaja, Gilbertson,Kendra, Raspa,Melissa, Wheeler,Anne, Dziuban,EricJ, Peacock,Georgina]
通讯作者: Peacock,Georgina
共 7 条
    Cooperative Agreement for a Nat'l Research & Training Org for People with Develop
    Cooperative Agreement for a Nat'l Research & Training Org for People with Develop
    Cooperative Agreement for a Nat'l Research & Training Org for People with Develop
    Cooperative Agreement for a Nat'l Research & Training Org for People with Develop
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