Rapid Case Ascertainment
Rapid Case Ascertainment
批准号:
8558305
负责人:
Thomas James Lynch
金额:
$7.38万
依托单位:
依托单位国家:
美国
项目类别:
财政年份:
1997
资助国家:
美国
项目状态:
已结题
起止时间:
1997-07-01 至 2018-07-31
关键词:
AddressAnnual ReportsAreaBackCancer Center Support GrantCancer ControlCancer Control ResearchCancer Control Research ProgramCommunity HealthcareCommunity HospitalsComprehensive Cancer CenterConfidentialityConnecticutConsent FormsConsultCountryData SourcesFundingGoalsHealth Insurance Portability and Accountability ActHospitalsHuman ResourcesIndividualInstitutionInstitutional PolicyInstitutional Review BoardsInstructionKnowledgeLaboratoriesMalignant NeoplasmsNamesOlder PopulationPatientsPeer ReviewPersonalityPoliticsPopulationPrintingProtocols documentationPublishingResearchResearch PersonnelResource SharingResourcesScientistServicesSiteSurveysTimeWritingarmbasecancer preventiondesignfeedinghuman subject protectioninterestmemberneoplasm registrypopulation basedprogramssuccesstumor registry
中文摘要
项目随附资料(见说明):
快速病例确定计划(R(PA))于1986-1987年开发,以促进基于人群的癌症研究,该研究建议使用康涅狄格州作为人口实验室。它于1995年1月1日作为YCC共享资源合并,并于1998年7月1日获得N<1的批准。
RCA是康涅狄格州肿瘤登记处的一个分支机构,该登记处是美国最古老的基于人口的癌症登记处,自1973年以来一直是NCI-SEER网站。RCA解决了该州所有拟议的医院研究所共有的许多要求和管理任务,并为那些对基于人群的癌症预防和控制研究的成功至关重要的个人、机构和部门提供统一的高质量接口。在康涅狄格州开展以医院为基础的研究是复杂的。每个医院的要求和人员总是在变化。在RCA之前,一个研究者只有一项研究,一个确定的资助周期,也许对机构间政策、个性和政治的了解有限,他不得不花费大量的时间在非科学相关的工作上,以获得和维持必要的批准来进行研究。为研究者提供的主要服务包括:在适当领域(人类受试者保护、HIPAA、保密性、设计所需的机构特定同意文件等)的方案编写方面提供咨询和协助;获得所有非耶鲁大学批准进行研究(CT状态,所有社区医院IRB,医院行政和部门批准,必要时);通过调查所有医院提供癌症患者的姓名;并向所有非耶鲁大学IRB提交年度报告和重新批准请求。RCA旨在增进和加强研究人员和数据来源之间的伙伴关系的服务包括:向参与机构提供所有已发表的研究结果的反馈;以印刷品承认和承认参与研究的机构;并在与癌症预防和控制有关的领域为卫生保健界提供资源,包括促进具有共同兴趣和目标的调查人员之间的互动。RCA是YCC癌症预防和控制研究计划的重要组成部分。RCA和耶鲁-纽黑文肿瘤登记处之间新成立的合作伙伴关系将促进和加强耶鲁肿瘤登记处对YCC科学家的研究。在2012财年,98%的RCA的总体使用是由来自癌症预防和控制研究计划的YCC成员(100%同行评审的YCC成员)。
英文摘要
PROJECT SUIVIMARY (See instructions):
The Rapid Case Ascertainment program (R(pA) was developed in 1986-1987 to facilitate population-based studies of cancer that propose to use the State of Connecticut as a population laboratory. It was incorporated as a YCC Shared Resource on January 1, 1995, and approved by the N<il for July 1, 1998.
RCA functions as a field arm of the Connecticut Tumor Registry, the oldest population-based cancer registry in the country, and since 1973 an NCI-SEER site. RCA addresses the many requirements and administrative tasks common to all proposed hospital-based research in the state, and provides uniformly high-quality interface with those individuals, institutions and agencies who are crucial to the success of popiJlation-based cancer prevention and control research. Initiation of hospital-based research in Connecticut is complicated. Individual hospital requirements and personnel are always changing. Prior to RCA, an investigator who had a single study, a definitive funding^period, and perhaps limited knowledge of inter-institutional policies, personalities, and politics had to spend an inordinate amount of time on nonscientific related effort to obtain and maintain the necessary approvals to conduct the research. Major services provided to investigators are: consulting and assisting in protocol writing in appropriate areas (protection of human subjects, HIPAA, confidentiality, design of required institution-specific consent documents, etc.); obtaining all non-Yale approvals to conduct the research (State of CT, all community hospital IRBs, hospital administrative and departmental approvals, where necessary); providing names of patients with incident cancers by surveying all hospitals; and submitting annual reports and requests for reapprovals to all non-Yale IRBs. RCA services geared to enhance and strengthen the partnership of investigators and data sources are: providing feed-back of all published results of research to participating institutions; recognizing and acknowledging in print those institutions which participate in the research; and acting as a resource to the health care community in those areas relating to cancer prevention and control, including facilitating interaction between investigators with common interests and goals. RCA is a critical part of the YCC Program in Cancer Prevention and Control Research. A newly formed partnership between RCA and the Yale-New Haven Tumor Registry will facilitate and enhance research access of the, Yale Tumor Registry to YCC Scientists. In FY2012, 98% of RCA's overall use was by YCC members (100% peer-reviewed YCC Members) from the Cancer Prevention & Control Research Program.
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会议论文
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