The Personal Health Record for Persons with Dementia and Their Family Caregivers

项目总结/摘要 拟议项目的目标是测试免费在线护理协调工具的可行性， 阿尔茨海默病或相关痴呆症（ADRD）患者的家庭护理人员。（具体来说，这 建议使用多阶段混合方法设计（QUAN+QUAL <$QUAL）：1）测试个人健康 老年痴呆症和相关痴呆症患者及其家庭照顾者记录（PHR- ADRD）的可行性]的样本50 ADRD照顾者; 2）进行纵向，描述性分析， 1年内自我效能、初级保健提供者互动和主观压力的变化; 3） 有目的地从样本中抽取20名表示最大积极经验变化的照顾者（n = 20）。 10)自我效能、初级保健提供者互动和主观压力的负变化（n = 10） 进行半结构化访谈，以确定如何以及为什么PHR-ADRD的使用是 #36825;助或不助于改善这些结果）。预计PHR-ADRD（依赖于 Microsoft Health Vault”平台）将提供迄今为止尚未实现的强大的护理协调工具。 作为ADRD护理人员的临床选择受到关注。[Such调查结果将有助于制定一个 治疗手册，并提供了一个强大的基础，多年的倡议，以评估的疗效PHR- 美国多个州和地区的ADRD。

Project Summary/Abstract The objective of the proposed project is to test the feasibility of a free online care coordination tool for family caregivers of persons with Alzheimer's disease or a related dementia (ADRD). [Specifically, this proposal uses a multi-phase mixed methods design (QUAN+QUAL¿QUAL) to: 1) test the Personal Health Record for Persons with Alzheimer's Disease and Related Dementias and Their Family Caregivers (PHR- ADRD)'s feasibility] on a sample of 50 ADRD caregivers; 2) conduct a longitudinal, descriptive analysis of change in self-efficacy, primary care provider interactions, and subjective stress over a 1-year period; and 3) purposively sample 20 caregivers from the sample who indicate the greatest positive empirical changes (n = 10) and negative changes (n = 10) in self-efficacy, primary care provider interactions, and subjective stress over 12 months to conduct semi-structured interviews that determine how and why PHR-ADRD use was helpful or not in enhancing these outcomes.] It is anticipated that the PHR-ADRD (which relies on the Microsoft Health Vault" platform) will provide a powerful care coordination tool that has heretofore not received attention as a clinical option for ADRD caregivers. [Such findings will facilitate the development of a treatment manual and provide a strong foundation for a multi-year initiative to evaluate the efficacy of the PHR- ADRD across multiple states and regions in the United States.]