Salud Juntos: A Promotora-Led Home-Based Cancer Care Support Solution

 描述（由申请人提供）：本申请是对RFA EB-15-001的回应，这是一项特殊的SBIR计划，旨在通过开发“有效，负担得起，文化上可接受，并且易于获得的医疗技术来减少健康差距。“是的， 该研究是基于Huntsman Outcome与犹他州大学健康科学中心健康公平和包容副总裁Ana Maria洛佩斯博士以及亨斯迈癌症研究所癌症健康公平主任之间建立的良好合作关系。我们建议共同开发…Salud Juntos！，一个双语的“高科技和高接触”医疗保健支持门户网站，为拉丁美洲人，在美国增长最快的群体，通过利用电子健康技术和实际的人际关系。祝你好运！可以扩展到全面涵盖健康问题。该项目的目标领域将是癌症护理连续体，从癌症诊断/治疗到生存/缓解，第一阶段侧重于癌症症状管理。“高科技”方面…祝你好运！利用诸如移动的访问、社交媒体支持、自适应健康状态评估和个性化内容交付等技术功能将患者和家庭与护理联系起来。“高接触”方面，一个关键和独特的组成部分，...健康的Juntos！，通过社区卫生工作者/宣传员促进患者参与，他们可以亲自向个人和社区提供必要的教育和支持。祝你好运！的高科技功能将被改编为促销员用来管理他们的日常任务。高科技和高接触解决方案的使用确保了跨越数字鸿沟的广泛覆盖，并解决了包括知识，文化和距离在内的健康提供障碍。我们的首要目标是…祝你健康！是通过增强癌症患者的自我管理技能，并通过promotoras和技术将癌症护理支持直接带到家中，从而改善癌症患者的治疗效果和自我效能。这种支持性护理，无论是由promotoras还是由技术提供，都通过提供及时的患者教育材料，参与当地/社区支持资源，促进患者与提供者的沟通，以及患者护理人员，朋友和家人的参与，解决了癌症患者的身体和心理问题和需求。第一阶段的目标是：1）通过四个焦点小组（每组十个主题）收集利益相关者对预期系统功能、感知有用性/影响和潜在采用障碍的输入。利益相关者包括发起人、支持性护理专业人员、拉丁美洲癌症患者及其护理人员; 2）设计/开发原型。通过遵循以用户为中心的设计过程，并利用我们以前工作的技术/功能基础; 3）进行两轮可用性/有用性测试，每轮32名受试者，以及一项试点研究，其中60名受试者随机接受常规护理（对照）和促销员的支持。（干预）按1：1的比例进行初步成效评估和技术可行性评估。

 DESCRIPTION (provided by applicant): This application is in response to RFA EB-15-001, a special SBIR program to reduce health disparities by developing medical technologies that are "effective, affordable, culturally acceptable, and easily accessible to those who need them." It is based on the well-established partnership between BrightOutcome and Dr. Ana Maria Lopez, Associate Vice President for Health Equity and Inclusion, University of Utah Health Sciences Center, and Director of Cancer Health Equity, Huntsman Cancer Institute. We propose co-development of ¡Salud Juntos!, a bilingual "high tech and high touch" medical care support portal for Latinos, the most rapidly growing group in the U.S. By leveraging both e-health technologies and actual human connections. ¡Salud Juntos!'s can expand to encompass health concerns comprehensively. Our target domain for this project will be the cancer care continuum, from cancer diagnosis/treatment though survivorship/palliation, with Phase I focusing on cancer symptom management. The "high tech" aspect of ¡Salud Juntos! utilizes technology features such as mobile access, social media support, adaptive health status assessment, and individualized content deliveries to connect patients and families to care. The "high touch" aspect, a critical and unique component of ¡Salud Juntos!, facilitates patient engagement through community health workers/promotoras who can personally deliver the requisite education and support to individuals and the community. ¡Salud Juntos!'s high-tech features will be adapted for promotoras to use to manage their day-to-day tasks. The use of both high-tech and high-touch solutions ensures a broad reach across the digital divide and addresses health delivery barriers including knowledge, culture, and distance. The overarching goal of ¡Salud Juntos! is to improve cancer patients' outcomes and self-efficacy by empowering cancer patients with self-management skills and bringing cancer care support directly to them at home via both promotoras and technology. Such supportive care, regardless whether delivered by promotoras or by technology, addresses both physical and psychosocial concerns and needs of cancer patients by offering timely patient education materials, engaging local/community support resources, facilitating patient-provider communication, and involving patients caregivers, friends and families. Phase I aims are to: 1) Collect input from stakeholders on expected system features, perceived usefulness/impacts, and potential adoption barriers via four focus groups of ten subjects each. Stakeholders include promotoras, supportive care professionals, Latino cancer patients, and their caregivers; 2) Design/develop the prototype ¡Salud Juntos! by following a user-centered design process and leveraging the technical/functional foundations from our prior work; 3) Conduct two rounds of usability/usefulness tests with 32 subjects each, and a pilot study with 60 subjects randomized to receive usual care (control) and promotora support with ¡Salud Juntos! (intervention) on a 1:1 ratio to conduct preliminary effectiveness evaluation and assess technical feasibility.