Utah Center of Excellence in ELSI Research: UCEER

 描述(由申请者提供)：本申请旨在资助犹他大学ELSI研究卓越中心(UCEER)。犹他大学在人类遗传学和ELSI研究方面有着深厚的传统，这项提议将建立在我们成功开发和管理P20资助的CEER的基础上。拟议的UCEER将主要关注与妇女、儿童和年轻家庭医疗保健中的遗传疾病人群筛查相关的问题，尽管不是唯一的。我们的主要重点将是通过创新的方法，包括多媒体和交互式计算机平台，加强患者和研究参与者的教育和知情决策。我们的总体目标是在一个创造性的、支持性的学术环境中创建一个研究和教育的“实验室”，拥有不同的学者和想法。CEER将支持犹他大学6个学院的教师，包括医学、法律、护理、人文、工程和美术。通过我们的研究核心，我们建议为6个“第I级”研究项目提供资金，这些项目具有足够的规模和严密性，足以保证发表，但也将作为试点项目或未来的NIH拨款申请。通过我们的教育和职业发展核心，我们将支持从本科生到初级教师的各种ELSI教育活动，并提供强大的导师计划，以培养下一代ELSI学者。UCEER行政核心将支持一个有效的结构，以支持、监督和整合整个大学的研究和教育活动。我们建议的行政结构包括强大的、经验丰富的领导力、沟通工具、有效的空间、实用的会议日程，以及一个咨询委员会，该委员会将吸引我们的CEER领导层、教职员工和实习生。

 DESCRIPTION (provided by applicant): This application is to fund the University of Utah Center of Excellence in ELSI Research (UCEER). The University of Utah has a strong tradition in human genetics and ELSI research and this proposal will build on our successful development and management of a P20 funded CEER. The proposed UCEER will focus primarily, although not exclusively, on issues relevant to population screening for genetic conditions in the healthcare of women, children, and young families. Our primary emphasis will be on enhancing education and informed decision-making by patients and research participants with innovative approaches including multi-media and interactive computer platforms. Our overall goal is to create a "laboratory" for research and education with a diverse set of scholars and ideas in a creative, supportive academic environment. The CEER will support faculty across 6 colleges at the University of Utah including Medicine, Law, Nursing, Humanities, Engineering, and Fine Arts. Through our Research Core, we propose funding for 6 "Tier I" research projects that are of sufficient size and rigor to warrant publication but also will serve as pilot projects or future NIH grant applications. Through our Education and Career Advancement Core, we will support a variety of ELSI educational activities from across the spectrum from undergraduates to junior faculty and provide a strong mentorship program to foster the next generation of ELSI scholars. The UCEER Administrative Core will support an effective structure for the support, oversight, and integration of the research and educational activities across the University. Our proposed administrative structure includes strong, experienced leadership, communication tools, effective space, functional meeting schedules, and an advisory committee that will engage our CEER leadership, faculty, and trainees.