Management of families with a genetic cause of sudden cardiac death

心源性猝死（SCD）是许多遗传性心脏病的悲惨并发症，家庭必须科普失去家人的悲痛和对自己的风险。这项研究旨在更好地了解对家庭成员的心理社会影响;确定目前向家庭提供了哪些机会和服务;并确定家庭管理战略的成本效益。最终目标是让每个家庭都能获得高质量和具有成本效益的管理实践。

Sudden cardiac death (SCD) is a tragic complication of a number of genetic heart diseases, where families have to cope with the grief of losing a family member and the risk to themselves. This research seeks to better understand the psychosocial impact to family members; to determine what access and services families are currently provided with; and to determine the cost-effectiveness of family management strategies. The ultimate goal is that every family will have access to high-quality and cost-effective management practices.