Refining a Driving Cessation Management Intervention for Person with Dementia and their Family Caregivers: CarFreeMe

项目摘要/摘要 阿尔茨海默病病程中丧失驾驶能力与阿尔茨海默病有关 痴呆症(AD/ADRD)可能会对认同感和独立性以及描述性 研究强调了更个性化的干预方法的必要性，强调 关系和支持、家庭动态、悲伤和社区访问选项。然而，仍然很少有 精心设计或有效的干预措施，帮助家庭应对戒车的挑战。 来自澳大利亚昆士兰大学(UQ)的研究人员开发了一种停止驾驶的原型 对AD/ADRD患者及其家庭照顾者的干预称为“CarFree Me”。CarFreeMe是一个7- 可通过面对面或电话灵活交付的模块计划，目前正在进行评估 澳大利亚。拟议中的R21将以明尼苏达大学之间的国际合作为特色 和UQ在美国量身定做和研究CarFree Me的一种新改编的可行性，以帮助患有 AD/ADRD和他们的家庭照顾者以联合的方式管理驾驶戒烟过渡。具体的 目标是：1)在20名AD/ADRD患者及其照顾者中开发和修订CarFree Me 美国将利用收敛的并行混合方法设计来检查CarFree Me的管理 对于20名家庭照顾者和AD/ADRD患者，在第一阶段的3个月期间，研究结果将有助于 细化CarFreeMe，特别强调为美国用户量身定做内容；以及2)试行测试修订后的 6个月内的CarFreeMe版本。将采用顺序解释性混合方法设计 在第二阶段试点测试CarFreeMe。我们将招收50名患有AD/ADRD和家庭照顾者双亲的人参加 参加为期6个月的干预活动。我们将确定CarFreeMe是否作为 计划，并被认为是可行的，可接受的，并在6个月内有用的。识别符合以下条件的人 AD/ADRD和社区中的家庭照顾者正在努力戒烟并加强获得 在这一护理过渡期间提供咨询的专业人员提出了多项国家建议。如果 成功后，拟议的R21将使CarFreeMe进行后续的随机对照评估，并 作为一种灵活的、急需的循证资源，医疗保健系统和其他提供者可以 在驾驶停止过渡期间和之后为家庭提供服务。

Project Summary/Abstract The loss of one’s ability to drive during the course of Alzheimer’s disease and Alzheimer’s disease related dementias (AD/ADRD) may adversely influence sense of identity as well as independence, and descriptive research has emphasized the need for more individualized intervention approaches that emphasize relationships and support, family dynamics, grief, and community access options. However, there remain few rigorously designed or effective interventions that assist families navigate the challenges of driving cessation. Researchers from the University of Queensland (UQ) in Australia have developed a prototype driving cessation intervention for persons with AD/ADRD and their family caregivers called “CarFreeMe.” CarFreeMe is a seven- module program that is flexibly delivered either in-person or via telephone and is currently under evaluation in Australia. This proposed R21 will feature an international collaboration between the University of Minnesota and UQ to tailor and examine the feasibility of a novel adaption of CarFreeMe in the U.S to assist persons with AD/ADRD and their family caregivers manage the driving cessation transition in joint fashion. The Specific Aims are: 1) to develop and revise CarFreeMe among 20 persons with AD/ADRD and their caregivers in the U.S. A convergent parallel mixed methods design will be utilized to examine the administration of CarFreeMe for 20 family caregivers and persons with AD/ADRD over a 3-month period in Phase I. The findings will help to refine CarFreeMe, with a particular emphasis on tailoring the content for U.S. users; and 2) pilot-test a revised version of CarFreeMe over a 6-month period. A sequential explanatory mixed methods design will be utilized to pilot test CarFreeMe in Phase II. We will enroll 50 person with AD/ADRD and family caregiver dyads to participate in the intervention over a 6-month period. We will determine whether CarFreeMe is carried out as intended and is deemed feasible, acceptable, and useful over a 6-month period. Identifying persons with AD/ADRD and family caregivers in the community struggling with driving cessation and enhancing access to professionals who offer consultation during this care transition address multiple national recommendations. If successful, the proposed R21 will position CarFreeMe for a subsequent randomized controlled evaluation and later as a flexible, much-needed evidence-based resource that healthcare systems and other providers could offer families during and after the driving cessation transition.