Cancer Center Support Grant Supplement: “Asking and Telling”: Education and Process around the Implementation of SOGI assessment within the UPMC Hillman Cancer Center network.

摘要 在美国，男女同性恋、双性恋、变性人、 跨癌症护理的酷儿/质疑，双性和其他性和性别少数群体（LGBTQI+） 从预防和筛查到生存和临终关怀。一个主要因素是 缺乏研究的原因是缺乏系统收集的关于性取向的标准化数据， 性别认同（SOGI）。本提案的目的是建立SOGI的标准化收集 在UPMC希尔曼癌症中心（HCC）的临床站点的样本中的数据。选定的六个HCC地点展示 人口和地理多样性。该计划将包括医疗保健的文化能力培训 提供者促进其有效收集这些数据。此外，我们将监测有效实施的障碍， 在患者、提供者和卫生系统层面收集SOGI数据。这些障碍数据将用于 修改和改进计划，以消除障碍，然后再启动我们的标准化计划， 所有HCC临床和研究中心的SOGI数据。 为了实现SOGI数据收集，我们提出了针对临床工作人员、患者和信息的五个目标 技术： 1.评估总部合同委员会各级专业人员和行政人员的障碍、知识， 实施SOGI评估工具所需的信心、关注点和学习需求。 a.将确保不同年龄、性别、种族和地域的参与。 2.评估HCC患者关于促进SOGI信息披露的因素，重点是 披露的优选模式包括（a）形式-纸质表格、信息亭/iPad、亲自等;（B） 位置-在家里，前台，检查室等;及（c）个人-在接收期间， 如果和家人在一起的话。将确保不同年龄、性别、种族和地域的参与 观点 3.根据目标1和目标2制定有针对性的评估流程和教育计划。 4.围绕患者披露HCC的SOGI反应提供教育和敏感性培训 选定地点的工作人员。 5.同时将SOGI问卷纳入HCC电子病历ARIA。 成功完成这项研究将有助于我们开始系统收集SOGI数据的过程， 解决LGBTQI+社区中与癌症相关的差异的关键第一步。它还将提供 教育和培训，使工作人员认识到这一信息的重要性， LGBTQI+个人在HCC感到认可和接受。

Abstract In the United States, disparities exist for adults who identify as lesbian, gay, bisexual, transgender, queer/questioning, intersex and other sexual and gender minorities (LGBTQI+) across the cancer care continuum, from prevention and screening through survivorship and end of life care. A major factor contributing to this dearth of research is the lack of systematically collected standardized data on sexual orientation and gender identity (SOGI) status. The purpose of this proposal is to institute the standardized collection of SOGI data at a sample of clinical sites of the UPMC Hillman Cancer Center (HCC). The six HCC sites chosen exhibit demographic and geographical diversity. This program will include cultural competency training of health care providers to promote their effective collection of these data. In addition, we will monitor barriers to effective collection of SOGI data at the patient, provider, and health system level. These barrier data will be used to modify and improve the program to remove barriers before launching our standardized program for collecting SOGI data across all clinical and research sites of HCC. To implement SOGI data collection, we propose five aims directed at clinical staff, patients, and information technology: 1. Assess all levels of HCC professional and administrative staff regarding barriers, knowledge, confidence, concerns and learning needs necessary to implement SOGI assessment tools. a. Will ensure participation across age, gender, race and geographic perspectives. 2. Assess HCC patients regarding factors facilitating disclosure of SOGI information, focusing on preferred mode of disclosure including (a) modality – paper forms, kiosk/iPad, in person, etc.; (b) location – at home, front desk, exam room, etc.; and (c) personal – when during intake, maintaining confidentiality if there with family. Will ensure participation across age, gender, race and geographic perspectives 3. Develop tailored assessment process and educational programs informed by Aims 1 and 2. 4. Provide education and sensitivity training around the patient disclosure of SOGI responses for the HCC staff at selected sites. 5. Concurrently implement SOGI questionnaires into the HCC electronic medical record, ARIA. Successful completion of this study will help us to begin the process of systemically collecting SOGI data, a critical first step in addressing cancer-related disparities in the LGBTQI+ community. It will also provide education and training to sensitize staff to the importance of this information as well as to help LGBTQI+ individuals feel recognized and accepted at HCC.