Live Smart Live Safe: Healthy Development for Girls and Adolescents with Intellec

描述（由申请人提供）：本项目的目标是创建一个基于网络的交互式健康沟通应用程序[IHCA]1，促进轻度至中度智力残疾（MTM-ID）的年轻女孩和青少年的健康身体和社会发展。该方案名为“活得聪明、活得安全（R）：智障女孩和青少年的健康发展”，将作为一种工具，帮助女孩和青少年（7-21岁）的父母和服务提供者向患有MTM-ID的女孩传授生理成熟、自我保健技能建设（例如，月经管理），和社会发展（例如，防止滥用）。该方案涉及尤尼斯·肯尼迪·施莱佛国家儿童健康和人类发展研究所的使命，该研究所有兴趣开发有效的工具，用于与性传播疾病/艾滋病毒、怀孕、促进健康（包括人际和社会因素）以及卫生知识有关的预防研究和干预方案。 第一阶段项目将在开发机构上创建一个IHCA程序。第一阶段的内容将包括六个模块：1）针对父母和服务提供者的激励部分，解决与生理和社会成熟主题相关的情感问题，并促进父母/服务提供者的自我效能感，以指导这些讨论，2）生理变化的意义，3）与身体变化相关的卫生实践（例如，如何使用和处理卫生巾），4）跟踪月经周期，5）与青春期相关的社会规范（例如，在你的时期是私人的），和6）沟通技巧。在第二阶段，我们将扩大方案内容，并将制定一个适合年龄（7-12岁和13-21岁）的关于发展的社会方面的部分。例如，我们将开发一个名为“交朋友”的模块，它将提供以下方面的培训：（a）尊重你的身体（例如，在多个干扰环境中区分好的和坏的触摸），（B）报告不安全的触摸，以及（c）发展健康的友谊（例如，如何认识人）。第二阶段的产品将是一个可下载的IHCA，用于个人电脑、iPad（R）和其他基于平板电脑的技术，适合成人和ID儿童/青少年共同使用。形成性程序将用于征求MTM女孩的父母和服务提供者（n=20）的意见，ID，以帮助确定所需的材料类型，以帮助父母和服务提供者感到舒适，并准备教有关生理成熟（例如，月经初潮、管理每月周期和身体变化）并识别影响这种讨论的显著情感问题（例如，尴尬）。10名MTM-ID女孩的父母和服务提供者将对该计划进行试点测试，以测试计划的功能和易用性。的 第一阶段项目的可行性将采用准实验性受试者内设计进行评估，其中包括20名家长、20名MTM-ID女孩和10名服务提供者。

DESCRIPTION (provided by applicant): The objective of this project is to create a web-based, interactive health communication application [IHCA]1 that promotes healthy physical and social development in young girls and adolescents with mild to moderate intellectual disability (MTM-ID). The program, "Live Smart Live Safe(R): Healthy Development for Girls and Adolescents with Intellectual Disability," will be developed as a tool to aid parents and service providers of girls and adolescents (7-21 years of age) in teaching girls with MTM-ID about physiologic maturation, self-care skill building (e.g., menstrual management), and social development (e.g., abuse prevention). The program addresses the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD) mission, which is interested in the development of effective tools for prevention research and intervention programs related to STD/HIV, pregnancy, health promotion including interpersonal and social factors, and health literacy. The Phase I project will create an IHCA program on the developing body. Phase I content will be comprised of six modules: 1) motivational segment for parents and service providers that addresses the affective concerns associated with the topics of physiologic and social maturation and promotes parent/service provider self-efficacy to guide these discussions, 2) the meaning of physiologic changes, 3) hygienic practices associated with changes in the body (e.g., how to use and dispose of sanitary pads), 4) tracking the menstrual cycle, 5) social norms associated with pubescence (e.g., being on your period is private), & 6) communication skills. In the Phase II IHCA, we will expand program content and will develop an age-tailored (7-12 and 13-21) segment on the social aspects of development. For example, we will develop a module called "Making Friends," and it will provide training on: (a) treating your body with respect (e.g., distinguishing between good and bad touch in multiple interactional contexts), (b) reporting unsafe touch, and (c) developing healthy friendships (e.g., how to get to know people). The Phase II product will be a downloadable IHCA for use on personal computers, iPad(R), and other tablet based technologies, suitable for joint use by both adults and children/adolescents with ID. Formative procedures will be used to solicit input from parents and service providers (n=20) of girls with MTM-ID to help identify the types of materials needed to help parents and service providers feel comfortable and prepared to teach about physiological maturation (e.g., menarche, managing monthly cycles, and bodily changes) and to identify the salient affective issues that impact such discussions (e.g., embarrassment). Ten parents and service providers of girls with MTM-ID will pilot test the program to test program functionality and ease of use. The feasibility of the Phase I project will be evaluated using a quasi-experimental within-subjects design with 20 parents, 20 girls with MTM-ID, and 10 service providers.