Coordinating Center for Research to Promote the Health of Children with Birth Defects and People with Developmental and Other Disabilities

项目总结/摘要 这项合作协议的总体目标是扩大国家生物多样性与发展理事会开展研究的能力， 科学知识，促进婴儿、儿童和成人的健康和福祉，并传播 与出生缺陷、血液疾病、发育和其他残疾有关的循证实践， 残疾研究与传播中心（DRDC）DRDC由科学家组成， 从业者和倡导者，他们专注于在研究领域支持NCBDDD的举措， 将研究成果转化为实践并加以传播。DRDC组织由五（5）个核心组成： 行政、研究、研究翻译、传播和政策以及评估，通过一个 南卡罗来纳州大学、纽约州立大学北部医科大学（位于纽约锡拉丘兹）和 美国健康与残疾协会。DRDC研究咨询委员会（RAC）将 由19名全国知名的学者和倡导者组成（8名来自DRDC的连续成员 2012-2017年资助周期，以及11名新成员），他们将在科学和方案方面提供投入， 为确保实现减灾与发展委员会的目标而开展的活动。协调中心机制的设计目的是 增加管理自己的研究的专业人员的临界质量和专业知识的广度，并提供 多学科研究的核心行政结构，并协助研究翻译， 更大的规模。我们还将维持先前建立的利益相关者和合作伙伴传播网络 （SPDN）征求研究和奖学金申请。战略规划和发展网将支持传播和政策 核心是宣传DRDC/NCBDDD研究和其他资助机会，并提供 为协调中心的许多活动提供专业知识和支持。DRDC已经证明了这两点 在过去的四年半里，在研究项目的征集和管理方面， 以适应国家生物多样性与防治荒漠化中心不断变化的需求。在今后五年中，我们希望继续 通过资助研究和系统方法来转化研究，支持NCBDDD的议程 实践，为公共卫生和医疗专业人员，并提高科学和公众意识， 这些问题

Project Summary/Abstract The overall aim of this cooperative agreement is to expand NCBDDD's capacity to conduct research, increase scientific knowledge, promote the health and well-being of babies, children and adults, and to disseminate evidence-based practice related to birth defects, blood disorders, and developmental and other disabilities, through the Disability Research and Dissemination Center (DRDC). The DRDC is composed of scientists, practitioners, and advocates, who are focused on initiatives to support the NCBDDD in the areas of research, translation of research to practice, and dissemination. The DRDC organization is made up of five (5) cores: Administration, Research, Research Translation, Dissemination and Policy, and Evaluation, through a collaboration of the University of South Carolina, SUNY Upstate Medical University in Syracuse NY, and the American Association on Health and Disability. The DRDC Research Advisory Committee (RAC) will be composed of 19 nationally acclaimed academicians and advocates (8 continuing members from the DRDC funded cycle 2012-2017, and 11 new members) who will have input regarding scientific and programmatic activities to ensure that the DRDC's objectives are attained.The coordinating center mechanism is designed to increase the critical mass and breadth of expertise of PIs who are managing their own research and to provide a core administrative structure for multi-disciplinary research and assistance with research translation on a larger scale. We will also maintain the previously established Stakeholder and Partner Dissemination network (SPDN) for soliciting research and fellowship applications. The SPDN will support the Dissemination and Policy Core in the advertisement of DRDC/NCBDDD research and other funding opportunities, and in providing expertise and support for the many activities of the Coordinating Center. The DRDC has demonstrated both efficiency and flexibility in the solicitation and management of research projects, during the past 4½ years, in order to adapt to the changing needs of the NCBDDD. Over the next five-year period we hope to continue to support NCBDDD's agenda through the funding of research and systematic approaches to translate research to practice, for public health and medical professionals and to increase scientific and public awareness about these issues.