Modernized Culturally Sensitive Family Medical History Tool

项目摘要/摘要 拉什河研究公司建议开发一种文化定制的现代化家庭病史工具，以 缩小非裔美国人之间的健康差距。非洲裔美国人的死亡率普遍较高 比白人患心脏病、中风、癌症和糖尿病的风险更高，所有这些都增加了家族史的风险。 在许多情况下，只有一个一级亲属患有这些疾病之一，表明风险至少是前者的两倍 对个人而言。如果有多个家庭成员患有其中一种疾病，风险通常会加倍。 在某些情况下，甚至高达十到二十倍。了解风险是很重要的，因为有很多风险缓解方法 针对这些疾病可采取的措施包括改变生活方式、筛查指南、遗传咨询、 基因风险检测等筛查方法。家庭健康史是一项经过验证的重要标准 然而，关怀没有得到充分利用。研究还表明，非裔美国家庭的知识较少 由于家庭结构和沟通方式的原因，他们的家庭健康史。拉什河研究公司已经 组建了一个由社区卫生研究人员、医疗软件开发人员和 商业化合作伙伴，以实现本项目的目标。一个非裔美国人的顾问委员会 医生和社区领袖也将被召集起来，就设计决策提供建议。一个焦点小组将是 用来确定可行性并推动未来的设计。

Project Summary/Abstract Rush River Research Corp. proposes to develop a culturally tailored modernized family medical history tool to reduce health disparities among African Americans. The death rate for African Americans is generally higher than whites for heart diseases, stroke, cancer, and diabetes all of which have increased risk with family history. In many cases having a single first-degree relative with one of these diseases indicates at least double the risk to the individual. The risk typically doubles again with multiple family members having one of these diseases and in some cases up to ten to twenty times. Knowing the risk is important as there are many risk mitigation actions available for these diseases including lifestyle change, screening guidelines, genetic counseling, genetic risk testing, and other screening methods. Family health history is a validated important standard of care however it is underutilized. Research has also shown that African American families have less knowledge of their family health history due to family structure and communication patterns. Rush River Research has assembled a multi-disciplinary team of community health researchers, medical software developers, and a commercialization partner to achieve the goals of this project. An advisory committee of African American physicians and community leaders will also be assembled to advise on design decisions. A focus group will be utilized to determine feasibility and drive future design.