Developing, implementing, and disseminating best practices for enhanced collection of sexual identify and gender orientation among cancer patients to catalyze innovative cancer control research.

项目摘要 认为自己是性少数和性别少数的患者，或LGBTQ+，是癌症中心的关键成员 然而，在为这些患者提供以人为本的护理方面仍然存在很大差距，大多数 关键是因为我们没有收集信息的通用最佳实践来帮助我们识别这些 病人。有限的数据显示，LGBTQ+社区的成员更有可能被诊断为 晚期癌症，不太可能接受常规医疗保健和筛查，不太可能拥有医疗保险， 更有可能有更高的可改变的癌症风险因素，更有可能有更低的生活质量 与他们的顺性别和异性恋同行相比。标准化的方法对于收集 准确的数据最好地满足患者的癌症护理需求，代表这些患者的癌症趋势 在癌症登记中，解决他们在合作团体试验中的需求，并倡导公平资助 支持相关研究的资源。这个项目的总体目标是了解可接受性， 可行性，以及围绕实施标准化性取向和 罗斯威尔公园的性别认同(SOGI)在患者、提供者和组织层面上进行衡量 综合癌症中心，NCI指定的综合癌症中心，并开发和 通过培训材料传播最佳做法、经验教训和实施指南 通过基于研究的资源库扩展SOGI措施对其他医疗保健的重要性 组织和综合性癌症中心。在拟议的P30补编中，我们将填写几个关键的 差距：1)对数据质量进行严格评估，以了解所做修改的影响 罗斯威尔公园电子健康记录(EHR)以收集SOGI测量；2)理解信念和 从患者和临床医生那里收集SOGI信息以告知临床医生和 围绕这些数据进行患者沟通和培训；以及3)传播最佳实践，以加快 在癌症护理服务中收集SOGI措施时采用这些最佳实践。在此NCI结束时 行政补充项目期间，我们将对收集SOGI提出循证建议 数据为癌症护理提供信息，以满足这个医疗服务不足的社区的需求。结果就是这样 项目，罗斯韦尔公园将更好地扩展这一评估并促进与我们的 拥有横跨纽约和其他NCI指定的全面癌症的罗斯韦尔公园护理网络卫星站点 中锋。获取SOGI信息的数据对于了解包括罗斯韦尔公园在内的癌症中心是如何 有助于改善对性少数群体和性别少数群体的癌症护理，并加强以社区为基础的有针对性的努力 在这一人群中最大限度地发挥癌症预防、教育和干预方案的效果。

Project Abstract Patients who identify as sexual and gender minorities, or LGBTQ+, are critical members of cancer center's catchment areas, yet there remain substantial gaps in providing person-centered care to these patients, most critically because we don't have universal best practices for collecting information to help us identify these patients. Limited data show that members of the LGBTQ+ community are more likely to be diagnosed with late-stage cancer, less likely to receive routine healthcare and screening, less likely to have health insurance, more likely to have higher rates of modifiable cancer risk factors, and more likely to have a lower quality of life compared to their cisgender and heterosexual counterparts. A standardized approach is critical to collect accurate data to best serve the patients' cancer care needs, represent the cancer trends among these patients in cancer registries, address their needs in cooperative group trials, and advocate for equitable funding resources to support relevant research. The overall objective of this project is to understand acceptability, feasibility, as well as assets and challenges around implementation of standardized sexual orientation and gender identity (SOGI) measures at the patient, provider, and organizational level at Roswell Park Comprehensive Cancer Center, a NCI-designated comprehensive cancer center, and to develop and disseminate best practices, lessons learned, and implementation guides with training materials around the importance of expanded SOGI measures through a research-based resource library for other healthcare organizations and comprehensive cancer centers. In the proposed P30 supplement, we will fill several critical gaps by 1) conducting a rigorous evaluation of data quality to understand the impact of modifications made to the Roswell Park electronic health record (EHR) to collect SOGI measures; 2) understanding beliefs and barriers of collecting SOGI information from patients and clinicians to inform development of clinician and patient communications and trainings around these data; and 3) disseminating best practices to accelerate the adoption of these best practices in collection of SOGI measures in cancer care delivery. At the end of this NCI administrative supplement project period, we will have evidence-based recommendations on collecting SOGI data to inform cancer care that meets the needs of this medically underserved community. As a result of this project, Roswell Park will be better positioned to expand this assessment and promote collaborations with our own Roswell Park CARE Network satellite sites across NY and other NCI-designated comprehensive cancer centers. Data capturing SOGI information is vital to understanding how cancer centers, including Roswell Park, can help improve cancer care for sexual and gender minorities and enhance tailored community-based efforts in this population to maximize the effect of cancer prevention, education, and intervention programs.