"Anatomy of an Illness": control from a caregiver's perspective.
"Anatomy of an Illness": control from a caregiver's perspective.
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DOI：
10.1016/j.bbi.2013.08.012
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发表时间：
2014-02
期刊：
影响因子：
--
通讯作者：
Laudenslager ML
中科院分区：
文献类型：
--
作者：
Laudenslager ML
患有慢性病的亲人的照顾者经历了一个无法控制的挑战，可能会产生负面的行为和医疗后果。广泛的研究表明，基于动物模型和人类研究的负面行为因素可以显著干扰免疫和内分泌调节。然而，很少有研究关注心理社会干预如何扭转压力源（如压力）的负面影响。照顾癌症患者的痛苦直到最近才开始受到关注。这些干预措施解决照顾者的痛苦是罕见的整体和接受造血干细胞移植（HSCT）的患者的照顾者得到更少的关注。HSCT护理人员报告失去控制的感觉。动物研究表明，对厌恶事件的控制可以减轻压力源的负面影响。造血干细胞移植患者的护理人员必须在干细胞输注后的三个月或更长时间内24/7提供服务，以密切监测接受者的健康和福祉。建立更大的控制感对照顾者有积极的影响吗？本文简要介绍了一项对异基因造血干细胞移植照顾者进行认知行为应激管理干预的随机对照试验。护理人员的心理健康，可能会影响病人的生活质量的模型提出。这些关系存在于一个复杂的系统中，包括遗传影响，性别，社会环境和先前的经验。这一系统非常适合最近制定的“复杂性科学”的健康和福祉的方法。
Caregivers of loved ones with chronic illnesses experience an uncontrollable challenge with potentially negative behavioral and medical consequences. Extensive research has demonstrated immune and endocrine regulation can be significantly disrupted by negative behavioral factors based on both animal models and human studies. However, fewer studies have focused on how psychosocial interventions might reverse the negative consequences of stressors such as caregiving. The distress of caring for individuals with cancer has only recently begun to receive attention. These interventions addressing caregiver distress are rare overall and caregivers of patients receiving hematopoietic stem cell transplants (HSCT) have received even less attention. HSCT caregivers report feelings of loss of control. Animal studies suggest that control over aversive events can mitigate the negative consequences of stressors. Caregivers of allogeneic HSCT patients for blood cancers must be available 24/7 for three months or longer following stem cell infusion to closely monitor the recipients’ health and well-being. Does establishing a greater sense of control have positive impacts on caregivers? A randomized control trial of a cognitive behavioral stress management intervention for allogeneic HSCT caregivers is briefly described. A model of caregiver mental health which may potentially impact the patient’s quality of life is proposed. These relationships exist in a complex system that includes genetic influences, sex, social environment, and prior experience. This system fits well within recent formulations of a “complexity science” approach to health and well-being.
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