Designing for impact: identifying stakeholder-driven interventions to support recovery after major cancer surgery.
Designing for impact: identifying stakeholder-driven interventions to support recovery after major cancer surgery.
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DOI：
10.1007/s00520-018-4276-0
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发表时间：
2018-12
期刊：
影响因子：
--
通讯作者：
Gilbert S
中科院分区：
文献类型：
--
作者：
McMullen C;Nielsen M;Firemark A;Price PM;Nakatani D;Tuthill J;McMyn R;Odisho A;Meyers M;Shibata D;Gilbert S
复杂的膀胱癌和结直肠癌手术与显著的患者发病率相关，但几乎没有资源为患者可能经历的高水平痛苦和并发症做好准备。在民族志研究以确定设计挑战后，我们举办了一个以用户为中心的设计（UCD）研讨会，开始开发以患者和患者为中心的干预措施，以支持复杂癌症手术后的准备和恢复。头脑风暴会议中出现的概念在故事板上以视觉方式呈现并进行评级。高分的概念在分组原型会议中得到进一步开发，然后提交给整个小组，供其亲自审查，并在随后的网络研讨会上进行审查。我们收集了研讨会产品（工作表、原型和录音）进行分析，以确定干预机会。该研讨会于2014年底举行，参加者包括3名结直肠/肿瘤外科医生、3名泌尿外科医生、5名造口术护士、1名质量改进负责人、3名患者、1名护理人员和3名经验丰富的UCD促进者。确定了三个机会领域：1）加强患者教育，包括远程保健和多媒体工具（可在医院/诊所或任何环境中在线获得）; 2）个性化出院评估和护理计划; 3）综合症状监测和教育干预。利益相关者达成共识，即加强患者教育是后续干预发展的最重要方向。我们让不同的利益相关者参与参与UCD过程，并得出结论认为，研究和实践改进应优先考虑在术前阶段制定教育干预措施，为改善结直肠癌和膀胱癌手术恢复期间的适当自我护理奠定基础。
Complex bladder and colorectal cancer surgeries are associated with significant patient morbidity, yet few resources exist to prepare patients for the high levels of distress and complications they may experience. After ethnographic research to identify design challenges, we held a user-centered design (UCD) workshop to begin to develop patient- and caregiver-centered interventions to support preparation for and recovery after complex cancer surgery. Concepts that emerged from brainstorming sessions were visually represented on storyboards and rated. Highly scored concepts were further developed in break-out prototyping sessions and then presented to the entire group for review in person and during subsequent webinars. We collected workshop products (worksheets, prototypes, and recordings) for analysis to identify opportunities for intervention. The workshop, held in late 2014, was attended by 3 colorectal/oncologic surgeons, 3 urologic surgeons, 5 ostomy nurses, 1 quality improvement leader, 3 patients, 1 caregiver, and 3 experienced UCD facilitators. Three opportunity areas were identified: 1) Enhanced patient education including tele-health and multimedia tools (available at hospitals/clinics or online in any setting); 2) Personalized discharge assessment and care planning; and 3) Integrated symptom monitoring and educational interventions. Stakeholders reached consensus that enhanced patient education was the most important direction for subsequent intervention development. We engaged diverse stakeholders in a participatory, UCD process and concluded that research and practice improvement should prioritize the development of educational interventions in the pre-operative period to set the groundwork for improving appropriate self-care during recovery from major colorectal and bladder cancer surgeries.
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影响因子：
6.2
作者：
Anderson, Karen O.;Palos, Guadalupe R.;Payne, Richard
通讯作者：
Payne, Richard
影响因子：
4.3
作者：
Maher, Molly;Kaziunas, Elizabeth;Choi, Sung Won
通讯作者：
Choi, Sung Won
影响因子：
--
作者：
Hosking I;Cornish K;Bradley M;Clarkson PJ
通讯作者：
Clarkson PJ
影响因子：
7.4
作者：
Agboola SO;Ju W;Elfiky A;Kvedar JC;Jethwani K
通讯作者：
Jethwani K
DOI：
10.1177/1937586715592633
发表时间：
2016-01-01
影响因子：
2.2
作者：
Carmel-Gilfilen, Candy;Portillo, Margaret
通讯作者：
Portillo, Margaret