Enabling people with dementia to access and receive cancer treatment and care: The crucial role of supportive networks.
Enabling people with dementia to access and receive cancer treatment and care: The crucial role of supportive networks.
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DOI：
10.1016/j.jgo.2020.03.015
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发表时间：
2020-09
影响因子：
3
通讯作者：
Farrin AJ
中科院分区：
文献类型：
--
作者：
Surr CA;Kelley R;Griffiths AW;Ashley L;Cowdell F;Henry A;Collinson M;Mason E;Farrin AJ
尽管癌症和痴呆症的患病率随着年龄的增长而增加，但对这一人群的癌症治疗和护理需求的研究仍然有限。我们的研究旨在解决这一差距，本文报告了支持网络在使痴呆症患者获得癌症治疗和护理方面的作用。一项民族志研究，涉及17名癌症和痴呆症患者，22名亲属和19名肿瘤学工作人员。它包括观察（46小时）和非正式的谈话，在肿瘤预约参加痴呆症患者及其亲属和半结构化访谈（n = 37）与癌症和痴呆症患者，他们的亲属和工作人员在肿瘤服务的各种角色。采用专题分析法对数据进行了分析。患者和肿瘤科工作人员依赖并期望亲属在癌症治疗和护理方面提供实际和情感上的支持。由于家庭网络的范围、实际问题、对病人及其愿望的了解、家庭冲突和病人接受帮助的意愿，家庭提供所需支持的能力各不相同。在没有家庭网络的情况下，支助的提供是复杂的，这可能影响癌症治疗的获得。患有癌症和痴呆症的人严重依赖支持性家庭网络来获得治疗和护理。肿瘤学服务需要评估个体患者在制定癌症治疗计划时可用的支持网络。迫切需要考虑如何适当支助那些没有家庭网络的人。支持性网络对于痴呆症患者获得癌症治疗至关重要。肿瘤科工作人员通常期望家庭提供这种支持。有些家庭比其他家庭有更多的资源提供支助。提供这种支持可能会导致内疚、压力和担忧。不清楚在没有家庭网络的情况下由谁提供这种支助。
Despite cancer and dementia being conditions in which prevalence increases with age, there remains limited research on the cancer treatment and care needs of this population. Our study aimed to address this gap and this paper reports on the role of supportive networks in enabling people with dementia to access cancer treatment and care. An ethnographic study involving seventeen people with cancer and dementia, 22 relatives and nineteen oncology staff. It comprised observations (46 h) of and informal conversations during oncology appointments attended by people with dementia and their relatives and semi-structured interviews (n = 37) with people living with cancer and dementia, their relatives and staff working in various roles across oncology services. Data were analysed using thematic analysis. Patients and oncology staff relied on and expected relatives to provide practical and emotional support around cancer treatment and care. Families varied in their ability to provide required support due to extent of the family network, practical issues, knowledge of the patient and their wishes, family conflict and the patient's willingness to accept help. Where no family network was available, support provision was complex and this could compromise access to cancer treatment. People with comorbid cancer and dementia rely heavily on a supportive family network to access treatment and care. Oncology services need to assess the supportive networks available to individual patients in developing cancer treatment plans. Urgent consideration needs to be given to how those with no family networks can be appropriately supported. Supportive networks are vital for people with dementia to access cancer treatment. Provision of such support by families is often expected by oncology staff. Some families have greater resources to provide support than others. Providing this support can lead to guilt, stress and worry. It is unclear who provides this support where there is no family network.
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影响因子：
6.2
作者：
Kent EE;Rowland JH;Northouse L;Litzelman K;Chou WY;Shelburne N;Timura C;O'Mara A;Huss K
通讯作者：
Huss K
影响因子：
3.3
作者：
Ng, H. Y.;Griva, K.;Mahendran, R.
通讯作者：
Mahendran, R.
影响因子：
2.1
作者：
Aoun, S.;Deas, K.;Skett, K.
通讯作者：
Skett, K.
DOI：
10.1177/1533317516673154
发表时间：
2017-02-01
影响因子：
3.4
作者：
Gibson, Allison K.;Richardson, Virginia E.
通讯作者：
Richardson, Virginia E.
影响因子：
2.5
作者：
Egdell, Valerie
通讯作者：
Egdell, Valerie