Participatory research to design a novel telehealth system to support the night-time needs of people with dementia: NOCTURNAL.

Participatory research to design a novel telehealth system to support the night-time needs of people with dementia: NOCTURNAL.
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DOI:
10.3390/ijerph10126764
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发表时间:
2013-12-04
影响因子:
--
通讯作者:
Mulvenna M
Mulvenna M
中科院分区:
综合性期刊3区
文献类型:
--
作者:
Martin S;Augusto JC;McCullagh P;Carswell W;Zheng H;Wang H;Wallace J;Mulvenna M

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支持痴呆症患者的战略范围广泛,提出药理学和非药理学干预作为护理途径的一部分。辅助技术是这一产品的一部分,既有支持特定任务的独立设备,也有支持环境辅助生活的更复杂的“智能家居”产品。本文提出了一种基于技术的系统,它扩展了智能家居体系结构,面向支持人们的日常生活。该系统名为NOCTURNAL,是通过直接与痴呆症患者及其护理人员使用定性研究方法开发的。这项研究主要集中在真实的家庭环境中痴呆症患者的夜间需求上。八名痴呆症患者在家中安装了最终的原型系统,进行了为期三个月的评估。睡眠模式紊乱,夜间徘徊是这项研究的重点,不仅是通过商业技术进行检测,而且还探索自动音乐,灯光和视觉个性化照片是否会在黑暗中安抚参与者。Nocturnal平台和相关服务是由痴呆症患者和照顾他们的服务提供者的强大用户参与提供的。NOCTURNAL作为一种整体服务出现,提供具有互动功能的个性化治疗方面。
Strategies to support people living with dementia are broad in scope, proposing both pharmacological and non-pharmacological interventions as part of the care pathway. Assistive technologies form part of this offering as both stand-alone devices to support particular tasks and the more complex offering of the “smart home” to underpin ambient assisted living. This paper presents a technology-based system, which expands on the smart home architecture, orientated to support people with daily living. The system, NOCTURNAL, was developed by working directly with people who had dementia, and their carers using qualitative research methods. The research focused primarily on the nighttime needs of people living with dementia in real home settings. Eight people with dementia had the final prototype system installed for a three month evaluation at home. Disturbed sleep patterns, night-time wandering were a focus of this research not only in terms of detection by commercially available technology but also exploring if automated music, light and visual personalized photographs would be soothing to participants during the hours of darkness. The NOCTURNAL platform and associated services was informed by strong user engagement of people with dementia and the service providers who care for them. NOCTURNAL emerged as a holistic service offering a personalised therapeutic aspect with interactive capabilities.
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