Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies

Learning from Positive Adaptations of Pediatric Cancer Patients to Design Health Technologies
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从小儿癌症患者的积极适应中学习设计健康技术

DOI:
10.1145/3313831.3376397
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发表时间:
2020
期刊:
Proceedings of the 2020 CHI Conference on Human Factors in Computing Systems
影响因子:
--
通讯作者:
Buyuktur, Ayse G.
Buyuktur, Ayse G.
中科院分区:
--
文献类型:
--
作者:
Park, Sun Young;Seo, Woosuk;Berry, Andrew B.L.;Kim, Hyeryoung;Verma, Sanya;Choi, Sung Won;Buyuktur, Ayse G.

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癌症的诊断会给孩子的生活带来重大的变化。除了身体上的疼痛,儿科患者还面临心理和社会方面的挑战。与此同时,一些患者对他们的疾病和治疗也有积极的经历和态度。通过对19对儿童癌症患者及其父母的半结构化访谈,我们研究了患者对癌症生活经历的看法。我们确定了患者积极体验的四个突出主题:面向未来的思维,发展强大的个人联系和关系,获得知识和生活经验,以及发展自我管理和应对技能。总的来说,患者的积极经历表明他们通过一个不断发展的过程适应了新的生活。基于这一过程,我们提供了健康技术的设计含义,以支持和促进疾病和治疗期间的积极体验。
The diagnosis of cancer brings about significant changes in the life of a child. In addition to physical pain, pediatric patients face psychological and social challenges. At the same time, some patients also have positive experiences with and attitudes toward their illness and treatment. Drawing on 19 semi-structured interviews with pairs of pediatric cancer patients and their parental caregivers, we examined patients' perspectives on their experience of living with cancer. We identified four salient themes in patients' positive experiences: future-oriented thinking, developing strong personal bonds and relationships, gaining knowledge and life experience, and developing self-management and coping skills. Collectively, the patients' positive experiences indicate that they adapt to their new lives through an evolving process. Based on this process, we provide design implications for health technologies to support and promote positive experiences during illness and treatment.
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