The Scleroderma Support group Leader EDucation (SPIN-SSLED) Program: a randomized controlled trial

硬皮病支持小组领导者教育 (SPIN-SSLED) 计划:一项随机对照试验

基本信息

项目摘要

Systemic sclerosis (SSc), or scleroderma, is a rare, chronic, autoimmune connective tissue disease. Support groups are an important resource for people rare diseases, including SSc, and most support groups are led by people with the disease. Many SSc pati
系统性硬化症(SSc)或硬皮病是一种罕见的慢性自身免疫性结缔组织疾病。支持团体是包括SSc在内的罕见疾病患者的重要资源,大多数支持团体都是由疾病患者领导的。许多SSc帕蒂

项目成果

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Thombs Brett D其他文献

Thombs Brett D的其他文献

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{{ truncateString('Thombs Brett D', 18)}}的其他基金

Engaging Patients to Plan the Next 10 Years of the Scleroderma Patient-centered Intervention Network (SPIN): Building on a Successful Patient-Researcher Collaboration
让患者参与规划硬皮病以患者为中心的干预网络 (SPIN) 的未来 10 年:建立在患者与研究人员成功合作的基础上
  • 批准号:
    480794
  • 财政年份:
    2023
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Miscellaneous Programs
Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
让患者参与制定患者参与肌肉骨骼和罕见疾病研究的系统计划:将患者放在第一位
  • 批准号:
    460621
  • 财政年份:
    2022
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Miscellaneous Programs
Towards Understanding Pain Sources, Patterns, and Barriers to Effective Management in Systemic Sclerosis: A Patient-Researcher Partnership
了解系统性硬化症的疼痛来源、模式和有效治疗的障碍:患者与研究人员的合作
  • 批准号:
    468070
  • 财政年份:
    2022
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Miscellaneous Programs
The DEPRESsion Screening Data (DEPRESSD) Project: A Novel International Individual Participant Data Meta-analysis Collaboration to Advance Research on Depression Screening Tool Accuracy, Develop Statistical Methodology, and Conduct Meta-Research
抑郁症筛查数据 (DEPRESSD) 项目:一项新颖的国际个人参与者数据荟萃分析合作,旨在推进抑郁症筛查工具准确性的研究、开发统计方法并进行荟萃研究
  • 批准号:
    461874
  • 财政年份:
    2022
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants
Mental health in people at risk from COVID-19 due to a pre-existing medical condition: longitudinal study of risk factors, outcomes, and the role of vaccination
由于已有健康状况而面临 COVID-19 风险的人群的心理健康:风险因素、结果和疫苗接种作用的纵向研究
  • 批准号:
    448872
  • 财政年份:
    2021
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants
Loneliness Among Older Adults in COVID-19: A Living Systematic Review of Changes in Loneliness from Pre-COVID-19, Association with Mental Health Outcomes, and Effects of Interventions
COVID-19 中老年人的孤独感:对 COVID-19 之前的孤独感变化、与心理健康结果的关联以及干预措施效果的实时系统回顾
  • 批准号:
    460289
  • 财政年份:
    2021
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants
Identification of Factors to Improve Effectiveness and Implementation of a Multi-faceted COVID-19 Mental Health Intervention: Follow-up to the SPIN-CHAT Trial
确定提高有效性的因素并实施多方面的 COVID-19 心理健康干预措施:SPIN-CHAT 试验的后续行动
  • 批准号:
    432563
  • 财政年份:
    2020
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants
Mental Health during the COVID-19 Pandemic: A Living Systematic Review of Mental Health Burden, Factors Associated with Mental Health Outcomes, and Intervention Effectiveness in the General Population and Vulnerable Populations
COVID-19 大流行期间的心理健康:对普通人群和弱势群体的心理健康负担、与心理健康结果相关的因素以及干预效果的实时系统回顾
  • 批准号:
    424933
  • 财政年份:
    2020
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants
The DEPRESsion Screening Data (DEPRESSD) Project: Continuous Updating of Databases for Individual Participant Data Meta-analyses of Depression Screening Test Accuracy
抑郁症筛查数据 (DEPRESSD) 项目:持续更新个体参与者数据数据库抑郁症筛查测试准确性的荟萃分析
  • 批准号:
    438224
  • 财政年份:
    2020
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants
Partially Nested Randomized Controlled Trial to Evaluate the Effectiveness of the Scleroderma Patient-centered Intervention Network COVID-19 Home-isolation Activities Together (SPIN-CHAT) Program to Reduce Anxiety among Vulnerable Persons with a Pre-exist
部分嵌套随机对照试验评估以硬皮病患者为中心的干预网络 COVID-19 家庭隔离活动 (SPIN-CHAT) 计划的有效性,以减少已有病史的弱势群体的焦虑
  • 批准号:
    429731
  • 财政年份:
    2020
  • 资助金额:
    $ 25.36万
  • 项目类别:
    Operating Grants

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推进患者教育材料中的医学插图:从艺术到科学
  • 批准号:
    10660634
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    $ 25.36万
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通过微学习“肾脏App”提高患者教育的有效性和效率
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