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Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First

Engaging Patients to Develop a Systemic Program of Patient Engagement in Musculoskeletal and Rare Disease Research: Putting Patients First
让患者参与制定患者参与肌肉骨骼和罕见疾病研究的系统计划：将患者放在第一位
批准号：
460621
负责人：
Thombs Brett D
金额：
$1.46万
依托单位：
Lady Davis Institute for Medical Research (Mtl)
依托单位国家：
加拿大
项目类别：
Miscellaneous Programs
财政年份：
2022
资助国家：
加拿大
项目状态：
已结题
起止时间：
2022-02-01 至 2023-02-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=460621&lang=en
关键词：
Patient Engagement Patient-Oriented Research Rare Diseases Scleroderma Systemic Sclerosis

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英文摘要
Systemic Sclerosis (scleroderma; SSc) is a rare musculoskeletal and skin disease characterized by thickening of the skin and fibrosis of internal organs. The burden and impact of SSc on quality of life are high, yet there are few high-quality clinical tri
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