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Engaging Patients to Plan the Next 10 Years of the Scleroderma Patient-centered Intervention Network (SPIN): Building on a Successful Patient-Researcher Collaboration

Engaging Patients to Plan the Next 10 Years of the Scleroderma Patient-centered Intervention Network (SPIN): Building on a Successful Patient-Researcher Collaboration
让患者参与规划硬皮病以患者为中心的干预网络 (SPIN) 的未来 10 年：建立在患者与研究人员成功合作的基础上
批准号：
480794
负责人：
Thombs Brett D
金额：
$1.46万
依托单位：
Lady Davis Institute for Medical Research (Mtl)
依托单位国家：
加拿大
项目类别：
Miscellaneous Programs
财政年份：
2023
资助国家：
加拿大
项目状态：
已结题
起止时间：
2023-02-01 至 2024-02-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=480794&lang=en
关键词：
Chronic Disease Dissemination E-Health Interventions Knowledge Translation Patient Engagement Rare Disease Scleroderma Stakeholder Collaboration Systemic Sclerosis

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英文摘要
Systemic Sclerosis (SSc; Scleroderma) is a rare autoimmune disease that involves thickening of the skin and internal organs. SSc has a negative impact on day-to-day functioning and quality of life. Psychological, educational, and rehabilitation interventi
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