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Establishing Next Steps for SPIN-SHARE: An International Collaboration to Disseminate eHealth Disease-Management Tools for People Living with Scleroderma

Establishing Next Steps for SPIN-SHARE: An International Collaboration to Disseminate eHealth Disease-Management Tools for People Living with Scleroderma
制定 SPIN-SHARE 的后续步骤：为硬皮病患者传播电子健康疾病管理工具的国际合作
批准号：
411010
负责人：
Thombs Brett D
金额：
$0.73万
依托单位：
Lady Davis Institute for Medical Research (Mtl)
依托单位国家：
加拿大
项目类别：
Miscellaneous Programs
财政年份：
2019
资助国家：
加拿大
项目状态：
已结题
起止时间：
2019-09-01 至 2020-09-01
来源：
https://webapps.cihr-irsc.gc.ca/decisions/p/project_details.html?applId=411010&lang=en
关键词：
Chronic Disease Dissemination E-Health Interventions Healthcare Delivery Knowledge Translation Patient Engagement Rare Disease Scleroderma Stakeholder Collaboration Systemic Sclerosis

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英文摘要
Scleroderma is a rare autoimmune disease characterized by thickening and hardening of the skin and internal organs. The burden of scleroderma on quality of life is high. Psychosocial, educational, and rehabilitation interventions could help improve functi
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