Improving the Quality of Life of Children with Asthma or Allergy (Developing a QOL Questionnaire)

改善哮喘或过敏儿童的生活质量（制定生活质量问卷）

• 批准号: 10470529
• 负责人: ISHIGURO Ayako
• 金额: $ 3.33万
• 依托单位: Nagaya University
• 依托单位国家: 日本
• 项目类别: Grant-in-Aid for Scientific Research (B).
• 财政年份: 1998
• 资助国家: 日本
• 起止时间: 1998 至 2000
• 项目状态: 已结题
• 来源: https://kaken.nii.ac.jp/en/grant/KAKENHI-PROJECT-10470529/
• 关键词: Bronchial Asthma; Atopic Dermatitis; Quality of Life Questionnaire; School Children; Reliability; Validity; QOL調査票; 環境整備; 自己管理; カンジダ・アルビカンス; 共通抗原性; IgE抗体; カンジダ・アルピカンス

1. A Japanese quality of life scale for children with asthma (Version 1) which has 40 items showed moderate reliability (Cronbach's α=0.85) and validity. Factor analysis indicated a 5 factor grouping. We utilized this QOL questionnaire to 245 subjects, aged 10 to 18 (average age : 12.3 years), with bronchial asthma and receiving home care. The results were as follows : The average score was 160.7±13.3 for children with FEV_<1.0>% rate under 70%, and 171.2±12.6 for those with a rate greater than or equal to 70% (p<0.05). The average score for girls, 166.2±13.7 (maximum 200) was lower than that for boys, 171.8±12.5 (p<0.01). Children with severe asthma did not necessarily have low QOL scores.2. A quality of life scale of children with asthma (Version 2) which has 30 items with a five-point Likert Scale format over five domains : "physical", "social', "familial", "emotional' and "peer group" was developed. The sample for analysis was composed of two hundred ninety six children aged 10 to 18 with asthma. The five domains were confirmed by factor analysis. This QOL questionnaire showed reliability (Cronbach's α=0.88) and validity.3. A Japanese qualily of life scale for children with atopic dermatitis (Version 1) which has 35 items with a five-point Likert Scale format over six domains : "symptoms" , "mood", "selfesteem" "daily activities", "relationships" and "life satisfaction" was developed.

1.由40个条目组成的哮喘儿童生活质量日本量表(第1版)具有中等信度(Cronbach‘sα=0.85)和效度。因素分析显示为5因素分组。我们对245名年龄在10到18岁(平均年龄：12.3岁)的哮喘患者进行了生活质量问卷调查。结果显示：FEV1.0%<70%者平均得分为160.7±13.3分，大于或等于70%者平均得分为171.2±12.6分(P<0.05)。女生平均得分为166.2±13.7分，低于男生的171.8±12.5分(P<0.01)。结论：1.重度哮喘儿童的生活质量评分不一定低。编制了哮喘儿童生活质量量表(第2版)，该量表由30个条目组成，采用五分Likert量表形式，涵盖五个领域：“身体”、“社会”、“家庭”、“情感”和“同伴”。分析样本为296名10岁至18岁的哮喘儿童。通过因子分析确定了五个维度。该问卷具有较好的信度(克朗巴赫α=0.88)和效度。编制了特应性皮炎儿童生活质量日本量表(第1版)，该量表由35个条目组成，包括症状、情绪、自我、日常活动、人际关系和生活满意度6个领域，采用5分Likert量表形式。

项目成果

Midori Asano, Ayako Ishiguro and Yuriko Kanematsu: "Study of Mothers' Difficulties in the Care of Children with Atopic Dermatitis"J.Jpn.Soc.Nurs.Health Care. 1(1). 9-18 (1999)

Midori Asano、Ayako Ishiguro 和 Yuriko Kanematsu：“母亲在照顾特应性皮炎儿童时遇到的困难的研究”J.Jpn.Soc.Nurs.Health Care。

Tomoki Koyama, Toshio Kanbe, Ayako Ishiguro, Akihiko Kikuchi, and Yasushi Tomita: "Isolation and Characterization of a Major Antigenic Component of Malassezia globosa to IgE Antibodies in Sera of Patients with Atopic Dermatitis"Microbiol.Immunol. 44 (5).

Tomoki Koyama、Toshio Kanbe、Ayako Ishiguro、Akihiko Kikuchi 和 Yasushi Tomita：“特应性皮炎患者血清中球状马拉色菌对 IgE 抗体的主要抗原成分的分离和表征”Microbiol.Immunol。

浅野みどり: "アトピー性皮膚炎に伴う育児困難感と適応感"日本小児看護学会誌. Vol.18. 6-13 (1999)

浅野绿：“与特应性皮炎相关的养育困难和适应感”日本儿科护理学会杂志第 18 卷 6-13（1999 年）。

石黒彩子: "病いと共に生きる小児のケア"メヂカルフレンド社. 351 (2000)

石黑绫子：“照顾患病儿童”医学之友出版社 351（2000）。

Ayako Ishiguro, Midori Asano, Taichi Sugiura, Tomoko Yamada, Matsuko Doi, Kiyomi Miura and Shinpei Torii: "QOL Investigation of Children with Bronchial Asthma Receiving Home Care (Results of the Low Scoring Group)"J.Jpn.Soc.Nurs.Health Care. 3 (1) (in Jap

Ayako Ishiguro、Midori Asano、Taichi Sugiura、Tomoko Yamada、Matsuko Doi、Kiyomi Miura 和 Shinpei Torii：“接受家庭护理的支气管哮喘儿童的生活质量调查（低分组的结果）”J.Jpn.Soc.Nurs.Health