Conceptualization and development of care program of the family transition resulting from children's intractable illnesses and treatment.

本研究的主要成果是对因儿童疑难病和治疗而导致的家庭转型护理方案的构想和发展提出了几点看法。1)儿童疑难病家庭转型的经历和过程。2)罕见病难治性粘多糖病患儿治疗的家庭过渡及支持计划设想。3)先天性心脏病患儿家庭在确诊时经历的家庭转变。4)研究开展儿科癌症护理人员的早期家庭支持教育。

The main result of the study is some points of conceptualization and development of care program of the family transition resulting from children's intractable illnesses and treatment. 1) Experiences and process of the family transition resulting from children's intractable illnesses and treatment. 2) Family transition and support program tentative plan over rare intractable disease mucopolysaccharidosis child's treatment. 3) Family transitions experienced by families of children with congenital heart disease at diagnosis. 4) Study to develop education program of family support in the early stage for nurses engaged in pediatric cancer.