The impacts on child rearing families of chronic illness and families coping -Proposal for a Long-Term Family Care Model-

本研究的目的是确定慢性病对受影响的儿童抚养家庭的影响和相关因素，并制定一个长期的家庭护理模式，可以适应这些家庭。本研究的概念模型是在Hymovich的长期护理应急模型（Hymovich，1992）的基础上开发的。随后，多维评估量表问卷。研究对象包括130个慢性病儿童家庭和27个慢性病父母家庭。研究资料采访谈及邮寄方式，采自某大学医院门诊病人。假设概念模型的建构：假设结果变量的组成部分包括系统、时间、中介变量（压力、疾病简介、应对、力量、资源、需求）和家庭功能水平.评估量表：开发测量方法以评估模型的组成部分。内部一致性RE 关于我们 各种量表的负债被设定为Cronbach的α系数约为90.3。模型组件之间的关系：1）识别了组件之间的复杂关系。2)有一个负相关的家庭功能的水平作为一个结果变量和困难有关的健康生活和压力和家庭功能的水平和应对，实力和资源之间的正相关。多元回归分析表明，压力、应对、力量和资源是预测家庭功能水平的最佳变量（R^2=0.64）.“长期家庭照顾模式”的建议：上述结果普遍支持概念模式的有效性。本研究提出“长期家庭照护模式”之修正案，作为系统性评估及护理介入儿童养育家庭之模式。临床应用：我们使用“长期家庭护理模式”在儿科门诊进行家庭咨询。少

The purpose of this study was to identify the impacts from and factors related to chronic conditions on affected child rearing families, and to develop a Long-Term Family Care Model that can be adapted by such families. The conceptual model underlying this study was developed on the basis of Hymovich's Contingency Model of Long-Term Care (Hymovich, 1992). Subsequently, multidimensional assessment scale questionnaires were developed. The subjects consisted of 130 families with chronically ill children and 27 families with chronically ill parents. The data were collected by interview and mail from outpatients at a university hospital.1. The formulation of assumed conceptual model : The components consisted of system, time, mediate variables (stress, briefs about illness, coping, strength, resources, needs), and the level of family functioning for assumed outcome variables.2. Assessment Scales : Measurements were developed to assess the components of the model. The internal consistency re … More liability for the various scales was set at Cronbach's alpha coefficient of approximately 90.3. Relationships among components of the model : 1) The complicate relationships among components were identified. 2) There was a negative correlation between the level of family functioning as an outcome variable and difficulties concerning a healthy life and stress and a positive correlation between the level of family functioning and coping, strength, and resources. Multiple regression analysis indicated that best fit variables for predicting the level of family functioning were stress, coping, strength, and resources (R^2=0.64).4. The proposal for "Long-Term Family Care Model" : The validity of the conceptual model was generally supported by the above results. We propose the revised "Long-Term Family Care Model" as a model for systematic approach to the assessment and nursing intervention for child rearing families.5. Clinical application : We used "Long-Term Family Care Model" for family consultation at a pediatric outpatient unit. Less