The impacts on child rearing families of chronic illness and families coping -Proposal for a Long-Term Family Care Model-

本研究的目的是找出慢性疾病对受影响的儿童养育家庭的影响及其相关因素，并开发一种可适应此类家庭的长期家庭照顾模式。这项研究的概念模型是在Hymovich的长期护理权变模型(Hymovich，1992)的基础上发展起来的。随后编制了多维度评价量表问卷。研究对象包括130个有慢性病儿童的家庭和27个有慢性病父母的家庭。这些数据是通过采访和邮件从一所大学医院的门诊病人那里收集的。假设概念模型的构建：由系统、时间、中介变量(压力、疾病简介、应对、力量、资源、需求)和假设结果变量的家庭功能水平组成。评估量表：制定了衡量标准以评估模型的组成部分。内部一致性环…不同等级的更多负债被设定为克朗巴赫的阿尔法系数约为90.3。模型各组件之间的关系：1)识别组件之间的复杂关系。(2)作为结果变量的家庭功能水平与健康生活困难和压力呈负相关，与应对方式、力量、资源呈正相关。多元回归分析表明，压力、应对、力量和资源是预测家庭功能水平的最佳变量(R2=0.64)。“长期家庭照护模式”的建议：上述结果大致支持概念模型的有效性。我们建议将修订后的“长期家庭照护模式”作为系统评估与护理干预的模式，对儿童养育家庭进行评估。临床应用：我们在一家儿科门诊使用“长期家庭护理模式”进行家庭会诊。较少

The purpose of this study was to identify the impacts from and factors related to chronic conditions on affected child rearing families, and to develop a Long-Term Family Care Model that can be adapted by such families. The conceptual model underlying this study was developed on the basis of Hymovich's Contingency Model of Long-Term Care (Hymovich, 1992). Subsequently, multidimensional assessment scale questionnaires were developed. The subjects consisted of 130 families with chronically ill children and 27 families with chronically ill parents. The data were collected by interview and mail from outpatients at a university hospital.1. The formulation of assumed conceptual model : The components consisted of system, time, mediate variables (stress, briefs about illness, coping, strength, resources, needs), and the level of family functioning for assumed outcome variables.2. Assessment Scales : Measurements were developed to assess the components of the model. The internal consistency re … More liability for the various scales was set at Cronbach's alpha coefficient of approximately 90.3. Relationships among components of the model : 1) The complicate relationships among components were identified. 2) There was a negative correlation between the level of family functioning as an outcome variable and difficulties concerning a healthy life and stress and a positive correlation between the level of family functioning and coping, strength, and resources. Multiple regression analysis indicated that best fit variables for predicting the level of family functioning were stress, coping, strength, and resources (R^2=0.64).4. The proposal for "Long-Term Family Care Model" : The validity of the conceptual model was generally supported by the above results. We propose the revised "Long-Term Family Care Model" as a model for systematic approach to the assessment and nursing intervention for child rearing families.5. Clinical application : We used "Long-Term Family Care Model" for family consultation at a pediatric outpatient unit. Less