Emotional Well-Being and Economic Burden Research Network

项目总结 管理任何疾病也意味着管理其经济负担，即由于护理费用造成的负担 以及生产力损失。这可能会在经济上摧毁患者及其家人。不能 支付医疗或其他账单，借钱，用完积蓄，甚至宣布破产，只是 很少有患者经历过经济困难。一批新兴的文献表明，这一点 经济负担也可能造成情感上的损失。在我们自己的研究项目中，我们发现 癌症患者表示担心治疗费用或在制作时休假 治疗决定，每两个妇科癌症患者中就有一个已经开始化疗 报告了财务困境。到目前为止，很少有人关注人们的情绪幸福感 和经济负担是相关的。充分了解潜在机制的机会 经济负担、情绪健康和更广泛的健康结果之间的关系进一步受到阻碍 缺乏敬业的研究人员，以及缺乏跨学科和研究领域的“交叉对话”。 因此，我们不知道如何减少疾病和经济负担的影响。 增进幸福感。我们建议消除知识差距，克服取得进展的障碍 通过建立情感幸福感和经济负担来研究这一新兴领域 (EMOT-ECON)研究网络。这个网络将把多学科的科学家聚集在一起 跨机构采取跨学科的方法来回答最紧迫的情绪问题- 生存和经济负担问题。EMOT-ECON网络的新颖和突出特征 包括：i)由一名健康经济学家和一名临床心理学家、长期合作者和 同事们。他们将得到一个领导团队的支持，该团队包括患者、护理人员、医疗保健人员 将为丰富网络带来独特知识和视角的提供商和政策制定者 活动；二)各种筹资机制的试点项目方案组合，包括机会 专门为招募新的实地调查员而设计；以及iii)使用社交媒体和 互动网站，吸引研究人员，促进新研究团队的形成，并分享 机遇、资源和产品。我们的努力，旨在建立情感研究能力 幸福和经济负担，将通过产生知识主体而产生实质性影响 有必要制定干预措施，最大限度地减少疾病和经济负担的影响 增进幸福感。

PROJECT SUMMARY Managing any illness means also managing its economic burden, i.e., the burden due to costs of care and productivity losses. This can financially devastate patients and their families. Not being able to pay medical or other bills, borrowing money, using up savings, even declaring bankruptcy, are just a few of the financial hardships patients experience. An emerging body of literature suggests that this economic burden may also take an emotional toll. In our own program of research, we found that cancer patients expressed worry about the cost of treatment or taking time off work when making treatment decisions, and that one in two gynecologic cancer patients starting chemotherapy already reported financial distress. To date, little attention has been paid to how emotional well-being and economic burden are related. The opportunity to fully understand the underlying mechanisms between economic burden, emotional well-being, and broader health outcomes is further hampered by the lack of dedicated researchers and lack of ‘cross-talk’ across disciplines and fields of research. Consequently, we do not know how to reduce the impact of the economic burden of disease and enhance well-being. We propose to address knowledge gaps and overcome barriers to progress in this emerging area of research by establishing the Emotional Well-Being and Economic Burden (EMOT-ECON) Research Network. This Network will bring together multidisciplinary scientists across institutions to take a transdisciplinary approach to answering the most urgent emotional well- being and economic burden questions. Novel and outstanding features of the EMOT-ECON Network include: i) leadership by a health economist and a clinical psychologist, long-term collaborators, and colleagues. They will be supported by a leadership team that includes patients, caregivers, healthcare providers, and policymakers who will bring unique knowledge and perspective to enrich Network activities; ii) pilot project program portfolio of diverse funding mechanisms, including opportunities specifically designed to recruit new investigators to the field; and iii) use of social media and an interactive website to attract researchers, facilitate the formation of new research teams, and share opportunities, resources and products. Our effort, designed to build research capacity in emotional well-being and economic burden, will have a substantial impact by generating the body of knowledge necessary to develop interventions that minimize the impact of the economic burden of disease and enhance well-being.