SouthEast Enrollment Center (SEEC)

过去十年的一些发展正在推动大胆的新项目，这些项目可以实现这一承诺。 精准或个性化的医疗。虽然DNA测序成本继续快速下降，但同样重要的是电子健康记录（EHR）的广泛采用，允许低成本，高度安全地交换来自个人的大量纵向健康数据。此外，消费者越来越多地采用移动的和个人技术，这为将基因组和健康数据与暴露、行为和其他环境健康数据联系起来提供了机会，其规模在以前是不可能的。我们必须确保所有人都能享受到这些进步带来的好处。我们所有人研究计划（AoURP）成功的关键是按比例纳入不同群体。 这是“东南招生中心”（SEEC）财团的主要优势。SEEC将从佛罗里达和格鲁吉亚招募93，000名正式参与者进入AoURP，其中包括约30%的西班牙裔/拉丁美洲人和30%的黑人/非裔美国人志愿者。重要的是，一半的拉美裔将来自加勒比地区（如古巴、波多黎各和多米尼加共和国），另一半来自南美洲和中美洲。我们的黑人样本将包括来自海地和讲英语的加勒比岛屿的参与者。该联盟将由佛罗里达和格鲁吉亚的四个领先的学术健康中心牵头。每个成员都带来了建立基因组队列，招募少数民族参与临床研究，形成社区参与伙伴关系，并在大型网络中共享医疗记录（例如，所有参与PCORnet）的可观记录。

A number of developments over the last decade are promoting bold new projects that can enable the promise of precision or personalized medicine. While DNA sequencing costs continue to drop rapidly, equally important has been the widespread adoption of electronic health records (EHR) allowing for the low cost, highly secure exchange of large amounts of longitudinal health data from individuals. In addition, the increasing consumer adoption of mobile and personal technologies offers the opportunity to link genomic and health data with exposure, behavioral, and other environmental health data on a scale not previously possible. We must ensure that the benefits of these advances are accessible to all. Key to the success of the All of Us Research Program (AoURP) will be the proportional inclusion of diverse groups. This is a major strength of the “SouthEast Enrollment Center” (SEEC) consortium. SEEC will recruit 93,000 full participants from Florida and Georgia into AoURP, including approximately 30% Hispanic/Latino and 30% Black/African American volunteers. Importantly, half of the Hispanics will come from the Caribbean (e.g. Cuba, Puerto Rico and the Dominican Republic) and the other half from South and Central America. Our sample of Blacks will include participants from Haiti and English-speaking Caribbean islands. The Consortium will be spearheaded by four leading academic health centers in Florida and Georgia. Each member brings a considerable track record of establishing genomic cohorts, recruiting minorities into clinical research, forming community engagement partnerships, and sharing medical records across large networks (e.g. all participate in PCORnet).