Behavioral and Community-based Shared Resources

行为和社区共享资源

• 批准号: 10190859
• 负责人: Olveen Carrasquillo
• 金额: $ 19万
• 依托单位: UNIVERSITY OF MIAMI SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-10 至 2024-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10190859
• 关键词: Address; Behavioral; Behavioral Research; Cancer Burden; Cancer Center Support Grant; Catchment Area; Clinical; Clinical Research; Collection; Communication; Communities; Community Participation; Comprehensive Cancer Center; Consent Forms; County; Cultural Diversity; Data; Data Collection; Development; Doctor of Philosophy; Ensure; Ethnic Origin; Evidence based intervention; Extramural Activities; Florida; Funding; Future; Gender; Haitian; Intervention; Interview; Language; Linguistics; Malignant Neoplasms; Methods; Multilingualism; Participant; Patient Recruitments; Persons; Population; Population Research; Prevention; Printed Media; Protocols documentation; Race; Radio; Research; Research Personnel; Resource Sharing; Resources; Services; Sex Orientation; Socioeconomic Status; Telephone; Translating; Translational Research; Translations; Universities; Work; base; cancer health disparity; community based participatory research; community based research; community setting; ethnic diversity; experience; health equity; interest; member; participant retention; preference; psychosocial; racial and ethnic; recruit; research study; sociodemographics; survivorship; therapy development

PROJECT SUMMARY: BEHAVIORAL AND COMMUNITY-BASED RESEARCH SHARED RESOURCE The Behavioral and Community-Based Research Shared Resource (BCSR) facilitates behavioral, psychosocial, community, translational, and population-based research for Sylvester Comprehensive Cancer Center (Sylvester) investigators. These services are fundamental to Sylvester’s strategic efforts to address the cancer burden within South Florida, Sylvester’s four-county catchment area (Broward, Miami-Dade, Monroe, and Palm Beach counties)  one of the most multicultural and multilingual regions in the US. Olveen Carrasquillo, MD, MPH, a nationally recognized expert in cancer disparities and health equity, leads the BCSR and is supported in this endeavor by a highly qualified Assistant Director, Natasha Schaefer Solle, PhD. Together, they oversee two Co-Managers and ten staff members whose backgrounds reflect catchment area racial/ethnic and cultural diversity and who have extensive experience providing a wide array of research services in clinical and community settings critical for Sylvester investigators. The BCSR’s services aim to: 1) coordinate the recruitment and retention of diverse study participants (e.g. gender, race, ethnicity, sexual orientation, language, and socioeconomic status) representative of Sylvester’s catchment area; 2) support the development of culturally and linguistically tailored study materials; 3) facilitate data and biospecimen collection in clinical and community settings; and 4) assist with the development and delivery of research interventions across the cancer continuum from prevention to survivorship. In 2017, the BCSR served 36 investigators, 23 of whom are Sylvester members (comprising 64% of BCSR usage), in the development and/or conduct of 48 cancer relevant studies, half of which were extramurally funded. In the same year, the BCSR aided in the recruitment of 1,885 research participants primarily from the four counties that comprise Sylvester’s catchment area. The BCSR provides guidance to investigators on culturally-appropriate approaches for study implementation and supports the translation of study materials, such as informed consent forms and research protocols, into Spanish and/or Haitian Creole to accommodate South Florida’s linguistic diversity and enhance broad-based recruitment potential. In 2017, the BCSR translated approximately 150 study documents for 28 investigators across 35 studies. In the future, the BCSR will continue to work together with Sylvester’s Clinical Research Service and developing Biospecimen Shared Resource to develop more robust approaches to engage and maintain community participation in Sylvester research studies.

项目摘要：共享行为和社区研究 资源 行为和社区研究共享资源 (BCSR) 促进行为、 西尔维斯特综合癌症的社会心理、社区、转化和人群研究 中心（西尔维斯特）调查员。这些服务对于西尔维斯特解决以下问题的战略努力至关重要 南佛罗里达州西尔维斯特的四个县辖区（布劳沃德、迈阿密戴德县、门罗、 和棕榈滩县） 美国最具多元文化和多语言的地区之一。奥尔文 Carrasquillo，医学博士、公共卫生硕士，全国公认的癌症差异和健康公平专家，领导 BCSR 这项工作得到了高素质助理主任 Natasha Schaefer Solle 博士的支持。 他们共同管理两名联席经理和十名员工，他们的背景反映了服务区的情况 种族/民族和文化多样性，并且拥有提供广泛研究的丰富经验 临床和社区环境中的服务对于西尔维斯特研究人员至关重要。 BCSR 的服务旨在： 1) 协调不同研究参与者的招募和保留（例如性别、种族、民族、性取向） 方向、语言和社会经济地位）代表西尔维斯特的学区； 2) 支持开发针对文化和语言量身定制的学习材料； 3）促进数据和 临床和社区环境中生物样本的采集； 4) 协助开发和交付 从预防到生存的整个癌症过程的研究干预措施。 2017年，BCSR服务 36 名研究人员，其中 23 名是 Sylvester 成员（占 BCSR 使用量的 64%），正在开发中 和/或进行 48 项癌症相关研究，其中一半是外部资助的。同年， BCSR 帮助招募了 1,885 名研究参与者，主要来自以下四个县： 西尔维斯特的集水区。 BCSR 为调查人员提供适合文化的指导 研究实施方法并支持研究材料的翻译，例如知情同意书 表格和研究协议，翻译成西班牙语和/或海地克里奥尔语，以适应南佛罗里达州的语言 多样性并增强广泛的招聘潜力。 2017 年，BCSR 翻译了约 150 35 项研究中 28 名研究人员的研究文件。未来，BCSR将继续共同努力 与西尔维斯特的临床研究服务合作并开发生物样本共享资源以开发更多 采取强有力的方法来吸引和维持社区参与西尔维斯特研究。