Behavioral and Community-based Shared Resources

行为和社区共享资源

• 批准号: 10190859
• 负责人: Olveen Carrasquillo
• 金额: $ 19万
• 依托单位: UNIVERSITY OF MIAMI SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2019
• 资助国家: 美国
• 起止时间: 2019-07-10 至 2024-06-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10190859
• 关键词: Address; Behavioral; Behavioral Research; Cancer Burden; Cancer Center Support Grant; Catchment Area; Clinical; Clinical Research; Collection; Communication; Communities; Community Participation; Comprehensive Cancer Center; Consent Forms; County; Cultural Diversity; Data; Data Collection; Development; Doctor of Philosophy; Ensure; Ethnic Origin; Evidence based intervention; Extramural Activities; Florida; Funding; Future; Gender; Haitian; Intervention; Interview; Language; Linguistics; Malignant Neoplasms; Methods; Multilingualism; Participant; Patient Recruitments; Persons; Population; Population Research; Prevention; Printed Media; Protocols documentation; Race; Radio; Research; Research Personnel; Resource Sharing; Resources; Services; Sex Orientation; Socioeconomic Status; Telephone; Translating; Translational Research; Translations; Universities; Work; base; cancer health disparity; community based participatory research; community based research; community setting; ethnic diversity; experience; health equity; interest; member; participant retention; preference; psychosocial; racial and ethnic; recruit; research study; sociodemographics; survivorship; therapy development

PROJECT SUMMARY: BEHAVIORAL AND COMMUNITY-BASED RESEARCH SHARED RESOURCE The Behavioral and Community-Based Research Shared Resource (BCSR) facilitates behavioral, psychosocial, community, translational, and population-based research for Sylvester Comprehensive Cancer Center (Sylvester) investigators. These services are fundamental to Sylvester’s strategic efforts to address the cancer burden within South Florida, Sylvester’s four-county catchment area (Broward, Miami-Dade, Monroe, and Palm Beach counties)  one of the most multicultural and multilingual regions in the US. Olveen Carrasquillo, MD, MPH, a nationally recognized expert in cancer disparities and health equity, leads the BCSR and is supported in this endeavor by a highly qualified Assistant Director, Natasha Schaefer Solle, PhD. Together, they oversee two Co-Managers and ten staff members whose backgrounds reflect catchment area racial/ethnic and cultural diversity and who have extensive experience providing a wide array of research services in clinical and community settings critical for Sylvester investigators. The BCSR’s services aim to: 1) coordinate the recruitment and retention of diverse study participants (e.g. gender, race, ethnicity, sexual orientation, language, and socioeconomic status) representative of Sylvester’s catchment area; 2) support the development of culturally and linguistically tailored study materials; 3) facilitate data and biospecimen collection in clinical and community settings; and 4) assist with the development and delivery of research interventions across the cancer continuum from prevention to survivorship. In 2017, the BCSR served 36 investigators, 23 of whom are Sylvester members (comprising 64% of BCSR usage), in the development and/or conduct of 48 cancer relevant studies, half of which were extramurally funded. In the same year, the BCSR aided in the recruitment of 1,885 research participants primarily from the four counties that comprise Sylvester’s catchment area. The BCSR provides guidance to investigators on culturally-appropriate approaches for study implementation and supports the translation of study materials, such as informed consent forms and research protocols, into Spanish and/or Haitian Creole to accommodate South Florida’s linguistic diversity and enhance broad-based recruitment potential. In 2017, the BCSR translated approximately 150 study documents for 28 investigators across 35 studies. In the future, the BCSR will continue to work together with Sylvester’s Clinical Research Service and developing Biospecimen Shared Resource to develop more robust approaches to engage and maintain community participation in Sylvester research studies.

项目摘要：共享行为和基于社区的研究 资源 行为和基于社区的研究共享资源（BCSR）的最爱行为， Sylvester综合癌症的社会心理，社区，转化和基于人群的研究 中心（西尔维斯特）调查人员。这些服务是西尔维斯特（Sylvester）的战略努力至关重要的 西尔维斯特南部佛罗里达州的癌症伯南（Sylvester）的四县集水区（Broward，Miami-Dade，Monroe， 和棕榈滩国家）美国最多元文化和多语言区域之一。奥尔文 医学博士Carrasquillo，MPH，全国认可的癌症分配和健康公平专家，领导BCSR 并得到了一位高素质的助理主任Natasha Schaefer Solle博士的支持。 他们一起监督了两个共同经理和十名工作人员，他们的背景反映了集水区 种族/种族和文化多样性，并且拥有丰富的经验，提供了广泛的研究 临床和社区环境中对西尔维斯特调查人员至关重要的服务。 BCSR的服务目的是： 1）协调潜水员研究参与者的招聘和保留（例如性别，种族，种族，性别 代表西尔维斯特集水区的方向，语言和社会经济地位）； 2）支持文化和语言量身定制的研究材料的发展； 3）促进数据和 临床和社区环境中的生物循环收集； 4）协助开发和交付 整个癌症的研究干预措施从预防到生存一直持续。 2017年，BCSR服务 36位调查人员，其中23位是Sylvester成员（占BCSR使用量的64％），在开发中 和/或进行48项癌症相关的研究，其中一半是外部资助的。同年， BCSR有助于从完成的四个县招募1,885名研究参与者 西尔维斯特的集水区。 BCSR向调查人员提供有关适合文化的指导 研究实施的方法并支持研究材料的翻译，例如知情同意 形式和研究方案，分为西班牙语和/或海地克里奥尔语，以容纳佛罗里达州南佛罗里达州的语言 多样性并增强基于广泛的招聘潜力。 2017年，BCSR翻译约150 在35个研究中为28位研究人员的研究文件。将来，BCSR将继续共同努力 通过Sylvester的临床研究服务并开发Biospecimen共享资源，以开发更多 强大的方法可以参与和维持社区参与Sylvester研究。