Supplement to: HealThySelf : Healthy Self-Care for Working Informal Caregivers

项目摘要/摘要 超过3400万美国人为50岁或50岁以上的成年人提供无偿护理。其中 大约60%到70%的非正式照顾者报告在提供护理的同时受雇。照顾一位 相对而言，外出工作会对照顾者的健康造成沉重的影响。工作的照顾者有 以感知的健康指标和情绪低落的感觉衡量，比非照顾者的健康状况更差 通过诸如压力荷尔蒙、发病率和药物使用等客观指标。 在导致照顾者健康状况较差的原因中，最突出的是心理困扰和精神状态的改变 养成健康习惯。关于健康促进实践的数据表明，照顾者在以下大多数指标上得分较低 健康促进行为，健康促进行为障碍较高。照看的要求 为照顾者自身的福祉进行必要的健康促进活动制造了许多障碍 比如安排看医生，注意饮食，参加体力活动。因此，有一种 需要为照顾者提供信息和技能，以更好地应对照顾者和 照顾好自己的健康和福祉。已经制定了帮助照料者的干预措施；然而，没有 存在基于网络的方案，用于系统地解决工作照顾者的自我护理需求。 工作场所越来越意识到支持在职照顾者的重要性，并 有兴趣为员工提供服务，以减少缺勤，医疗保健成本和员工流失率。 这个项目的目的将是开发一个基于网络的互动程序，解决情绪， 在职照顾者的身体和自我护理需求。基于Web的服务在以下方面具有灵活性 可访问性、范围可伸缩性和个性化需求。该计划将重点放在自我照顾技能上 旨在改善心理健康、身体健康，并促进积极的健康做法。伊萨 员工，与专家顾问团队、Redmon Group和我们的工作场所合作伙伴合作 将为工作的非正式照顾者开发和测试HealThySself计划。该计划的主要目标 项目是(1)开发一种能够满足在职照顾者自我护理需求的产品，(2) 提高在职照顾者可获得的技术和支持，以及(3)进行分析和测试 该计划旨在评估它在促进在职照顾者的健康和福祉方面的有效性。 为了实现这些目标，ISA将建立其在开发与健康相关的 干预措施。在第一阶段，ISA将开展发展前的重点小组，并咨询护理专家 创建一个科学驱动的和相关的计划。我们还将对该计划的吸引力进行可行性测试 与现有的网站相比。将建立进入第二阶段的基准。在第二阶段 我们将与英诺瓦健康系统的合作伙伴一起，在随机对照试验中全面开发和测试该计划 和约翰霍普金斯大学办公室的工作、生活和参与，并为营销做好了准备。

Project Summary/Abstract More than 34 million Americans provide unpaid care for an adult 50 years of age or older. Of these informal caregivers, approximately 60 to 70 percent report being employed while providing care. Caring for a relative while working outside of the home can take a heavy toll on caregivers’ health. Working caregivers have poorer health than non-caregivers, as measured by perceived health measures and feelings of low mood and by objective measures such as stress hormones, disease rates and medication use. Most prominent among the causes of poorer caregiver health are psychological distress and alterations in health habits. Data on health promotion practices indicate that caregivers score lower on most measures of health promotion behaviors, and higher on barriers to health promoting actions. The demands of caregiving create many barriers to performing the health promoting activities necessary for caregivers’ own well-being such as scheduling doctor visits, attending to their diet, and engaging in physical activity. There is, therefore, a need to provide caregivers with the information and skills to better cope with the demands of caregiving and attend to their own health and wellbeing. Interventions have been developed to assist caregivers; however, no web-based programs exist for systematically addressing the self-care needs of working caregivers. Workplaces are becoming increasingly aware of the importance of supporting working caregivers and are interested in offering services to employees to reduce absenteeism, health care costs and employee turnover. The purpose of this project will be to develop an interactive web-based program addressing the emotional, physical and self-care needs of working caregivers. Web-based services have the advantage of flexibility in access, scalability in scope, and tailoring of individual needs. The program will focus on self-care skills designed to improve psychological well-being, physical health, and promote positive health practices. ISA Associates, in partnership with a team of expert consultants, the Redmon Group, and our workplace partners will develop and test the HealThySelf program for working informal caregivers. The primary objectives of the project are to (1) develop a product capable of addressing the self care needs of working caregivers, (2) advance the technology and supports available to working caregivers, and (3) conduct an analysis and test of the program to assess it’s effectiveness in promoting the health and well-being of working caregivers. To accomplish these objectives ISA will build on its’ extensive experience in developing health-related interventions. In Phase I ISA will conduct pre-development focus groups and consult with experts in caregiving to create a science-driven and relevant program. We will also conduct a feasibility test of the program’s appeal compared to an existing website. Benchmarks will be established for moving to Phase II. During Phase II the program will be fully developed, tested in a randomized control trial with our partners at Inova Health System and The Johns Hopkins University Office of Work Life and Engagement, and prepared for marketing.