HealThySelf: Healthy Self-Care for Working Informal Caregivers

HealThySelf：工作非正式护理人员的健康自我护理

基本信息

批准号：
9888295
负责人：
Diane K. Deitz
金额：
$ 47.8万
依托单位：
ISA ASSOCIATES, INC.
依托单位国家：
美国
项目类别：
财政年份：
2017
资助国家：
美国
起止时间：
2017-06-01 至 2021-11-30
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/9888295
关键词：
Absenteeism Address Adult Age-Years American Awareness Behavior Benchmarking Caregiver Burden Caregiver well-being Caregivers Caring Consult Custom Data Data Reporting Depressed mood Development Devices Diet Diet Habits Disease Effectiveness Emotional Employee Family member Feedback Feeling Focus Groups Four-dimensional Goals Habits Health Health Care Costs Health Promotion Health Status Health behavior Health system Home environment Hormones Incidence Individual Insurance Carriers Internet Intervention Life Marketing Measures Mental Health Moods Morale Morbidity - disease rate Narration Nature Online Systems Outcome Measure Participant Patient Self-Report Perception Personal Satisfaction Personnel Turnover Pharmaceutical Preparations Phase Physical activity Problem Solving Program Effectiveness Randomized Randomized Controlled Trials Reporting Resources Sampling Schedule Science Self Care Services Sleep Stress Structure Techniques Technology Testing Time Universities Visit Visual Well in self Work Workplace base behavioral health caregiving commercialization control trial cost design effectiveness testing experience flexibility health organization healthy lifestyle improved informal caregiver interest mobile computing mood symptom multimodality physical conditioning physical symptom programs prototype psychoeducational psychological distress recruit service providers skills sleep health social stress management tool web services web site

项目摘要

More than 34 million Americans provide unpaid care for an adult 50 years of age or older. Of these informal caregivers, approximately 60 to 70 percent report being employed while providing care. Caring for a relative while working outside of the home can take a heavy toll on caregivers’ health. Working caregivers have poorer health than non-caregivers, as measured by perceived health measures and feelings of low mood and by objective measures such as stress hormones, disease rates and medication use. Most prominent among the causes of poorer caregiver health are psychological distress and alterations in health habits. Data on health promotion practices indicate that caregivers score lower on most measures of health promotion behaviors, and higher on barriers to health promoting actions. The demands of caregiving create many barriers to performing the health promoting activities necessary for caregivers’ own well-being such as scheduling doctor visits, attending to their diet, and engaging in physical activity. There is, therefore, a need to provide caregivers with the information and skills to better cope with the demands of caregiving and attend to their own health and wellbeing. Interventions have been developed to assist caregivers; however, no web-based programs exist for systematically addressing the self-care needs of working caregivers. Workplaces are becoming increasingly aware of the importance of supporting working caregivers and are interested in offering services to employees to reduce absenteeism, health care costs and employee turnover. The purpose of this project will be to develop an interactive web-based program addressing the emotional, physical and self-care needs of working caregivers. Web-based services have the advantage of flexibility in access, scalability in scope, and tailoring of individual needs. The program will focus on self-care skills designed to improve psychological well-being, physical health, and promote positive health practices. ISA Associates, in partnership with a team of expert consultants, the Redmon Group, and our workplace partners will develop and test the HealThySelf program for working informal caregivers. The primary objectives of the project are to (1) develop a product capable of addressing the self care needs of working caregivers, (2) advance the technology and supports available to working caregivers, and (3) conduct an analysis and test of the program to assess it’s effectiveness in promoting the health and well-being of working caregivers. To accomplish these objectives ISA will build on its’ extensive experience in developing health-related interventions. In Phase I ISA will conduct pre-development focus groups and consult with experts in caregiving to create a science-driven and relevant program. We will also conduct a feasibility test of the program’s appeal compared to an existing website. Benchmarks will be established for moving to Phase II. During Phase II the program will be fully developed, tested in a randomized control trial with our partners at Inova Health System and The Johns Hopkins University Office of Work Life and Engagement, and prepared for marketing.

超过3400万美国人为50岁以上的成年人提供无偿护理。其中非正式护理人员，约有60％至70％的人在提供护理时报告员工。照顾一个在外面工作时，亲戚可能会对看护人的健康造成巨大损失。工作照顾者有通过感知到的健康措施和情绪低落的感觉，健康的健康状况差。通过客观措施，例如应力激素，疾病率和药物使用。在护理人员健康较差的原因中，最突出的是心理困扰和改变健康习惯。有关健康促进实践的数据表明，在大多数措施中，护理人员得分较低健康促进行为，对健康促进行动的障碍更高。护理需求为照顾者自己的福祉创造许多障碍，以进行健康促进活动例如安排医生就诊，饮食和从事体育锻炼。因此，有一个需要向看护人提供信息和技能，以更好地应付护理和照顾自己的健康和福祉。已经制定了干预措施来协助护理人员；但是，不存在基于Web的程序，用于系统地满足工作护理人员的自我保健需求。工作场所越来越了解支持工作照顾者的重要性，并且有兴趣向员工提供服务，以减少旷工，医疗保健成本和员工流动。该项目的目的是开发一个基于互动的网络程序，以解决情感，工作照顾者的身体和自我保健需求。基于Web的服务具有灵活性访问，范围可伸缩性以及对个人需求的裁缝。该计划将专注于自我保健技能旨在改善心理健康，身体健康并促进积极的健康实践。伊萨同事与Redmon Group的专家顾问团队和我们的工作场所合作伙伴合作将开发和测试HealthySelf计划的非正式护理人员。的主要对象项目将（1）开发一种能够满足工作照顾者自我护理需求的产品，（2）推进工作照顾者可用的技术和支持，（3）进行分析和测试该计划评估其在促进工作照顾者的健康和福祉方面的有效性。为了实现这些目标干预措施。在第一阶段，ISA将进行开发前焦点小组，并咨询护理专家创建一个由科学驱动的和相关的程序。我们还将对该计划的外观进行可行性测试与现有网站相比。将建立基准用于转移到第二阶段。在第二阶段期间计划将在我们的合作伙伴的Inova Health System的随机控制试验中进行全面开发，并在随机控制试验中进行测试以及约翰·霍普金斯大学工作生活与参与办公室，并为营销做好准备。