Creating Community Driven, Personalized Health Maps for Patients with Diabetes

为糖尿病患者创建社区驱动的个性化健康地图

• 批准号: 10204644
• 负责人: COURTNEY REES LYLES
• 金额: $ 5.98万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-05 至 2022-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10204644
• 关键词: Advocate; Appointment; Behavior; Blood Glucose; Businesses; Chronic Disease; Cities; Clinic; Collaborations; Color; Communities; Community Health; Complex; Country; Data; Data Element; Diabetes Mellitus; Diet; Disease Management; Electronic Health Record; Ensure; Ethnography; Evaluation; Exercise; Face; Food; Goals; Health; Health Promotion; Health Resources; Health Status; Health Technology; Health behavior; Health behavior change; Healthcare; Healthcare Systems; Healthy Eating; High Prevalence; Home environment; Human; Individual; Interview; Knowledge; Libraries; Life; Life Style; Location; Low Income Population; Low income; Maps; Medical; Methodology; Methods; Neighborhoods; Outcome; Output; Patient Preferences; Patient Recruitments; Patients; Personal Health Records; Pharmaceutical Preparations; Pharmacy facility; Phase; Physical activity; Prediabetes syndrome; Privatization; Process; Resources; Sampling; San Francisco; Science; Sleep; Social Work; Sorting - Cell Movement; Subgroup; Surveys; System; Technology; Telephone; Test Result; Testing; Visit; base; data archive; data sharing; data visualization; design; digital; ethnic diversity; ethnic minority population; experience; flexibility; follow-up; health care delivery; health data; health disparity; health literacy; improved; insight; interest; medical appointment; member; nutrition; peer; prototype; racial and ethnic; recruit; socioeconomics; tool; uptake; usability; user centered design; web portal

Project Abstract/Summary: This NLM R01 proposal aims to develop and test a personal health library platform for patients with diabetes and prediabetes, harnessing both personal health and healthcare data (e.g., medication lists, upcoming appointments, self-tracking of diet and blood sugars) and location-based mapped data about neighborhood health resources (e.g., community reviews about the quality of grocery stores and parks). Diabetes and prediabetes patients have substantial needs for tracking and accessing health and healthcare information that are poorly met by existing platforms that largely operate in silos. Furthermore, existing digital health tools have not utilized participatory design approaches and have low uptake among specific subgroups, such as racial/ethnic minority and lower income populations. In this project, we will use design science to create and evaluate a new personal health library platform to strengthen and improve the ways in which low income individuals and communities of color access and interact with personal health data that better reflect their needs and interests. Specifically, we propose to create a new platform that enables patients with diabetes or prediabetes to import their personal health data to a mapping platform, in order to have access to store and view both private and public views of health- promoting and health-inhibiting community factors in their own neighborhood. This new platform will be titled: “Mapping to Amplify the Vitality of Engaged Neighborhoods,” or MAVEN. In Aim 1, we will use inductive observational methods to follow community leaders/health advocates and patients with either diabetes or prediabetes to understand existing health and healthcare journeys and map existing resources in their neighborhoods. We will recruit patients and community-based organization leaders from 3 San Francisco neighborhoods with the highest prevalence of diabetes and pre-diabetes, which also correspond with existing San Francisco Health Network clinics in our healthcare system. In Aim 2, we will recruit a second sample of individuals to complete user-centered design methods (e.g., card-sorting and thinkaloud interviews) to prioritize and test prototypes of data elements within the new MAVEN personal health library platform. In Aim 3, we will conduct real-world usability testing of a functional version of the MAVEN platform to explore its acceptability and usability in everyday life. Because we will engage racially/ethnically and socioeconomically diverse patients in this project, we will ensure that the MAVEN personal health library platform is relevant for patients with varying levels of health literacy and technology proficiency. In addition, because we will engage community health advocates and public healthcare system leaders, our findings will have more direct implications for implementation and dissemination.

项目摘要/摘要： 该NLM R01提案旨在为糖尿病患者开发和测试个人健康图书馆平台 和糖尿病前期，利用个人健康和医疗保健数据（例如，药物清单，即将到来 约会，饮食和血糖的自我追踪）以及基于位置的映射数据 卫生资源（例如，有关杂货店和公园质量的社区评论）。糖尿病和 糖尿病前患者在跟踪和获取健康和医疗保健信息方面有很大的需求 在很大程度上在筒仓中运行的现有平台所满足。此外，现有的数字健康工具具有 未利用参与设计方法，并且在特定亚组中的吸收较低，例如 种族/族裔少数民族和低收入人群。 在这个项目中，我们将使用设计科学来创建和评估一个新的个人健康图书馆平台 加强和改善低收入的颜色访问的个人和社区的方式 与个人健康数据互动，以更好地反映他们的需求和兴趣。具体来说，我们建议 创建一个新平台，使患有糖尿病或糖尿病前期的患者将其个人健康数据进口到 一个映射平台，以便可以访问商店并查看私人和公众对健康的看法 - 在自己的社区中促进和抑制健康的社区因素。这个新平台将标题为： “映射以扩大敬业社区的活力”或毛文。 在AIM 1中，我们将使用归纳观察方法来跟随社区领导者/卫生倡导者和 患有糖尿病或糖尿病前期的患者，了解现有的健康和医疗保健旅行和地图 他们附近的现有资源。我们将招募患者和社区组织领导者 来自糖尿病和糖尿病前期最高的3个旧金山社区，这也是 与我们的医疗保健系统中现有的旧金山健康网络诊所相对应。在AIM 2中，我们将 招募第二个个人样本以完成以用户为中心的设计方法（例如，卡片和卡片和 thinkaloud访谈）在新的Maven个人健康中优先级和测试数据元素的原型 图书馆平台。在AIM 3中，我们将对MAVEN的功能版本进行现实世界可用性测试 探索日常生活中其可接受性和可用性的平台。 因为我们将在这个项目中大致/种族和社会经济多样化的患者参与 确保Maven个人健康图书馆平台与健康水平不同的患者相关 识字和技术水平。此外，因为我们将参与社区健康倡导者和 公共保健系统领导者，我们的发现将对实施和 传播。