Creating Community Driven, Personalized Health Maps for Patients with Diabetes

为糖尿病患者创建社区驱动的个性化健康地图

• 批准号: 10241383
• 负责人: COURTNEY REES LYLES
• 金额: $ 32.89万
• 依托单位: UNIVERSITY OF CALIFORNIA, SAN FRANCISCO
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-05 至 2022-08-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10241383
• 关键词: Advocate; Appointment; Behavior; Blood Glucose; Businesses; Chronic Disease; Cities; Clinic; Collaborations; Color; Communities; Community Health; Complex; Country; Data; Data Element; Diabetes Mellitus; Diet; Disease Management; Dissemination and Implementation; Electronic Health Record; Ensure; Ethnography; Evaluation; Exercise; Face; Food; Goals; Health; Health Promotion; Health Resources; Health Status; Health Technology; Health behavior; Health behavior change; Healthcare; Healthcare Systems; Healthy Eating; High Prevalence; Home; Human; Individual; Interview; Knowledge; Libraries; Life; Life Style; Location; Low Income Population; Low income; Maps; Medical; Methodology; Methods; Neighborhoods; Outcome; Output; Patient Preferences; Patient Recruitments; Patients; Personal Health Records; Pharmaceutical Preparations; Pharmacy facility; Phase; Physical activity; Prediabetes syndrome; Privatization; Process; Resources; Sampling; San Francisco; Science; Sleep; Social Work; Sorting - Cell Movement; Subgroup; Surveys; System; Technology; Telephone; Test Result; Testing; Visit; base; data archive; data sharing; data visualization; design; digital health; ethnic diversity; ethnic minority population; experience; flexibility; follow-up; health care delivery; health data; health disparity; health literacy; improved; insight; interest; medical appointment; member; nutrition; peer; prototype; racial and ethnic; recruit; socioeconomics; tool; uptake; usability; user centered design; web portal

Project Abstract/Summary: This NLM R01 proposal aims to develop and test a personal health library platform for patients with diabetes and prediabetes, harnessing both personal health and healthcare data (e.g., medication lists, upcoming appointments, self-tracking of diet and blood sugars) and location-based mapped data about neighborhood health resources (e.g., community reviews about the quality of grocery stores and parks). Diabetes and prediabetes patients have substantial needs for tracking and accessing health and healthcare information that are poorly met by existing platforms that largely operate in silos. Furthermore, existing digital health tools have not utilized participatory design approaches and have low uptake among specific subgroups, such as racial/ethnic minority and lower income populations. In this project, we will use design science to create and evaluate a new personal health library platform to strengthen and improve the ways in which low income individuals and communities of color access and interact with personal health data that better reflect their needs and interests. Specifically, we propose to create a new platform that enables patients with diabetes or prediabetes to import their personal health data to a mapping platform, in order to have access to store and view both private and public views of health- promoting and health-inhibiting community factors in their own neighborhood. This new platform will be titled: “Mapping to Amplify the Vitality of Engaged Neighborhoods,” or MAVEN. In Aim 1, we will use inductive observational methods to follow community leaders/health advocates and patients with either diabetes or prediabetes to understand existing health and healthcare journeys and map existing resources in their neighborhoods. We will recruit patients and community-based organization leaders from 3 San Francisco neighborhoods with the highest prevalence of diabetes and pre-diabetes, which also correspond with existing San Francisco Health Network clinics in our healthcare system. In Aim 2, we will recruit a second sample of individuals to complete user-centered design methods (e.g., card-sorting and thinkaloud interviews) to prioritize and test prototypes of data elements within the new MAVEN personal health library platform. In Aim 3, we will conduct real-world usability testing of a functional version of the MAVEN platform to explore its acceptability and usability in everyday life. Because we will engage racially/ethnically and socioeconomically diverse patients in this project, we will ensure that the MAVEN personal health library platform is relevant for patients with varying levels of health literacy and technology proficiency. In addition, because we will engage community health advocates and public healthcare system leaders, our findings will have more direct implications for implementation and dissemination.

项目摘要/总结： NLM R 01提案旨在为糖尿病患者开发和测试个人健康图书馆平台 和前驱糖尿病，利用个人健康和医疗保健数据（例如，药物清单，即将 预约、饮食和血糖的自我跟踪）以及关于社区的基于位置的映射数据 卫生资源（例如，关于杂货店和公园质量的社区评论）。糖尿病和 糖尿病前期患者对跟踪和访问健康和保健信息有实质性的需求， 现有的平台很难满足这些需求，这些平台主要在孤岛中运行。此外，现有的数字健康工具 没有利用参与式设计方法，在特定的亚群体中采用率低，例如 种族/少数民族和低收入人口。 在这个项目中，我们将使用设计科学来创建和评估一个新的个人健康图书馆平台， 加强和改善低收入个人和有色人种社区获得和 与个人健康数据进行交互，更好地反映他们的需求和兴趣。具体而言，我们建议 创建一个新的平台，使糖尿病或前驱糖尿病患者能够将其个人健康数据导入 一个映射平台，以便能够访问存储和查看私人和公共健康视图- 促进和抑制健康的社区因素在他们自己的邻居。这个新平台的标题将是： “映射以放大社区的活力”，或MAVEN。 在目标1中，我们将使用归纳观察方法来跟踪社区领袖/健康倡导者， 糖尿病或糖尿病前期患者了解现有的健康和医疗保健旅程， 现有的资源在他们的社区。我们将招募患者和社区组织领导人 来自旧金山弗朗西斯科3个社区，糖尿病和糖尿病前期患病率最高， 与我们医疗保健系统中现有的旧金山弗朗西斯科健康网络诊所相对应。在目标2中，我们将 招募第二样本个体来完成以用户为中心的设计方法（例如，卡片分类和 thinkaloud访谈），以确定新MAVEN个人健康数据元素原型的优先级并对其进行测试 图书馆平台在目标3中，我们将对MAVEN的功能版本进行真实可用性测试 平台，探索其在日常生活中的可接受性和可用性。 因为我们将在这个项目中吸引不同种族/民族和社会经济背景的患者，我们将 确保MAVEN个人健康图书馆平台与不同健康水平的患者相关 识字和技术熟练程度。此外，由于我们将与社区健康倡导者和 公共医疗保健系统的领导者，我们的研究结果将对实施产生更直接的影响， 传播。