Creating Community Driven, Personalized Health Maps for Patients with Diabetes

项目摘要/摘要： NLMR01提案旨在为糖尿病患者开发和测试个人健康图书馆平台 和糖尿病前期，利用个人健康和医疗保健数据(例如，即将到来的药物清单 预约、饮食和血糖的自我跟踪)和基于位置的邻居地图数据 卫生资源(例如，关于杂货店和公园质量的社区审查)。糖尿病和 糖尿病前期患者非常需要跟踪和访问健康和保健信息，这些信息 在很大程度上是在竖井中运行的现有平台很难满足。此外，现有的数字健康工具已经 没有利用参与式设计方法，在特定的小组中接受度较低，例如 少数族裔和低收入人口。 在这个项目中，我们将使用设计科学来创建和评估一个新的个人健康图书馆平台，以 加强和改善低收入个人和有色人种社区获得和 与个人健康数据互动，更好地反映他们的需求和兴趣。具体来说，我们建议 创建一个新平台，使糖尿病或糖尿病前期患者能够将他们的个人健康数据导入到 一个测绘平台，以便能够存储和查看私人和公共的健康视图- 在他们自己的社区中促进和抑制健康的社区因素。这一新平台将命名为： “绘制地图，放大社区的活力”，或MAVEN。 在目标1中，我们将使用归纳观察方法来跟踪社区领导人/健康倡导者和 糖尿病或糖尿病前期患者了解现有的健康和保健旅程和地图 他们社区中现有的资源。我们将招募患者和社区组织领导人 来自旧金山糖尿病和糖尿病前期患病率最高的3个社区，这也 与我们医疗系统中现有的旧金山健康网络诊所保持一致。在目标2中，我们将 招募第二批人员来完成以用户为中心的设计方法(例如，卡片分类和 大声思考)，以确定新的MAVEN个人健康中数据元素的优先顺序并进行测试 图书馆平台。在目标3中，我们将对MAVEN的功能版本进行真实的可用性测试 探索其在日常生活中的可接受性和可用性的平台。 因为我们将让种族/民族和社会经济多元化的患者参与到这个项目中来，我们将 确保MAVEN个人健康图书馆平台与不同健康水平的患者相关 读写能力和技术熟练程度。此外，因为我们将与社区健康倡导者和 公共医疗系统领导者，我们的发现将对实施和 传播。

Project Abstract/Summary: This NLM R01 proposal aims to develop and test a personal health library platform for patients with diabetes and prediabetes, harnessing both personal health and healthcare data (e.g., medication lists, upcoming appointments, self-tracking of diet and blood sugars) and location-based mapped data about neighborhood health resources (e.g., community reviews about the quality of grocery stores and parks). Diabetes and prediabetes patients have substantial needs for tracking and accessing health and healthcare information that are poorly met by existing platforms that largely operate in silos. Furthermore, existing digital health tools have not utilized participatory design approaches and have low uptake among specific subgroups, such as racial/ethnic minority and lower income populations. In this project, we will use design science to create and evaluate a new personal health library platform to strengthen and improve the ways in which low income individuals and communities of color access and interact with personal health data that better reflect their needs and interests. Specifically, we propose to create a new platform that enables patients with diabetes or prediabetes to import their personal health data to a mapping platform, in order to have access to store and view both private and public views of health- promoting and health-inhibiting community factors in their own neighborhood. This new platform will be titled: “Mapping to Amplify the Vitality of Engaged Neighborhoods,” or MAVEN. In Aim 1, we will use inductive observational methods to follow community leaders/health advocates and patients with either diabetes or prediabetes to understand existing health and healthcare journeys and map existing resources in their neighborhoods. We will recruit patients and community-based organization leaders from 3 San Francisco neighborhoods with the highest prevalence of diabetes and pre-diabetes, which also correspond with existing San Francisco Health Network clinics in our healthcare system. In Aim 2, we will recruit a second sample of individuals to complete user-centered design methods (e.g., card-sorting and thinkaloud interviews) to prioritize and test prototypes of data elements within the new MAVEN personal health library platform. In Aim 3, we will conduct real-world usability testing of a functional version of the MAVEN platform to explore its acceptability and usability in everyday life. Because we will engage racially/ethnically and socioeconomically diverse patients in this project, we will ensure that the MAVEN personal health library platform is relevant for patients with varying levels of health literacy and technology proficiency. In addition, because we will engage community health advocates and public healthcare system leaders, our findings will have more direct implications for implementation and dissemination.