Remote Data Enclave Core (RDEC)

摘要-远程数据飞地核心（RDEC）-核心E 远程数据飞地核心（RDEC）将成为HEADS中心的“实验室”，提供安全和 在高容量计算环境中远程访问广泛的ADRD相关数据集。 考虑到大型且通常受限的数据源的重要性和日益增长的相关性， 应用于解决许多与HEADS主题相关的最紧迫问题，索赔数据来自 医疗保险和医疗补助是最突出的例子，高容量计算环境， 满足严格的安全和隐私标准是RDEC旨在满足的关键需求。的 RDEC将在高容量计算环境中支持远程数据飞地，以解决 HEADs中心的总体主题。RDEC将有以下具体目标：具体目标1。 通过（a）安全标准、（B）为远程数据飞地创建和维护硬件和软件 隐私保护，（c）高容量计算，以及（d）远程访问。具体目标2.建立和 维护一个统一的ADRD相关数据集数据仓库，（a）集中数据库存 资产，（B）系统化许可和数据使用协议，以及（c）维护和更新关键 数据集。数据仓库将包括受限数据集、专有数据集和非公开使用数据集 文件.具体目标3.向远程数据飞地用户提供高级服务，包括（a） 建立并确保对数据访问过程的忠实性，（B）协助数据使用和重用 协议;及（c）培训及协助维持资料私隐及保安。RDEC将 建立和维护严格保护的数据基础设施，利用在以下方面的重大投资： 强大的国家数据集，并为HEADS中心的研究人员提供无与伦比的访问这些数据集的机会。 资源通过在一个强大和安全的环境中建立一个集中的可访问数据仓库， 研究与开发中心将解决进入这一研究领域的关键障碍，从而吸引和支持 培养有才华的新研究人员进行ADRD研究。RDEC将促进创造性的联系 在不断增长的数据集收集，以产生与HEADS中心主题相关的创新见解。

Abstract – Remote Data Enclave Core (RDEC) – Core E The Remote Data Enclave Core (RDEC) will be the “lab” for the HEADS Center, offering secure and remote access to a wide range of ADRD-relevant datasets in a high-capacity computing environment. Given the importance and growing relevance of large and often restricted data sources that can be applied to address many of the most pressing questions tied to HEADS themes, claims data from Medicare and Medicaid being the most prominent example, a high-capacity computing environment that meets strict security and privacy standards is a critical need that the RDEC is designed to meet. The RDEC will support a remote data enclave in a high-capacity computing environment to address the overall themes of the HEADs Center. The RDEC will have the following Specific Aims: SPECIFIC AIM 1. To create and sustain hardware and software for a remote data enclave with (a) security standards, (b) privacy protection, (c) high-capacity computing, and (d) remote access. SPECIFIC AIM 2. To build and maintain a unified data warehouse of ADRD-relevant datasets that (a) centralizes inventory of data assets, (b) systematizes licensing and data use agreements, and (c) maintains and updates critical datasets. Data warehouse will include restricted datasets, proprietary datasets, and linkable public-use files. SPECIFIC AIM 3. To provide high-level services to remote data enclave users including (a) establishing and ensuring fidelity to processes for data access, (b) assisting with data use and reuse agreements, and (c) training and assisting in maintenance of data privacy and security. The RDEC will establish and maintain a rigorously protected data infrastructure, leveraging significant investments in powerful national datasets and providing HEADS Center investigators with unparalleled access to these resources. By establishing a centralized accessible data warehouse in a robust and secure environment, the RDEC will address critical barriers to entering this area of study, thus, attracting and supporting the development of talented new investigators to ADRD research. The RDEC will enable creative linkages across the growing collection of datasets to yield innovative insights related to HEADS Center themes.