Hopkins' Economics of Alzheimer's Disease and Services (HEADS) Center

霍普金斯大学阿尔茨海默病经济学和服务 (HEADS) 中心

• 批准号: 10451780
• 负责人: DANIEL E POLSKY
• 金额: $ 89.18万
• 依托单位: JOHNS HOPKINS UNIVERSITY
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-08-01 至 2025-06-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10451780
• 关键词: Address; Adult Children; Affect; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Area; Basic Science; Caregivers; Caring; Clinical Research; Communities; Community Practice; Contracts; Data; Data Set; Data Sources; Dementia caregivers; Diagnosis; Disease; Economics; Environment; Family; Family Caregiver; Funding; Goals; Health; Health Promotion; Health Services Research; Infrastructure; Interdisciplinary Study; Intervention; Investigation; Knowledge; Mentorship; Mission; Monitor; Personal Satisfaction; Persons; Pilot Projects; Policies; Program Development; Quality of Care; Request for Applications; Research; Research Infrastructure; Research Methodology; Research Personnel; Research Support; Resource-limited setting; Resources; Role; Safety; Schools; Science; Scientist; Secure; Security; Services; Spouses; Strategic vision; Subgroup; System; Teacher Professional Development; Training; Translating; Universities; advocacy organizations; care systems; career; caregiving; collaborative environment; community building; cost; data enclave; dementia care; end of life; ethnic minority; experience; forging; home based service; human very old age (85+); innovation; novel; population based; public health relevance; racial minority; service delivery; tool

Abstract – Overall This application requests funding to establish the Hopkins’ Economics of Alzheimer’s Disease & Services (HEADS) Center. The Center’s overall goal is to advance population-based science that addresses ADRD care and its economic consequences. We will meet this goal through research that addresses two themes: (1) Identifying and quantifying the range of ADRD care needs and related economic consequences and (2) Examining how the organization, financing, and delivery of services affects accessibility, affordability, quality, and equity of ADRD care. Within each theme, HEADS Center research will emphasize family and unpaid caregiving and disparities. We meet our overall goal and address Center themes through two Specific Aims. SPECIFIC AIM 1 is to generate new knowledge concerning ADRD care in the areas of the HEADS Center's thematic focus. SPECIFIC AIM 2 is to advance the field of ADRD economics and health services research and its impact by nurturing emerging and established investigators, developing a cutting-edge research infrastructure, disseminating new knowledge, and forging linkages with policy and practice communities. The HEADS Center will accomplish its Aims through an infrastructure of four Cores. Core A, the Administrative and Research Support Core will develop and execute the Center’s strategic vision by coordinating and managing research, methods, data, community-building, and dissemination resources across Cores. Core B, the Program Development Core will provide funding, interdisciplinary research mentorship, and regulatory monitoring for novel pilot studies that can advance research within our themes, develop the careers of researchers addressing these themes, and attract investigators to the field. Core D, the External Research Resources Support and Dissemination Core, will build the community of scientists engaged in research related to HEADS themes, facilitate rigorous use of research resources, disseminate scientific evidence developed within our themes, and nurture partnerships with key stakeholders and advocacy organizations to translate findings into policy and practice. Core E, the Remote Data Enclave Core will create and sustain a high-capacity, secure computing environment, that can generate new investigations and investigators pursuing projects within our themes that leverage unique linkages between ADRD related data, many with strict security requirements. The HEADS Center will leverage unique strengths at Johns Hopkins University (Hopkins) to build a cross-school, interdisciplinary, and diverse environment for developing and executing innovative research to advance population-based science that addresses ADRD care and its economic consequences.

摘要 – 总体 该申请请求资金建立霍普金斯大学阿尔茨海默病与服务经济学 （头）中心。该中心的总体目标是推进以人口为基础的科学，解决 ADRD 护理及其经济后果。我们将通过解决两个主题的研究来实现这一目标：(1) 确定并量化 ADRD 护理需求的范围和相关的经济后果以及 (2) 检查服务的组织、融资和提供如何影响可及性、可负担性、质量、 ADRD 护理的公平性。在每个主题中，HEADS 中心的研究都将强调家庭和无偿 照顾和差异。我们通过两个具体目标来实现我们的总体目标并解决中心主题。 具体目标 1 是在 HEADS 中心的领域内生成有关 ADRD 护理的新知识 主题重点。具体目标 2 是推进 ADRD 经济学和卫生服务研究领域 及其通过培养新兴和成熟的研究人员、发展尖端研究而产生的影响 基础设施、传播新知识以及与政策和实践界建立联系。这 HEADS 中心将通过四个核心的基础设施来实现其目标。核心 A，行政 研究支持核心将通过协调和执行中心的战略愿景 管理跨核心的研究、方法、数据、社区建设和传播资源。核心B， 项目开发核心将提供资金、跨学科研究指导和监管 监测新颖的试点研究，这些研究可以推进我们主题内的研究，发展职业生涯 研究人员解决这些主题，并吸引研究人员进入该领域。核心 D，外部研究 资源支持和传播核心，将建立从事研究的科学家社区 与 HEADS 主题相关，促进研究资源的严格使用，传播科学证据 在我们的主题范围内制定，并与主要利益相关者和倡导组织建立伙伴关系 将调查结果转化为政策和实践。 Core E，远程数据飞地核心将创建并维持 高容量、安全的计算环境，可以产生新的调查和调查人员 在我们的主题内开展项目，利用 ADRD 相关数据之间的独特联系，许多数据都具有 严格的安全要求。 HEADS 中心将利用约翰霍普金斯大学的独特优势 （霍普金斯大学）建立一个跨学校、跨学科、多元化的开发和执行环境 创新研究，以推进以人口为基础的科学，解决 ADRD 护理及其经济问题 结果。