Mobile Health Tools to Promote Health in Adults with FASD

移动健康工具促进 FASD 成人健康

• 批准号: 10331884
• 负责人: CHRISTIE Lynn McGee Petrenko
• 金额: $ 13.86万
• 依托单位: UNIVERSITY OF ROCHESTER
• 依托单位国家: 美国
• 财政年份: 2021
• 资助国家: 美国
• 起止时间: 2021-02-01 至 2023-07-31
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10331884
• 关键词: Address; Adult; Advocacy; Advocate; Animal Model; Applications Grants; Brain Injuries; Caregivers; Child; Chronic; Collaborations; Communities; Data; Data Collection; Decision Making; Development; Disease; Education; Ensure; Evaluation; Family; Feasibility Studies; Feedback; Fetal Alcohol Exposure; Fetal Alcohol Spectrum Disorder; Fetal alcohol effects; Focus Groups; Frequencies; Future; Goals; Health; Health Promotion; Health Services Accessibility; Healthcare; Imprisonment; Individual; Infrastructure; Internet; Intervention; Knowledge; Language; Life Experience; Literature; Medical; Mental Health Services; Methodology; Misinformation; Mobile Health Application; Morbidity - disease rate; Outcome; Participant; Patient Recruitments; Pattern; Personal Satisfaction; Persons; Population; Process; Provider; Public Health; Reporting; Research; Resources; Sampling; Self Determination; Self Management; Services; Social Work; Social support; Source; Stigmatization; Suggestion; Survey Methodology; Symptoms; System; Technology; Testing; Time; Work; adaptive intervention; barrier to care; base; behavior change; chatbot; cloud based; design; eHealth; effective intervention; efficacy evaluation; evidence base; experience; feasibility testing; feasibility trial; health disparity; health literacy; health management; human model; innovation; intervention effect; literacy; mHealth; novel; online resource; open source; outreach; preference; prototype; psychoeducational; recruit; satisfaction; service providers; skills; success; theories; therapy design; tool

Project Summary/Abstract Adults with fetal alcohol spectrum disorders (FASD) experience many barriers to care. Research on the effects of prenatal alcohol exposure during adulthood is limited and few providers have the knowledge and skills to effectively serve this population. Adults with FASD need reliable and accessible information to inform decision making about their health and well-being. Innovative and scalable solutions are needed. The proposed project aims to meet this need by developing a novel mobile health (mHealth) application (“app”), currently called “My Health Coach,” to directly provide adults with FASD evidence-based education about their condition and tools to promote their own self-management and health advocacy goals. We will build on our success with the Families Moving Forward (FMF) Connect mHealth app for caregivers of younger children with FASD. This will allow us to extend into adulthood and expedite our ability to innovate adaptations tailored for this population. This project will follow a systematic approach to the development and evaluation of the My Health Coach app. We will engage an advisory board of adult leaders with FASD and seek input from key stakeholders at each step of the development and testing process. We will utilize focus group and survey methodologies to solicit input from diverse adults to inform development of the My Health Coach app (Aim 1). We will then conduct a feasibility trial (n=40; Aim 2), including both qualitative and quantitative methodologies to assess the feasibility and user satisfaction and experiences with the app. The results will inform further refinements of the app and estimate effect sizes for future larger-scale trials. Implementation data will also aid in identifying the patterns of app usage that relate to the greatest improvements in outcomes. Study hypotheses include: (1) adults with FASD will appreciate the simple and engaging design of the app, its ability to organize and remind them of information, and its delivery of useful content when they need it; (2) participants will vary in their perceived motivators and barriers for app use; and (3) improvements in pre-post outcomes will be associated with a usage pattern reflecting more routine app usage and a higher frequency of user interactions with the app. Results of this study will further the overall strategic aims of the Collaborative Initiative on FASD (CIFASD), which are to inform and develop effective interventions for FASD. This project integrates two main themes of CIFASD-4, specifically (1) adult health, and (2) using technology to increase access to care. The project will also benefit from resources and collaborations within CIFASD to carry out the proposed work, including integrating findings from other projects into inform intervention content, recruitment of a diverse sample, and outreach and dissemination. This will be the first study to systematically develop and test an intervention for adults with FASD targeting health and well-being. It has the advantage of being scalable and could reduce significant barriers to care, resulting in a greater public health impact.

项目摘要/摘要 胎儿酒精谱系障碍（FASD）的成年人经历了许多护理障碍。研究效果 成年期间的产前酒精暴露是有限的，很少有提供者拥有知识和技能 有效地为这个人群服务。 FASD的成年人需要可靠且可访问的信息以告知决定 创造他们的健康和福祉。需要创新和可扩展的解决方案。拟议的项目 旨在通过开发新型的移动健康（MHealth）应用程序（“应用”）来满足这种需求，目前称为“我的 健康教练，“直接为成年人提供有关其状况和工具的FASD循证教育 促进自己的自我管理和健康倡导目标。我们将以我们的成功为基础 前进的家庭（FMF）将MHealth应用程序连接到FASD幼儿的护理人员。这会 允许我们扩展到成年，并加快为该人群量身定制的创新适应能力。 该项目将遵循一种系统的方法来开发和评估我的健康教练应用程序。 我们将与FASD合作成人领导人的顾问委员会，并在每个方面寻求主要利益相关者的意见 开发和测试过程的步骤。我们将利用焦点小组和调查方法征求 潜水员成年人的投入为MOR Health Coach应用程序的开发提供信息（AIM 1）。然后，我们将进行 可行性试验（n = 40;目标2），包括评估可行性的定性和定量方法 以及用户满意度和应用程序的经验。结果将为应用程序的进一步改进和 未来大规模试验的估计效应大小。实施数据还将有助于确定 与结果的最大改进有关的应用程序用法。研究假设包括：（1） FASD将欣赏该应用程序的简单而引人入胜的设计，其组织和提醒他们的能力 信息及其在需要时提供的有用内容； （2）参与者的感知会有所不同 应用程序使用的动机和障碍； （3）改进前结果将与 用法模式反映了更多常规应用程序的使用以及与应用程序的用户交互的频率更高。 这项研究的结果将进一步促进FASD合作计划（CIFASD）的总体战略目标， 为了告知和制定FASD的有效干预措施。该项目集成了两个主要主题 CIFASD-4，特别是（1）成人健康，以及（2）使用技术来增加获得护理的机会。该项目将 还可以从CIFASD内部的资源和合作中受益，以进行拟议的工作，包括 将其他项目的调查结果纳入为干预内容，招募各种样本的招聘以及 宣传和传播。这将是系统开发和测试干预措施的首次研究 FASD的成年人针对健康和福祉。它具有可扩展的优势，可以减少 严重的护理障碍，从而产生更大的公共卫生影响。