Improving Family Cancer History Collection using Social Network, Human Centered Design, and Implementation Science Approaches
Improving Family Cancer History Collection using Social Network, Human Centered Design, and Implementation Science Approaches
批准号:
10402447
负责人:
Caitlin Gloeckner Allen
金额:
$9.3万
依托单位国家:
美国
项目类别:
财政年份:
2021
资助国家:
美国
项目状态:
未结题
起止时间:
2021-06-01 至 2025-05-31
关键词:
AddressAdultAfrican AmericanAwardBeliefCancer BurdenClinicClinicalCollectionColorCommunicationCommunitiesCommunity Clinical Oncology ProgramCommunity HealthComplexContinuity of Patient CareData AnalysesDeath RateDevelopmentEarly DiagnosisEffectiveness of InterventionsEnvironmentEthnic groupEvaluationFamilyFamily Cancer HistoryFamily dynamicsFamily health statusFamily memberFellowshipGeneticGenetic ResearchGenetic RiskGoalsHealthHealth TechnologyHumanIndividualInterventionInterviewKnowledgeLearningLinkLiteratureMalignant NeoplasmsMapsMedicalMentorsMentorshipMethodologyMethodsMinority GroupsNCI-Designated Cancer CenterNetwork-basedOutcomeParticipantPathway AnalysisPatientsPersonal BehaviorPhasePopulationPositioning AttributePrevention strategyProviderPublic Health SchoolsRaceRecording of previous eventsReportingResearchResearch InfrastructureResearch MethodologyResearch PersonnelResearch Project GrantsResearch Project SummariesResearch TrainingResourcesRiskRisk ReductionSiteSocial NetworkTechniquesTechnology AssessmentTrainingTranslatingTranslational ResearchTranslationsUnderrepresented PopulationsUniversitiesUpdateUrsidae FamilyWorkWritingbasecancer carecancer geneticscancer preventioncancer riskcareercareer developmentclinical decision-makingdesigneffectiveness outcomeevidence basefamily influencefollow-upgenetic informationimplementation outcomesimplementation researchimplementation scienceimprovedinnovationmarginalized populationmembernovelpopulation healthpragmatic trialprimary care settingprogramspublic health researchresearch and developmentresearch data disseminationrisk stratificationscreeningskillssystematic reviewtooltool developmenttraining opportunityunderserved minorityuptake
中文摘要
项目概要
F99/K00提案中包含的研究策略和培训计划将促进职业发展
凯特琳·艾伦 (Caitlin G. Allen) 公共卫生硕士的研究独立性。该研究计划旨在增进有关如何
扩大现有循证遗传学工具(例如家族癌症史 (FCH))的范围和采用
服务不足的少数民族人口。 FCH 收集是一种简单、行之有效的方法来识别个体的遗传
患癌症的风险,可以鼓励针对性的癌症预防和风险分层筛查。尽管
尽管各国努力,FCH 收集仍然不够理想,尤其是在收集方面存在显着差异
非裔美国人 (AA) 家庭。艾伦女士的 F99 研究和培训将侧重于培养她的社交技能
网络分析,研究导致 FCH 知识匮乏的个人和家庭网络因素。女士
Allen 已经完成了两篇补充论文研究,直接为拟议的 F99 提供信息
研究:1)对家庭健康收集工具进行系统审查,2)开发有效且可靠的量表
用于识别极有可能共享 FCH 信息的家庭网络成员。她会完成她的
该奖项 F99 阶段的论文研究,其中将涉及:1) 50 名 AA 参与者完成他们的研究
使用 FCH 收集工具 (ItRunsInMyFamily) 的 FCH,以及 2) 表征个人和网络级因素
通过使用有色生态遗传学进行个人网络访谈来影响 FCH 收集
关系图技术。为了实现这些目标,她的 F99 培训目标是:1)磨练专业能力
资助、学术写作和研究传播方面的技能,2)通过以下方式培养科学独立性:
加强社交网络分析和相关研究方法的方法论和分析技能,以及
3)确定博士后站点和K00导师。艾伦女士的F99培训计划得到了来自以下机构的大力支持
罗林斯公共卫生学院优秀的导师团队和埃默里大学的研究基础设施
大学,创造最佳的培养环境。 Allen女士博士后研究(K00阶段)将扩大
基于 F99 的工作,通过以人为本的设计增强 FCH 收集工具 (ItRunsInMyFamily)
方法并在基于社区的临床环境中实施该工具。她的训练目标与此一致
研究阶段包括:1)建立以人为本的设计和卫生技术评估方面的知识,
2) 成为实施科学方面的专家,3) 提高专业和研究技能,做好准备
以获得学术研究职位。总的来说,综合研究计划和培训目标对于
建立成功、创新且有意义的学术生涯,专注于扩展癌症特异性
通过支持基于证据的解决方案,为边缘化和代表性不足的人群提供遗传学发现
例如 FCH 可以改善癌症预防和早期检测。
英文摘要
PROJECT SUMMARY
The research strategy and training plan included in this F99/K00 proposal will enhance the career development
and research independence of Caitlin G. Allen, MPH. This research plan aims to advance knowledge of how to
expand the reach and uptake of existing evidence-based genetics tools such as family cancer history (FCH)
among underserved minority populations. FCH collection is a simple, proven way to identify individual's genetic
risk for developing cancer that can encourage tailored cancer prevention and risk-stratified screening. Despite
national efforts, FCH collection remains suboptimal with especially noteworthy disparities in collection among
African American (AA) families. Ms. Allen's F99 research and training will focus on developing her skills in social
network analysis to study individual and family network factors that contribute to poor knowledge of FCH. Ms.
Allen has already completed two complementary dissertation studies that directly inform the proposed F99
research: 1) a systematic review of family health collection tools, and 2) development of a valid and reliable scale
used to identify family network members that are highly likely to share FCH information. She will complete her
dissertation research in the F99 phase of this award, which will involve: 1) 50 AA participants completing their
FCH using a FCH collection tool (ItRunsInMyFamily), and 2) characterizing individual- and network-level factors
that influence FCH collection by conducting personal network interviews using the Colored Eco-Genetic
Relationship Map technique. To accomplish these aims, her F99 training objectives are to: 1) hone professional
skills in grantsmanship, academic writing, and research dissemination, 2) develop scientific independence by
strengthening methodological and analytic skills in social network analysis and relevant research methods, and
3) identify a postdoctoral site and K00 mentor. Ms. Allen's F99 training plan is bolstered by strong support from
an excellent mentorship team at the Rollins School of Public Health and the research infrastructure at Emory
University, creating an optimal training environment. Ms. Allen's postdoctoral research (K00 phase) will expand
upon F99 work by enhancing a FCH collection tool (ItRunsInMyFamily) through human centered design
approaches and implementing this tool in community-based clinical settings. Her training goals aligned with this
phase of research includes: 1) building knowledge in human centered design and health technology assessment,
2) becoming an expert in implementation science, and 3) enhancing professional and research skills to prepare
for an academic research position. Collectively, the integrated research plan and training goals are critical to
establishing a successful, innovative, and meaningful academic career focused on extending cancer-specific
genetics discoveries to marginalized and underrepresented populations by supporting evidence-based solutions
such as FCH to improve cancer prevention and early-detection.
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会议论文
Improving Family Cancer History Collection using Social Network, Human Centered Design, and Implementation Science Approaches
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批准号:10652994
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项目类别:
-
资助金额:$10.11万
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财政年份:2021
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负责人:Caitlin Gloeckner Allen
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依托单位:
Transdisciplinary Conference for Future Leaders in Precision Public Health
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批准号:10609235
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项目类别:
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资助金额:$4.2万
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财政年份:2021
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负责人:Caitlin Gloeckner Allen
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依托单位:
Improving Family Cancer History Collection using Social Network, Human Centered Design, and Implementation Science Approaches
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批准号:10407663
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项目类别:
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资助金额:$9.62万
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财政年份:2021
-
负责人:Caitlin Gloeckner Allen
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依托单位:
Improving Family Cancer History Collection using Social Network, Human Centered Design, and Implementation Science Approaches
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批准号:10062142
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项目类别:
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资助金额:$4.7万
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财政年份:2020
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负责人:Caitlin Gloeckner Allen
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依托单位:
海外基金