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Improving Family Cancer History Collection using Social Network, Human Centered Design, and Implementation Science Approaches

利用社交网络、以人为本的设计和实施科学方法改进家族癌症史收集

基本信息

批准号：
10062142
负责人：
Caitlin Gloeckner Allen
金额：
$ 4.7万
依托单位：
EMORY UNIVERSITY
依托单位国家：
美国
项目类别：
财政年份：
2020
资助国家：
美国
起止时间：
2020-08-01 至 2021-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10062142
关键词：
Address Adult African American Award Belief Cancer Burden Clinic Clinical Collection Color Communication Communities Community Clinical Oncology Program Community Health Complex Continuity of Patient Care Data Analyses Death Rate Development Early Diagnosis Effectiveness of Interventions Environment Ethnic group Evaluation Family Family Cancer History Family dynamics Family health status Family member Fellowship Genetic Genetic Research Genetic Risk Goals Health Health Technology Human Individual Intervention Interview Knowledge Learning Link Literature Malignant Neoplasms Maps Medical Mentors Mentorship Methodology Methods Minority NCI-Designated Cancer Center Network-based Outcome Participant Pathway Analysis Patients Personal Behavior Phase Population Positioning Attribute Prevention strategy Provider Public Health Schools Race Recording of previous events Reporting Research Research Infrastructure Research Methodology Research Personnel Research Project Grants Research Project Summaries Research Training Resources Risk Risk Reduction Site Social Network Techniques Technology Assessment Training Translating Translational Research Translations Underrepresented Populations Universities Update Ursidae Family Work Writing base cancer care cancer genetics cancer prevention cancer risk career career development clinical decision-making design evidence base family influence follow-up genetic information implementation research implementation science improved innovation member novel population health pragmatic trial primary care setting programs public health research research and development research data dissemination screening skills systematic review tool tool development training opportunity underserved minority uptake

项目摘要

PROJECT SUMMARY The research strategy and training plan included in this F99/K00 proposal will enhance the career development and research independence of Caitlin G. Allen, MPH. This research plan aims to advance knowledge of how to expand the reach and uptake of existing evidence-based genetics tools such as family cancer history (FCH) among underserved minority populations. FCH collection is a simple, proven way to identify individual's genetic risk for developing cancer that can encourage tailored cancer prevention and risk-stratified screening. Despite national efforts, FCH collection remains suboptimal with especially noteworthy disparities in collection among African American (AA) families. Ms. Allen's F99 research and training will focus on developing her skills in social network analysis to study individual and family network factors that contribute to poor knowledge of FCH. Ms. Allen has already completed two complementary dissertation studies that directly inform the proposed F99 research: 1) a systematic review of family health collection tools, and 2) development of a valid and reliable scale used to identify family network members that are highly likely to share FCH information. She will complete her dissertation research in the F99 phase of this award, which will involve: 1) 50 AA participants completing their FCH using a FCH collection tool (ItRunsInMyFamily), and 2) characterizing individual- and network-level factors that influence FCH collection by conducting personal network interviews using the Colored Eco-Genetic Relationship Map technique. To accomplish these aims, her F99 training objectives are to: 1) hone professional skills in grantsmanship, academic writing, and research dissemination, 2) develop scientific independence by strengthening methodological and analytic skills in social network analysis and relevant research methods, and 3) identify a postdoctoral site and K00 mentor. Ms. Allen's F99 training plan is bolstered by strong support from an excellent mentorship team at the Rollins School of Public Health and the research infrastructure at Emory University, creating an optimal training environment. Ms. Allen's postdoctoral research (K00 phase) will expand upon F99 work by enhancing a FCH collection tool (ItRunsInMyFamily) through human centered design approaches and implementing this tool in community-based clinical settings. Her training goals aligned with this phase of research includes: 1) building knowledge in human centered design and health technology assessment, 2) becoming an expert in implementation science, and 3) enhancing professional and research skills to prepare for an academic research position. Collectively, the integrated research plan and training goals are critical to establishing a successful, innovative, and meaningful academic career focused on extending cancer-specific genetics discoveries to marginalized and underrepresented populations by supporting evidence-based solutions such as FCH to improve cancer prevention and early-detection.

项目总结