An integrated approach to establish the scientific foundation for driving among adolescents with autism

为自闭症青少年驾驶奠定科学基础的综合方法

基本信息

批准号：
10408153
负责人：
Allison Elizabeth Curry
金额：
$ 58.36万
依托单位：
CHILDREN'S HOSP OF PHILADELPHIA
依托单位国家：
美国
项目类别：
财政年份：
2018
资助国家：
美国
起止时间：
2018-09-12 至 2024-05-31
项目状态：
已结题

来源：
https://reporter.nih.gov/project-details/10408153
关键词：
21 year old Address Adolescence Adult Automobile Driving Behavior Cause of Death Cellular Phone Childhood Community Participation Data Databases Decision Making Development Education Electronic Health Record Employment Event Family Family Process Foundations Funding Goals Gravitation Health Health Personnel Impairment Intellectual functioning disability Intervention Interview Knowledge Learning Licensing Licensure Link Longitudinal cohort study Measures Monitor Outcome Outcomes Research Parents Pattern Pediatric Hospitals Performance Personal Satisfaction Philadelphia Police Positioning Attribute Prevalence Quality of life Reporting Research Research Project Grants Resources Retrospective cohort study Risk Safety Sampling Series Speed Support Groups Surveys Technology Teenagers Time Vehicle crash Work adolescent with autism spectrum disorder adverse outcome autism spectrum disorder cohort data warehouse driving behavior driving safety driving skills evidence base family support high risk high school improved individuals with autism spectrum disorder informant innovation interest intervention program kinematics multidisciplinary programs risky driving skills social teen drivers unsafe driving young adult with autism spectrum disorder

项目摘要

Project Abstract The transition from adolescence to adulthood is particularly challenging for individuals with autism spectrum disorders (ASD). The ability to drive a vehicle has great potential to increase independence and mobility for teens with ASD—ultimately improving long-term well-being and health. We know that 1 in 3 individuals with ASD are licensed by age 21, but there is a notable gap between these families' interest in driving and the percentage of teens who are actually driving. For teens with ASD who do drive independently, impairments in skills known to be critical for safe driving may put them at heightened risk of a motor vehicle crash—the leading cause of death among teens. Given both the importance of safely encouraging independence and the potential for increased risk for negative driving outcomes, research on driving among teens with ASD is critical. Our long-term goal is to develop tailored resources and interventions that support teens with ASD and their families during the transition-to-driving period and optimize both their safety as independent drivers and positive long-term health outcomes. The overall objective of this research project is to provide much-needed evidence to directly inform development of these driving supports for teens and young adults with ASD. We will conduct an integrated series of three studies to: (1) identify underlying factors and outcomes of families' driving decisions; (2) characterize the driving patterns, behaviors, and performance of licensed teen drivers with ASD; and (3) establish the risk of negative driving outcomes among teen drivers with ASD. In Aim 1, we will first conduct qualitative interviews with driver educators, healthcare providers, and teens with ASD and their parents. Results will then directly inform quantitative surveys employed in a longitudinal cohort study of more than 500 teen with ASD-parent dyads that aims to determine how teens and their parents decide to drive and assess whether driving is associated with higher rates of quality of life measures. In Aim 2, we will characterize the driving patterns, behaviors, and performance of 40 newly licensed teens with ASD by continuously monitoring their driving for the first 12 months of licensure via innovative in-vehicle technology. We will estimate the prevalence of driving exposure (e.g., miles driven) and unsafe driving behaviors (e.g., speeding, cell phone use) among teens with ASD and compare the rates of unsafe driving events to a sample of teens without ASD derived from a prior naturalistic driving study. In Aim 3, we will conduct a retrospective cohort study using a unique linked data warehouse of childhood electronic health records and state traffic safety data to compare the risk of motor vehicle crashes and traffic citations for licensed teen drivers with and without ASD over the first four years of licensure. This study is innovative in that it is the first longitudinal research program to investigate real-world driving outcomes among teens with ASD. We expect that results generated from this project will lead to identification of new targets of driving interventions and programs for teens with ASD, provide knowledge about important aspects of the decision-making process for families during the transition-to-driving period, and ultimately improve the safety of drivers with ASD.

项目摘要从青春期到成年的过渡对于自闭症谱系的个体特别具有挑战性疾病（ASD）。驾驶车辆的能力有很大的潜力增加青少年的独立性和流动性与ASD一起改善了长期的福祉和健康。我们知道，有三分之一的ASD患者是在21岁时获得许可，但这些家庭对驾驶的兴趣和百分比之间存在显着差距实际上在开车的青少年。对于确实独立开车的ASD的青少年，已知的技能障碍对于安全驾驶至关重要，可能会使他们处于撞车撞车的风险高风险 - 死亡的主要原因在青少年中。鉴于安全地鼓励独立的重要性和增加的潜力负面驾驶结果的风险，对ASD青少年驾驶的研究至关重要。我们的长期目标是开发量身定制的资源和干预措施，以支持ASD及其家人的青少年过渡到驾驶时期，并优化其作为独立驱动因素和积极的长期健康的安全性结果。该研究项目的总体目的是提供急需的证据，以直接通知为ASD的青少年和年轻人开发这些驾驶支持。我们将进行一个集成的系列在三项研究中：（1）确定家庭驱动决定的基本因素和结果；（2）表征驾驶模式，行为和持牌青少年驾驶员与ASD的表现；（3）确定与ASD的青少年司机之间的负面驾驶结果。在AIM 1中，我们将首先与驾驶员教育者，医疗保健提供者以及与ASD及其父母的青少年。结果将直接告知在一项针对500多名青少年的ASD父母二元组的纵向队列研究中采用的定量调查旨在确定青少年及其父母如何决定开车和评估驾驶是否与较高的生活质量措施。在AIM 2中，我们将表征驾驶模式，行为和通过不断监视头12个月的驾驶，与ASD的40个新许可的青少年的表现通过创新的车载技术获得许可。我们将估计驾驶曝光的流行率（例如，里程与ASD的青少年之间的驱动）和不安全的驾驶行为（例如超速，手机使用）并进行比较不安全的驾驶事件的速度是未经ASD的青少年样本，该样本是从先前的自然主义驾驶研究中得出的。在 AIM 3，我们将使用独特的链接数据仓库进行回顾性队列研究健康记录和州交通安全数据，以比较汽车撞车的风险和交通引用的风险在前四年的许可证中，有或没有ASD的青少年驾驶员。这项研究具有创新性这是第一个研究ASD青少年驾驶成果的纵向研究计划。我们预计该项目产生的结果将导致确定驾驶干预措施的新目标和ASD青少年的计划，提供有关决策过程重要方面的知识在过渡时期的家庭中，最终通过ASD提高驾驶员的安全性。