Assessing the influence of family care resources on care utilization and transitions for older adults with dementia

项目总结/摘要 HwaJung Choi博士是一位家庭和劳动经济学家和人口统计学家。她的研究 人们对老龄化人口家庭、健康和保健之间的相互关系很感兴趣。她的长期 职业目标是：i）成为一名独立资助的大型研究项目的调查员，向公众提供信息 改善老年人及其家庭健康和福利的政策和干预研究 照顾者处理阿尔茨海默病和相关痴呆症（ADRD）; ii）开发创新数据 收集和利用战略，以评估老龄人口的医疗保健的真正成本;以及iii）成为 在社会科学、公共卫生和医学的跨学科研究中学者的教育者。 博士Choi的K01培训目标如下：i）获得ADRD病理生理学的科学知识， 流行病学和ADRD护理; ii）进一步了解老龄化研究和医疗保健成本评估， 人口老龄化; iii）获得定性研究技能; iv）更新定量研究的具体技能 方法和调查数据的研究技术，需要完成我提出的研究;和v）丰富 通过参加跨学科研究的会议和方案进行研究和建立网络。 拟议的研究包括三个目标：i）使用代表美国老年人的纵向数据， 确定老年人在痴呆症发作前的潜在家庭护理可用性，并评估 家庭可用性的人口和社会经济差异; ii）研究潜在的家庭护理 可用性影响ADRD发病时和病程期间的护理利用和护理成本;以及iii）行为 一项混合方法研究，以评估家庭护理可用性对护理分配的影响程度， 非正式ADRD护理人员在ADRD护理过程中面临的成本/负担。 密歇根大学（UM）为拟议的研究和培训提供了理想的研究环境。 HRS是主要数据源，由UM的社会研究所（ISR）提供和管理。的 美国国立卫生研究院赞助的密歇根大学阿尔茨海默病中心（MADC）提供了丰富的教育资源 专门针对ADRD，并收集/管理密歇根州ADRD患者及其护理人员的数据。MADC将 我也促进崔博士的定性研究，帮助招聘，提供设施，为焦点小组 访谈，并协助数据管理/分析。 拟议的研究将为改善健康和健康状况的政策和干预计划提供重要信息， 老年ADRD患者的健康状况。K01将为Dr. Choi提供ADRD和必要的关键培训 研究方法，使她成为一个成熟的独立调查员，领导一个跨学科的团队 关于衰老的研究因此，拟议的K01与NIA的使命直接一致，即促进 发展老龄问题研究科学家，并支持有关老龄问题的社会、经济和健康研究。 1

PROJECT SUMMARY/ABSTRACT HwaJung Choi, PhD is a family and labor economist and demographer by doctoral training. Her research interest has been inter-relationships among family, health, and healthcare for aging population. Her long-term career goals are: i) to become an independently funded investigator on large research projects informing public policy and intervention research toward improving health and welfare of older adults and their family caregivers dealing with Alzheimer's disease and related dementias (ADRD); ii) to develop innovative data collection and utilization strategy to assess the true costs of healthcare for aging population; and iii) to become an educator of scholars in inter-disciplinary research on social science, public health, and medicine. Dr. Choi's K01 training goals are the following: i) Acquire scientific knowledge in ADRD pathophysiology and epidemiology, and ADRD care; ii) Learn further about aging research and healthcare cost assessments for an aging population; iii) Acquire qualitative research skills; iv) Update specific skills in quantitative research methods and survey data research technique that are needed to complete my proposed research; and v) Enrich research and network via participation in meetings and programs on inter-disciplinary research. The proposed research includes three aims: i) Using a longitudinal data representative of US older adults, determine the potential family care availability of older adults from prior to the onset of dementia and assess demographic and socioeconomic differences in the family availability; ii) Examine how potential family care availability influences care utilization and care costs at onset and during the course of ADRD; and iii) Conduct a mixed methods research to assess the extent to which family care availability influences care allocation and costs/burdens that an informal ADRD caregiver faces during the course of ADRD care. The University of Michigan (UM) offers an ideal research environment for the proposed research and training. The HRS, primary data source, is provided and managed by the Institute for Social Research (ISR) at UM. The NIH sponsored Michigan Alzheimer's Disease Center (MADC) at UM provides rich educational resources specific to ADRD and collects/manages data of Michigan ADRD patients and their caregivers. The MADC will also facilitate Dr. Choi's qualitative research by helping with recruitments, providing facilities for focus group interviews, and assisting with data management/analysis. The proposed research will significantly inform policies and intervention programs to improve health and wellbeing of older adults with ADRD. The K01 will provide Dr. Choi critical training in ADRD and necessary research methods for her to become a full-fledged independent investigator leading an inter-disciplinary team on aging research. Therefore, the proposed K01 is directly aligned with NIA's mission that is to foster the development of research scientist in aging and to support social, economic, and health research on aging. 1