Assessing the influence of family care resources on care utilization and transitions for older adults with dementia

评估家庭护理资源对痴呆症老年人护理利用和过渡的影响

• 批准号: 10421287
• 负责人: HwaJung Choi
• 金额: $ 11.14万
• 依托单位: UNIVERSITY OF MICHIGAN AT ANN ARBOR
• 依托单位国家: 美国
• 财政年份: 2018
• 资助国家: 美国
• 起止时间: 2018-09-01 至 2023-04-30
• 项目状态: 已结题
• 来源: https://reporter.nih.gov/project-details/10421287
• 关键词: Adult; Adult Children; Age; Aging; Alzheimer' s Disease; Alzheimer' s disease related dementia; American; Award; Caregiver Burden; Caregivers; Caring; Characteristics; Communities; Cost Analysis; Country; Data; Data Collection; Data Sources; Dementia; Dementia caregivers; Demographer; Development; Direct Costs; Disease; Doctor of Philosophy; Economics; Elderly; Emotional Stress; Environment; Epidemiology; Face; Facilities and Administrative Costs; Family; Family Caregiver; Family health status; Family member; Financial cost; Focus Groups; Fostering; Foundations; Friends; Functional disorder; Funding; Goals; Group Interviews; Health; Health Care Costs; Health care facility; Healthcare; Home; Individual; Institutes; Interdisciplinary Study; Intervention; Intervention Studies; Knowledge; Learning; Light; Long-Term Care; Measures; Medicare; Medicine; Mentorship; Methodology; Michigan; Mission; Patients; Pattern; Personal Satisfaction; Persons; Policies; Policy Research; Population; Positioning Attribute; Prevalence; Primary Health Care; Public Health; Public Policy; Qualitative Research; Quality of life; Research; Research Methodology; Research Personnel; Research Project Grants; Research Technics; Research Training; Resources; Role; Scientist; Services; Social Sciences; Social support; Spouses; Surveys; System; Time; Training; United States National Institutes of Health; Universities; Update; aging in place; aging population; base; care costs; care systems; career; caregiving; community setting; cost; data management; dementia care; dementia caregiving; development policy; education resources; family influence; health care service utilization; high risk; human old age (65+); improved; in-home care; informal care; informal caregiving; innovation; interest; intervention program; longitudinal dataset; meetings; programs; recruit; research and development; skills; social; socioeconomics; welfare

PROJECT SUMMARY/ABSTRACT HwaJung Choi, PhD is a family and labor economist and demographer by doctoral training. Her research interest has been inter-relationships among family, health, and healthcare for aging population. Her long-term career goals are: i) to become an independently funded investigator on large research projects informing public policy and intervention research toward improving health and welfare of older adults and their family caregivers dealing with Alzheimer's disease and related dementias (ADRD); ii) to develop innovative data collection and utilization strategy to assess the true costs of healthcare for aging population; and iii) to become an educator of scholars in inter-disciplinary research on social science, public health, and medicine. Dr. Choi's K01 training goals are the following: i) Acquire scientific knowledge in ADRD pathophysiology and epidemiology, and ADRD care; ii) Learn further about aging research and healthcare cost assessments for an aging population; iii) Acquire qualitative research skills; iv) Update specific skills in quantitative research methods and survey data research technique that are needed to complete my proposed research; and v) Enrich research and network via participation in meetings and programs on inter-disciplinary research. The proposed research includes three aims: i) Using a longitudinal data representative of US older adults, determine the potential family care availability of older adults from prior to the onset of dementia and assess demographic and socioeconomic differences in the family availability; ii) Examine how potential family care availability influences care utilization and care costs at onset and during the course of ADRD; and iii) Conduct a mixed methods research to assess the extent to which family care availability influences care allocation and costs/burdens that an informal ADRD caregiver faces during the course of ADRD care. The University of Michigan (UM) offers an ideal research environment for the proposed research and training. The HRS, primary data source, is provided and managed by the Institute for Social Research (ISR) at UM. The NIH sponsored Michigan Alzheimer's Disease Center (MADC) at UM provides rich educational resources specific to ADRD and collects/manages data of Michigan ADRD patients and their caregivers. The MADC will also facilitate Dr. Choi's qualitative research by helping with recruitments, providing facilities for focus group interviews, and assisting with data management/analysis. The proposed research will significantly inform policies and intervention programs to improve health and wellbeing of older adults with ADRD. The K01 will provide Dr. Choi critical training in ADRD and necessary research methods for her to become a full-fledged independent investigator leading an inter-disciplinary team on aging research. Therefore, the proposed K01 is directly aligned with NIA's mission that is to foster the development of research scientist in aging and to support social, economic, and health research on aging. 1

项目概要/摘要 HwaJung Choi 博士是一位家庭和劳动经济学家以及经过博士培训的人口统计学家。她的研究 人们感兴趣的是老龄化人口的家庭、健康和医疗保健之间的相互关系。她的长期 职业目标是： i) 成为一名独立资助的大型研究项目的调查员，为公众提供信息 改善老年人及其家人的健康和福利的政策和干预研究 处理阿尔茨海默病和相关痴呆症 (ADRD) 的护理人员； ii) 开发创新数据 评估老龄化人口医疗保健真实成本的收集和利用策略； iii) 成为 社会科学、公共卫生和医学跨学科研究学者的教育者。 Choi 博士的 K01 培训目标如下： i) 获得 ADRD 病理生理学的科学知识和 流行病学和 ADRD 护理； ii) 进一步了解老龄化研究和医疗保健成本评估 人口老龄化； iii) 获得定性研究技能； iv) 更新定量研究的具体技能 完成我提出的研究所需的方法和调查数据研究技术； v) 丰富 通过参加跨学科研究的会议和计划进行研究和建立网络。 拟议的研究包括三个目标：i）使用代表美国老年人的纵向数据， 确定老年人在痴呆症发作前可获得的潜在家庭护理并评估 家庭可用性方面的人口和社会经济差异； ii) 检查潜在的家庭护理 可用性会影响 ADRD 发作时和整个过程中的护理利用和护理费用； iii) 行为 一项混合方法研究，旨在评估家庭护理可用性对护理分配的影响程度以及 非正式 ADRD 护理人员在 ADRD 护理过程中面临的费用/负担。 密歇根大学 (UM) 为拟议的研究和培训提供了理想的研究环境。 HRS 是主要数据源，由密歇根大学社会研究所 (ISR) 提供和管理。这 NIH 赞助的 UM 密歇根阿尔茨海默病中心 (MADC) 提供丰富的教育资源 针对 ADRD 并收集/管理密歇根 ADRD 患者及其护理人员的数据。 MADC 将 还通过帮助招募、为焦点小组提供设施来促进 Choi 博士的定性研究 访谈，并协助数据管理/分析。 拟议的研究将为政策和干预计划提供重要信息，以改善健康和 患有 ADRD 的老年人的健康状况。 K01 将为 Choi 博士提供 ADRD 方面的关键培训和必要的培训 研究方法使她成为一名成熟的独立研究者，领导一个跨学科团队 关于衰老研究。因此，拟议的 K01 与 NIA 的使命直接一致，即促进 发展老龄化研究科学家并支持老龄化的社会、经济和健康研究。 1