Assessing the influence of family care resources on care utilization and transitions for older adults with dementia

项目摘要/摘要 HwaJung Choi博士是一名家庭和劳工经济学家，也是一名受过博士培训的人口学家。她的研究 人们一直感兴趣的是家庭、健康和老龄化人口的医疗保健之间的相互关系。她的长期工作 职业目标是：i)成为一名独立资助的大型研究项目的调查员，向公众提供信息 改善老年人及其家庭健康和福利的政策和干预研究 处理阿尔茨海默病和相关痴呆症的照顾者(ADRD)；二)开发创新数据 收集和利用战略，以评估老龄化人口医疗保健的真实成本；以及iii)成为 社会科学、公共卫生和医学等跨学科研究学者的教育家。 崔博士的K01培训目标如下：i)获得ADRD病理生理学和 流行病学和ADRD护理；ii)进一步了解老龄化研究和医疗保健成本评估 人口老龄化；三)获得定性研究技能；四)更新定量研究的具体技能 完成我的拟议研究所需的方法和调查数据研究技术；以及v)丰富 通过参加关于跨学科研究的会议和计划进行研究和建立网络。 这项拟议的研究包括三个目标：i)使用代表美国老年人的纵向数据， 确定老年人在痴呆症发病前的潜在家庭护理可获得性并评估 家庭可获得性方面的人口统计和社会经济差异；二)审查潜在的家庭护理 可获得性影响在ADRD开始时和期间的护理利用率和护理费用；以及iii)进行 评估家庭护理可获得性对护理分配的影响程度的混合方法研究 非正式的ADRD照顾者在ADRD护理过程中面临的成本/负担。 密歇根大学(UM)为拟议的研究和培训提供了理想的研究环境。 主要数据来源HRS由密歇根大学社会研究所(ISR)提供和管理。这个 国立卫生研究院在密歇根大学赞助的密歇根阿尔茨海默病中心(MADC)提供了丰富的教育资源 专门针对ADRD，并收集/管理密歇根州ADRD患者及其照顾者的数据。MADC将 还通过帮助招聘、为焦点小组提供便利来促进崔博士的定性研究 访谈，并协助数据管理/分析。 拟议的研究将为改善健康和健康的政策和干预计划提供重要信息 患有ADRD的老年人的健康状况。K01将为崔博士提供ADRD方面的关键培训和必要的 她成为一名成熟的独立调查员领导跨学科团队的研究方法 关于衰老的研究。因此，拟议的K01直接与NIA的使命保持一致，即促进 发展老龄研究科学家，支持老龄问题的社会、经济和健康研究。 1

PROJECT SUMMARY/ABSTRACT HwaJung Choi, PhD is a family and labor economist and demographer by doctoral training. Her research interest has been inter-relationships among family, health, and healthcare for aging population. Her long-term career goals are: i) to become an independently funded investigator on large research projects informing public policy and intervention research toward improving health and welfare of older adults and their family caregivers dealing with Alzheimer's disease and related dementias (ADRD); ii) to develop innovative data collection and utilization strategy to assess the true costs of healthcare for aging population; and iii) to become an educator of scholars in inter-disciplinary research on social science, public health, and medicine. Dr. Choi's K01 training goals are the following: i) Acquire scientific knowledge in ADRD pathophysiology and epidemiology, and ADRD care; ii) Learn further about aging research and healthcare cost assessments for an aging population; iii) Acquire qualitative research skills; iv) Update specific skills in quantitative research methods and survey data research technique that are needed to complete my proposed research; and v) Enrich research and network via participation in meetings and programs on inter-disciplinary research. The proposed research includes three aims: i) Using a longitudinal data representative of US older adults, determine the potential family care availability of older adults from prior to the onset of dementia and assess demographic and socioeconomic differences in the family availability; ii) Examine how potential family care availability influences care utilization and care costs at onset and during the course of ADRD; and iii) Conduct a mixed methods research to assess the extent to which family care availability influences care allocation and costs/burdens that an informal ADRD caregiver faces during the course of ADRD care. The University of Michigan (UM) offers an ideal research environment for the proposed research and training. The HRS, primary data source, is provided and managed by the Institute for Social Research (ISR) at UM. The NIH sponsored Michigan Alzheimer's Disease Center (MADC) at UM provides rich educational resources specific to ADRD and collects/manages data of Michigan ADRD patients and their caregivers. The MADC will also facilitate Dr. Choi's qualitative research by helping with recruitments, providing facilities for focus group interviews, and assisting with data management/analysis. The proposed research will significantly inform policies and intervention programs to improve health and wellbeing of older adults with ADRD. The K01 will provide Dr. Choi critical training in ADRD and necessary research methods for her to become a full-fledged independent investigator leading an inter-disciplinary team on aging research. Therefore, the proposed K01 is directly aligned with NIA's mission that is to foster the development of research scientist in aging and to support social, economic, and health research on aging. 1