Outreach, Recruitment and Engagement Core

外展、招聘和参与核心

• 批准号: 10439583
• 负责人: JOSHUA CHODOSH
• 金额: $ 26.18万
• 依托单位: NEW YORK UNIVERSITY SCHOOL OF MEDICINE
• 依托单位国家: 美国
• 财政年份: 2020
• 资助国家: 美国
• 起止时间: 2020-05-01 至 2025-04-30
• 项目状态: 未结题
• 来源: https://reporter.nih.gov/project-details/10439583
• 关键词: African American; Alzheimer' s Disease; Alzheimer' s disease related dementia; Attention; Biological Markers; Black race; Clinical; Clinical Services; Clinical Trials; Collaborations; Communication; Communities; Community Health Aides; Community Services; Confidentiality of Patient Information; Cultural Diversity; Data; Detection; Disease; Disease Progression; Education; Educational workshop; Effectiveness; Electronic Health Record; Ensure; Evaluation; Event; Face; Feedback; Funding; Funding Opportunities; Goals; Growth; Health Fairs; Incidence; Institution; Investigation; Laboratories; Latino; Learning; Link; Mission; National Institute on Aging; New York; Outreach Research; Participant; Patients; Play; Population; Population Heterogeneity; Positioning Attribute; Prevalence; Program Development; Psychosocial Assessment and Care; Recruitment Activity; Registries; Relationship-Building; Research; Research Activity; Research Subject Recruitments; Research Subjects; Resources; Role; Services; Social Work; Students; System; Technology; Therapeutic Trials; Training; United States National Institutes of Health; Universities; Workforce Development; animation; base; biomedical referral center; clinical biomarkers; clinical center; cohort; community organizations; disease heterogeneity; education research; effective therapy; experience; human subject; improved; innovation; interest; meetings; member; neighborhood disadvantage; neuropathology; novel; outreach; peer; population based; prevent; programs; psychosocial; recruit; research and development; research study; response; underserved community

The growing incidence of Alzheimer's Disease and Alzheimer's disease Related Dementia (AD/ADRD) and the current demand and anticipated increase in the number of therapeutic trials and other ongoing investigations demands for more effective and efficient outreach, recruitment, and engagement. Consistent with the major goals of this FOA (RFA-AG-20-004), the AD/ADRD scientific and clinical community, and the New York University (NYU) Alzheimer's Disease Research Center (ADRC) for early disease detection, identification of disease heterogeneity, and developing effective therapies to prevent or delay disease progression, the Outreach, Recruitment and Engagement (ORE) Core is well positioned to serve as the outward face of the NYU Alzheimer's Disease Research Center (ADRC). The ORE Core will continue its collaboration with other NYU Centers, ADRCs, and the larger scientific community in support of disseminating ADRC-related discoveries from the Clinical, Biomarker, Neuropathology and Data and Statistical Cores. The ORE Core will also continue in its primary mission as the vehicle for recruitment and retention of research participants in the Clinical Core and affiliated AD/ADRD studies through community-based recruitment activities, through collaboration with NYU clinical services especially within disadvantaged neighborhoods, and through deployment of several new strategies to enhance recruitment and retention. To be most effective, we will develop innovative approaches that may increase the effectiveness and efficiency of recruitment and retention activities. This is particularly important for a culturally diverse population and will require multiple community organization collaborations and deployment of community health workers who are culturally concordant with those we seek to recruit. We will also utilize the myriad of Epic resources to conduct population-based recruitment through background analytics within the electronic health record system as well as messaging of potential patient subjects through Epic's MyChart while protecting patient confidentiality and avoiding the usual human subjects' requirements. We will rely heavily on our growing registry to ensure a larger “study-ready” population through a well-characterized group of subjects who may have specific participation interests and whose attention will be sustained by regular messages and dissemination of new research developments. The ORE core will also serve as a learning laboratory for these efforts to understand what is most effective and why. We will support national efforts in AD/ADRD research through close collaboration with the National Institute on Aging's Alzheimer's and related Dementias Education and Referral (ADEAR) Center by sharing our recruitment infographics, educational handouts, and video animations. The ORE Core will facilitate expansion of AD/ADRD research activities through engagement across the NYU campus and collaborating institutions, through research presentations and training sessions with professionals, and student-in-training workshops, while building relationships in underserved communities through community-located health fairs and related events.

阿尔茨海默病和阿尔茨海默病相关性痴呆（AD/ADRD）的发病率不断增加， 目前的需求以及治疗试验和其他正在进行的研究数量的预期增加 需要更有效和高效的外联、招聘和参与。与主要一致 本FOA（RFA-AG-20-004）、AD/ADRD科学和临床社区以及纽约的目标 阿尔茨海默病研究中心（ADRC），用于早期疾病检测， 疾病异质性，并开发有效的治疗方法，以防止或延缓疾病进展，外展， 招聘和参与（ORE）核心是很好的定位，作为纽约大学阿尔茨海默氏症的对外面孔 疾病研究中心（ADRC）。ORE核心将继续与纽约大学其他中心合作， ADRC和更大的科学界支持传播ADRC相关发现， 临床、生物标志物、神经病理学、数据和统计核心。ORE核心也将继续在其 主要使命是招募和保留临床核心和研究参与者的工具 通过与纽约大学的合作，通过基于社区的招募活动进行附属AD/ADRD研究 临床服务，特别是在弱势社区，并通过部署几个新的 加强招聘和留住人才的战略。为了最有效，我们将开发创新方法 这可能会提高征聘和留用活动的效力和效率。这是特别 这对文化多样性的人口很重要，需要多个社区组织的合作， 部署与我们寻求招聘的人员在文化上一致的社区卫生工作者。我们将 还利用Epic的大量资源，通过后台分析进行基于人口的招聘 在电子健康记录系统中，以及通过Epic的 MyChart，同时保护患者的机密性，避免通常的人类受试者的要求。我们将 严重依赖我们不断增长的登记，以确保通过一个特征良好的 一组受试者，他们可能有特定的参与兴趣，他们的注意力将通过定期 信息和传播新的研究进展。ORE核心也将作为一个学习 这些努力的实验室，以了解什么是最有效的，为什么。我们将支持国家努力， AD/ADRD研究通过与国家老龄化研究所的阿尔茨海默氏症和相关的 痴呆症教育和转介（ADEAR）中心通过分享我们的招聘信息图表，教育 讲义和视频动画。ORE核心将通过以下方式促进AD/ADRD研究活动的扩展 通过研究报告和培训，参与整个纽约大学校园和合作机构 与专业人士的会议，和学生在培训讲习班，同时建立关系，在服务不足 通过在社区举办的健康博览会和相关活动，向社区提供服务。