Outreach, Recruitment and Education Core

项目总结/摘要 外展、接纳和教育核心 阿尔茨海默病（AD）影响了560万美国人，无论种族或民族。如今，超过38 65岁或以上的美国人有100万，这个数字预计在未来25年内将翻一番。高龄老人 85岁以上的人是美国人口中增长最快的部分。目前约有400万 到2050年，这一人口将达到1900万。老年人口的种族和民族构成是 预计也将变得更加多样化。2006年，81%的65岁以上的成年人是高加索人;到2050年， 据估计，这一数字将下降到61%，其中约有1400万西班牙裔美国人，860万非洲裔美国人， 以及580万来自其他种族和族裔群体的老年人。收入、教育、保健服务方面的不平等 可用性，以及缺乏对知识，信仰和态度方面的特定文化差异的理解， 造成健康结果和生活质量的显著差异。这不仅体现在 症状表现，但对疾病和护理的看法。如果我们要真正了解临床前AD及其 无数的介绍，风险因素和潜在的治疗方案，然后我们的队列，参加 观察性研究、临床试验、生物标志物研究和心理社会研究必须反映出 美国人口的变化。外联，招聘和教育核心（OREC）的总体目标 纽约大学ADC是通过社区参与提供渠道;与其他纽约大学中心的合作努力， ADC和科学界;以及增加招募和保留 从事年度纵向评估、生物标志物研究的文化多样性研究人群， 尸检研究。我们建议四个具体目的：（1）协助招募及挽留艺发局的参加者 纵向研究和临床试验，特别强调代表性不足的少数群体（URG）;（2） 开展外联活动，向非专业人士提供信息并提高他们的认识，重点是URG 关于脑老化;记忆丧失;早期检测;生物标志物;诊断、治疗和护理选择;以及 促进对研究参与的良好态度;（3）保持和发展教育主动性， 培训机会;（4）评估我们的招聘、推广、培训和教育的有效性 活动核心协调所有ADC利益相关者的教育产品，从我们的研究参与者 及其家人，医学院学生，住院医生和通过ADC轮换的研究员，教师和 大学的工作人员，在我们的社区和超越公众和医疗保健专业人员，以及 随着越来越多的外国访问学者。

PROJECT SUMMARY/ABSTRACT OUTREACH, RECRUITMENT AND EDUCATION CORE Alzheimer s disease (AD) affects 5.6 million Americans regardless of race or ethnicity. Today, more than 38 million Americans are age 65 or older; this number is expected to double in the next 25 years. The oldest old people age 85+ constitute the fastest growing segment of the U.S. population. Currently about four million people, this population could top 19 million by 2050. The racial and ethnic makeup of the older population is also expected to become significantly more diverse. In 2006, 81% of adults age 65+ were Caucasian; by 2050 this is estimated to decrease to 61%40 with approximately 14 million Hispanics, 8.6 million African Americans, and 5.8 million older adults from other racial and ethnic groups. Inequities in income, education, health services availability, and a lack of understanding of specific cultural differences in knowledge, beliefs, and attitudes may contribute to significant disparities in health outcomes and quality of life. This includes not only differences in symptom presentation, but perceptions of disease and care. If we are to truly understand preclinical AD and its myriad to presentations, risk factors, and potential treatment options, then our cohorts that participate in observational studies, clinical trials, biomarker studies, and psychosocial research has to reflect the growing changes in the US population. The overall goal of Outreach, Recruitment, and Education Core (OREC) of the NYU ADC is to provide conduits through community engagement; collaborative efforts with other NYU Centers, ADCs, and the scientific community; and novel approaches to increase the recruitment and retention of culturally diverse research population engaged in annual longitudinal assessments, biomarker research, and autopsy studies. We propose 4 Specific Aims: (1) Facilitate recruitment and retention of participants in ADC longitudinal studies and clinical trials with special emphasis on underrepresented minority groups (URG); (2) Perform outreach activities to inform and raise awareness of lay individuals, with an emphasis on URG concerning brain aging; memory loss; early detection; biomarkers; diagnostic, treatment and care options; and promote favorable attitudes towards research participation; (3) Maintain and grow educational initiatives and training opportunities; (4) Evaluate the effectiveness of our recruitment, outreach, training and educational activities. The Core coordinates educational offerings for all ADC stakeholders, from our research participants and their family members, to medical students, residents and fellows rotating through the ADC, to faculty and staff of the University, to the general public and healthcare professionals in our community and beyond, as well as an increasing number of visiting foreign scholars.