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University of Pittsburgh Clinical and Translational Science Institute

匹兹堡大学临床与转化科学研究所

基本信息

批准号：
10517554
负责人：
STEVEN E REIS
金额：
$ 17.78万
依托单位：
UNIVERSITY OF PITTSBURGH AT PITTSBURGH
依托单位国家：
美国
项目类别：
财政年份：
2016
资助国家：
美国
起止时间：
2016-07-12 至 2026-05-31
项目状态：
未结题

来源：
https://reporter.nih.gov/project-details/10517554
关键词：
12 year old 17 year old 18 year old Address Adolescent Adult Affect Appointment Attitude COVID-19 pandemic Caregivers Caring Censuses Characteristics Child Child Health Child health care Childhood Clinical Sciences Communication Communication Barriers Consult Data Electronic Health Record Enrollment Ensure Face Family Future Geography Goals Health Health Services Health Services Accessibility Health system Healthcare Heterogeneity Improve Access Income Institutes Integrated Health Care Systems Intervention Interview Language Leadership Logistics Medical Mentors Mentorship Modeling Outcome Parents Patients Pediatrics Persons Physicians Population Primary Health Care Proxy Qualitative Methods Research Research Methodology Research Personnel Sampling Secure Structure System Technology Telemedicine Testing Training Translational Research Transportation Universities Variant Work career career development design didactic education digital digital healthcare education research expectation experience health care availability health communication health equity health management improved improved outcome patient portal pediatric patients preference skills tool usability

项目摘要

PROJECT SUMMARY/ABSTRACT Patient portals are secure, online health management tools that connect patients to portions of their electronic health record and serve as the entry point for digital care in 90% of health systems. For children (0-12 years old), the patient portal is accessed by a parent or caregiver acting on the child's behalf. Geographic, financial, communication, and structural barriers that limit access to in-person care can create barriers to digital care. Inequities in portal enrollment and use may disproportionately affect children who also face limited access to in-person care, exacerbating disparities. As the patient portal is designed as the entry point for digital engagement with healthcare, it is essential to understand the factors leading to inequitable enrollment in order to promote equitable access to digital healthcare for all children. The overall goal of this study is to identify strategies to align pediatric patient portals with the expectations and needs of parents to enhance use and to ultimately improve health communication and equitable child health outcomes. In Aim 1, we will examine child, family and system-level factors associated with proxy enrollment in and use of a pediatric patient portal among children receiving care across >125 primary care practices. In Aim 2, we will conduct semi-structured interviews with caregivers who are not enrolled in a pediatric patient portal to explore expectations, and challenges regarding patient portals. With committed mentors and strong institutional support, the PI will receive mentorship, didactic education and research experience for her career development in equity- centered research methods, qualitative methods, and leadership skills, thus preparing her for a K23 application to launch a career as an independent health services researcher focused on improving child health outcomes through equitable and appropriate application of technology.

项目总结/摘要患者门户网站是安全的在线健康管理工具，可将患者连接到其部分电子健康记录，并在90%的卫生系统中作为数字医疗的入口点。儿童（0-12岁旧的），由代表儿童的父母或看护者访问患者门户。地理位置，财务状况，通信和限制获得亲自护理的结构性障碍可能会对数字护理造成障碍。门户网站注册和使用方面的不平等可能对儿童造成不成比例的影响，亲自护理，加剧了差距。由于患者门户网站设计为数字化的入口点，参与医疗保健，必须了解导致不公平入学的因素，促进所有儿童公平获得数字医疗保健。本研究的总体目标是确定使儿科患者门户网站与父母的期望和需求保持一致的策略，以提高使用率，最终改善卫生交流和公平的儿童健康成果。在目标1中，我们将研究与代理入组和使用儿科患者门户相关的儿童、家庭和系统水平因素在超过125个初级保健机构接受护理的儿童中。在目标2中，我们将进行半结构化与未在儿科患者门户网站注册的护理人员进行访谈，以探索期望，以及关于患者入口的挑战。有了坚定的导师和强大的机构支持，PI将接受指导，教学教育和研究经验，为她的职业发展在公平- 以研究方法为中心，定性方法和领导技能，从而为K23申请做好准备作为一名独立的卫生服务研究人员，致力于改善儿童健康状况，通过公平和适当的技术应用。